Literature DB >> 31101581

PaTH to partnership in stakeholder-engaged research: A framework for stakeholder engagement in the PaTH to Health Diabetes study.

Jennifer M Poger1, Hsin-Chieh Yeh2, Cindy L Bryce3, Jennifer K Carroll4, Lan Kong5, Erica B Francis6, Jennifer L Kraschnewski7.   

Abstract

Engaging a diverse stakeholder group, including patients, clinicians, policy makers, and leadership from national professional organizations as partners in research supports the pursuit of patient-centered outcomes. Utilizing the Patient-Centered Outcomes Research (PCOR) Engagement Principles and applying adult learning theories to training opportunities can enhance stakeholder-investigator collaborations. Regularly scheduled study meetings with stakeholders can help streamline communication, offer a platform for stakeholder voices to be shared, and increase study productivity. Ongoing engagement evaluations provide an important opportunity to assess engagement activities and improve processes moving forward. Benefits of a robust patient partner and stakeholder body extend beyond the study's objectives and translate into the creation of larger networks where resources are shared and patient-centeredness is enhanced.
Copyright © 2019 The Authors. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Community engagement; Diabetes; Patient partners; Patient-centered research; Stakeholder-engaged research

Mesh:

Year:  2019        PMID: 31101581      PMCID: PMC6957768          DOI: 10.1016/j.hjdsi.2019.05.001

Source DB:  PubMed          Journal:  Healthc (Amst)        ISSN: 2213-0764


  14 in total

Review 1.  Evaluating patient and stakeholder engagement in research: moving from theory to practice.

Authors:  Laura Esmail; Emily Moore; Alison Rein
Journal:  J Comp Eff Res       Date:  2015-03       Impact factor: 1.744

2.  Patient, caregiver and clinician views on engagement in comparative effectiveness research.

Authors:  Laura P Forsythe; Lori B Frank; Thomas A Workman; Tandrea Hilliard; Daniel Harwell; Lauren Fayish
Journal:  J Comp Eff Res       Date:  2017-02-08       Impact factor: 1.744

3.  The PCORI Engagement Rubric: Promising Practices for Partnering in Research.

Authors:  Susan Sheridan; Suzanne Schrandt; Laura Forsythe; Tandrea S Hilliard; Kathryn A Paez
Journal:  Ann Fam Med       Date:  2017-03       Impact factor: 5.166

4.  Beyond lip service and box ticking: how effective patient engagement is integral to the development and delivery of patient-reported outcomes.

Authors:  K Absolom; P Holch; B Woroncow; E P Wright; G Velikova
Journal:  Qual Life Res       Date:  2015-01-11       Impact factor: 4.147

5.  Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute.

Authors:  Lori Frank; Laura Forsythe; Lauren Ellis; Suzanne Schrandt; Sue Sheridan; Jason Gerson; Kristen Konopka; Sarah Daugherty
Journal:  Qual Life Res       Date:  2015-01-06       Impact factor: 4.147

Review 6.  Patient engagement in research: a systematic review.

Authors:  Juan Pablo Domecq; Gabriela Prutsky; Tarig Elraiyah; Zhen Wang; Mohammed Nabhan; Nathan Shippee; Juan Pablo Brito; Kasey Boehmer; Rim Hasan; Belal Firwana; Patricia Erwin; David Eton; Jeff Sloan; Victor Montori; Noor Asi; Abd Moain Abu Dabrh; Mohammad Hassan Murad
Journal:  BMC Health Serv Res       Date:  2014-02-26       Impact factor: 2.655

7.  Patient and Stakeholder Engagement in the PCORI Pilot Projects: Description and Lessons Learned.

Authors:  Laura P Forsythe; Lauren E Ellis; Lauren Edmundson; Raj Sabharwal; Alison Rein; Kristen Konopka; Lori Frank
Journal:  J Gen Intern Med       Date:  2015-07-10       Impact factor: 5.128

8.  Methods and impact of engagement in research, from theory to practice and back again: early findings from the Patient-Centered Outcomes Research Institute.

Authors:  Laura Forsythe; Andrea Heckert; Mary Kay Margolis; Suzanne Schrandt; Lori Frank
Journal:  Qual Life Res       Date:  2017-05-12       Impact factor: 4.147

9.  Methods guiding stakeholder engagement in planning a pragmatic study on changing stroke systems of care.

Authors:  Sabina B Gesell; Karen Potvin Klein; Jacqueline Halladay; Janet Prvu Bettger; Janet Freburger; Doyle M Cummings; Barbara J Lutz; Sylvia Coleman; Cheryl Bushnell; Wayne Rosamond; Pamela W Duncan
Journal:  J Clin Transl Sci       Date:  2017-02-27

10.  Launching PCORnet, a national patient-centered clinical research network.

Authors:  Rachael L Fleurence; Lesley H Curtis; Robert M Califf; Richard Platt; Joe V Selby; Jeffrey S Brown
Journal:  J Am Med Inform Assoc       Date:  2014-05-12       Impact factor: 4.497

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  5 in total

1.  Evaluating the Impact of Stakeholder Engagement in a School-Based Type 1 Diabetes Study.

Authors:  Christine A March; Traci M Kazmerski; Christine Moon; Ingrid M Libman; Elizabeth Miller
Journal:  Diabetes Spectr       Date:  2021-08-03

2.  "Not Alone Anymore": The Experiences of Adults With Diabetes in New York's Medicaid Health Home Program.

Authors:  Victoria L Mayer; David Siscovick; Crispin Goytia; Daphne Brown; Emily Hanlen; James Flory; M Diane McKee; Carol R Horowitz
Journal:  Med Care       Date:  2020-06       Impact factor: 2.983

3.  Evaluating Stakeholder Engagement: Stakeholder-Centric Instrumentation Process (SCIP).

Authors:  Jenny Martínez; Catherine Verrier Piersol; Sherrie Holloway; Lauren Terhorst; Natalie E Leland
Journal:  West J Nurs Res       Date:  2021-04-24       Impact factor: 1.774

4.  Network Engagement in Action: Stakeholder Engagement Activities to Enhance Patient-centeredness of Research.

Authors:  Jennifer M Poger; Victoria Mayer; Obidiugwu Kenrik Duru; Beth Nauman; Heather Holderness; Nate Warren; Carolina Vasquez; Salma Bibi; Laura J Rasmussen-Torvik; Zahra Hosseinian; Lizheng Shi; Jamie Wallace; Crispin N Goytia; Carol R Horowitz; Jennifer L Kraschnewski
Journal:  Med Care       Date:  2020-06       Impact factor: 3.178

5.  Musculoskeletal pain stakeholder engagement and partnership development: determining patient-centered research priorities.

Authors:  Jason M Beneciuk; Dorothy Verstandig; Chuck Taylor; Doug Scott; Joan Levin; Raine Osborne; Joel E Bialosky; Trevor A Lentz; Tava Buck; Anita L Davis; Christina Harder; Monika B Beneciuk; Virgil Wittmer; James Sylvester; Robert Rowe; David McInnes; Tad P Fisher; Lisa McGarrie
Journal:  Res Involv Engagem       Date:  2020-06-01
  5 in total

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