Literature DB >> 26179728

Methods for engaging stakeholders in comparative effectiveness research: a patient-centered approach to improving diabetes care.

Julie A Schmittdiel1, Jay Desai2, Emily B Schroeder3, Andrea R Paolino3, Gregory A Nichols4, Jean M Lawrence5, Patrick J O'Connor2, Kris A Ohnsorg2, Katherine M Newton6, John F Steiner3.   

Abstract

Engaging stakeholders in the research process has the potential to improve quality of care and the patient care experience. Online patient community surveys can elicit important topic areas for comparative effectiveness research. Stakeholder meetings with substantial patient representation, as well as representation from health care delivery systems and research funding agencies, are a valuable tool for selecting and refining pilot research and quality improvement projects. Giving patient stakeholders a deciding vote in selecting pilot research topics helps ensure their 'voice' is heard. Researchers and health care leaders should continue to develop best-practices and strategies for increasing patient involvement in comparative effectiveness and delivery science research.

Entities:  

Keywords:  Comparative effectiveness research; Diabetes; Patient engagement; Stakeholder engagement

Mesh：

Year:  2015        PMID： 26179728      PMCID： PMC5100811          DOI： 10.1016/j.hjdsi.2015.02.005

Source DB:  PubMed          Journal:  Healthc (Amst)        ISSN： 2213-0764


  26 in total

1.  How best to engage patients, doctors, and other stakeholders in designing comparative effectiveness studies.

Authors:  Ari Hoffman; Russ Montgomery; Wade Aubry; Sean R Tunis
Journal:  Health Aff (Millwood)       Date:  2010-10       Impact factor: 6.301

2.  The Patient-Centered Outcomes Research Institute (PCORI) national priorities for research and initial research agenda.

Authors:  Joe V Selby; Anne C Beal; Lori Frank
Journal:  JAMA       Date:  2012-04-18       Impact factor: 56.272

3.  System-based participatory research in health care: an approach for sustainable translational research and quality improvement.

Authors:  Julie A Schmittdiel; Kevin Grumbach; Joe V Selby
Journal:  Ann Fam Med       Date:  2010 May-Jun       Impact factor: 5.166

4.  Implications of different laboratory-based incident diabetic kidney disease definitions on comparative effectiveness studies.

Authors:  Emily B Schroeder; Glenn K Goodrich; Katherine M Newton; Julie A Schmittdiel; Marsha A Raebel
Journal:  J Comp Eff Res       Date:  2014-07       Impact factor: 1.744

Review 5.  A practice-based tool for engaging stakeholders in future research: a synthesis of current practices.

Authors:  Jeanne-Marie Guise; Christen O'Haire; Melissa McPheeters; Carole Most; Lia Labrant; Kathy Lee; Erika K Barth Cottrell; Elaine Graham
Journal:  J Clin Epidemiol       Date:  2013-03-13       Impact factor: 6.437

Review 6.  Economic costs of diabetes in the U.S. In 2007.

Authors: 
Journal:  Diabetes Care       Date:  2008-03       Impact factor: 19.112

7.  Construction of a multisite DataLink using electronic health records for the identification, surveillance, prevention, and management of diabetes mellitus: the SUPREME-DM project.

Authors:  Gregory A Nichols; Jay Desai; Jennifer Elston Lafata; Jean M Lawrence; Patrick J O'Connor; Ram D Pathak; Marsha A Raebel; Robert J Reid; Joseph V Selby; Barbara G Silverman; John F Steiner; W F Stewart; Suma Vupputuri; Beth Waitzfelder
Journal:  Prev Chronic Dis       Date:  2012-06-07       Impact factor: 2.830

8.  Ensuring Support for Research and Quality Improvement (QI) Networks: Four Pillars of Sustainability-An Emerging Framework.

Authors:  Erin Holve
Journal:  EGEMS (Wash DC)       Date:  2013-01-17

9.  Feasibility of a web-based survey of hallucinations and assessment of visual function in patients with Parkinson's disease.

Authors:  Mary Lou Jackson; Peter J Bex; James M Ellison; Paul Wicks; Jennifer Wallis
Journal:  Interact J Med Res       Date:  2014-01-06

10.  Rapid, responsive, relevant (R3) research: a call for a rapid learning health research enterprise.

Authors:  William T Riley; Russell E Glasgow; Lynn Etheredge; Amy P Abernethy
Journal:  Clin Transl Med       Date:  2013-05-10
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  14 in total

1.  PaTH to partnership in stakeholder-engaged research: A framework for stakeholder engagement in the PaTH to Health Diabetes study.

Authors:  Jennifer M Poger; Hsin-Chieh Yeh; Cindy L Bryce; Jennifer K Carroll; Lan Kong; Erica B Francis; Jennifer L Kraschnewski
Journal:  Healthc (Amst)       Date:  2019-05-14

Review 2.  Population Health Management for Diabetes: Health Care System-Level Approaches for Improving Quality and Addressing Disparities.

Authors:  Julie A Schmittdiel; Anjali Gopalan; Mark W Lin; Somalee Banerjee; Christopher V Chau; Alyce S Adams
Journal:  Curr Diab Rep       Date:  2017-05       Impact factor: 4.810

3.  Designing an online intervention for adults with addictive eating: a qualitative integrated knowledge translation approach.

Authors:  Mark Leary; Kirrilly Pursey; Antonio Verdejo-García; Janelle Skinner; Megan C Whatnall; Phillipa Hay; Clare Collins; Amanda L Baker; Tracy Burrows
Journal:  BMJ Open       Date:  2022-06-07       Impact factor: 3.006

4.  Pre-Visit Prioritization for complex patients with diabetes: Randomized trial design and implementation within an integrated health care system.

Authors:  Richard W Grant; Connie S Uratsu; Karen R Estacio; Andrea Altschuler; Eileen Kim; Bruce Fireman; Alyce S Adams; Julie A Schmittdiel; Michele Heisler
Journal:  Contemp Clin Trials       Date:  2016-01-26       Impact factor: 2.226

5.  A Patient and Provider Research Agenda on Diabetes and Hypertension Management.

Authors:  Emily B Zimmerman; Sarah K Cook; Amber D Haley; Steven H Woolf; Sarah K Price
Journal:  Am J Prev Med       Date:  2017-03-15       Impact factor: 5.043

6.  Bridging the Patient Engagement Gap in Research and Quality Improvement Utilizing the Henry Ford Flexible Engagement Model.

Authors:  Heather A Olden; Sara Santarossa; Dana Murphy; Christine C Johnson; Karen E Kippen
Journal:  J Patient Cent Res Rev       Date:  2022-01-17

7.  An Innovative Approach to Informing Research: Gathering Perspectives on Diabetes Care Challenges From an Online Patient Community.

Authors:  Emily B Schroeder; Jay Desai; Julie A Schmittdiel; Andrea R Paolino; Jennifer L Schneider; Glenn K Goodrich; Jean M Lawrence; Katherine M Newton; Gregory A Nichols; Patrick J O'Connor; Marcy Fitz-Randolph; John F Steiner
Journal:  Interact J Med Res       Date:  2015-06-30

8.  Maintaining primacy of the patient perspective in the development of patient-centered patient reported outcomes.

Authors:  Rochelle E Tractenberg; Amanda Garver; Inger H Ljungberg; Manon M Schladen; Suzanne L Groah
Journal:  PLoS One       Date:  2017-03-03       Impact factor: 3.240

9.  Patient centered research to improve community involvement (PaRTICIpate) in diabetes self-management: a conference series for developing collaborations between researchers, stakeholders, and patients.

Authors:  Ashley S Crumby; Erin R Holmes; Meagen Rosenthal
Journal:  J Patient Rep Outcomes       Date:  2018-10-24

10.  Creating patient-centered health care systems to improve outcomes and reduce disparities.

Authors:  Julie A Schmittdiel
Journal:  Isr J Health Policy Res       Date:  2015-08-18
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