Literature DB >> 22037898

Commentary: how individual and profession-level factors influence discussion of disability in prenatal genetic counseling.

Jan Hodgson, Jon Weil.   

Abstract

Hodgson and Weil (Journal of Genetic Counseling, 2011) reports on two interactive workshops in which genetic counselors identified a broad set of counseling issues that may be impediments to promoting an adequate discussion of disability in prenatal genetic counseling. The present commentary discusses two factors that we infer underlie these counseling issues. First, countertransference concerning disability, which is normal and expected, may influence genetic counselors' decisions about raising and exploring the complex topic of disability in prenatal genetic counseling. Second, the limited involvement of the profession of genetic counseling in the complex social and ethical issues of disability provide little guidance to the individual genetic counselor with respect to discussing disability in prenatal diagnosis counseling. We suggest both factors must be acknowledged and addressed in order to adequately implement the recommendations presented in Hodgson and Weil (Journal of Genetic Counseling, 2011) as well as other efforts to increase discussion of disability in prenatal diagnosis counseling in the service of informed decision making.

Mesh:

Year:  2011        PMID: 22037898     DOI: 10.1007/s10897-011-9416-3

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  11 in total

1.  The twisted helix: an essay on genetic counselors, eugenics, and social responsibility.

Authors:  Robert G Resta
Journal:  J Genet Couns       Date:  1992-09       Impact factor: 2.537

2.  An investigation of genetic counselor experiences in peer group supervision.

Authors:  Kimberly W Zahm; Patricia McCarthy Veach; Bonnie S LeRoy
Journal:  J Genet Couns       Date:  2007-08-16       Impact factor: 2.537

3.  Variation in content in prenatal genetic counseling interviews.

Authors:  B M Burke; A Kolker
Journal:  J Genet Couns       Date:  1994-03       Impact factor: 2.537

4.  Practice variability in prenatal genetic counseling.

Authors:  E T Matloff
Journal:  J Genet Couns       Date:  1994-09       Impact factor: 2.537

5.  A Leader-Led Supervision Group as a Model for Practicing Genetic Counselors.

Authors:  A L Kennedy
Journal:  J Genet Couns       Date:  2000-10       Impact factor: 2.537

6.  Supervision for Practicing Genetic Counselors: An Overview of Models.

Authors:  A L Kennedy
Journal:  J Genet Couns       Date:  2000-10       Impact factor: 2.537

Review 7.  The relationship between the genetic counseling profession and the disability community: a commentary.

Authors:  Anne C Madeo; Barbara B Biesecker; Campbell Brasington; Lori H Erby; Kathryn F Peters
Journal:  Am J Med Genet A       Date:  2011-05-12       Impact factor: 2.802

8.  Talking about disability in prenatal genetic counseling: a report of two interactive workshops.

Authors:  Jan Hodgson; Jon Weil
Journal:  J Genet Couns       Date:  2011-10-25       Impact factor: 2.537

Review 9.  Prenatal diagnosis and selective abortion: a challenge to practice and policy.

Authors:  A Asch
Journal:  Am J Public Health       Date:  1999-11       Impact factor: 9.308

10.  Ethical decision-making in prenatal diagnosis and termination of pregnancy: a qualitative survey among physicians and midwives.

Authors:  M Garel; S Gosme-Seguret; M Kaminski; M Cuttini
Journal:  Prenat Diagn       Date:  2002-09       Impact factor: 3.050

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  3 in total

1.  Characterizing Clinical Genetic Counselors' Countertransference Experiences: an Exploratory Study.

Authors:  Rebecca Reeder; Patricia McCarthy Veach; Ian M MacFarlane; Bonnie S LeRoy
Journal:  J Genet Couns       Date:  2017-01-10       Impact factor: 2.537

2.  Attitudes of mothers of children with down syndrome towards noninvasive prenatal testing.

Authors:  Gregory Kellogg; Leah Slattery; Louanne Hudgins; Kelly Ormond
Journal:  J Genet Couns       Date:  2014-02-01       Impact factor: 2.537

3.  Genetic Counseling, Professional Values, and Habitus: An Analysis of Disability Narratives in Textbooks.

Authors:  Amy R Reed
Journal:  J Med Humanit       Date:  2018-12
  3 in total

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