Literature DB >> 27761686

Genetic Counseling, Professional Values, and Habitus: An Analysis of Disability Narratives in Textbooks.

Amy R Reed1.   

Abstract

This article analyzes narrative illustrations in genetic counseling textbooks as a way of understanding professional habitus--the dispositions that motivate professional behavior. In particular, this analysis shows that there are significant differences in how the textbooks' expository and narrative portions represent Down syndrome, genetic counseling practice, and patient behaviors. While the narrative portions of the text position the genetic counseling profession as working in service to the values of genetic medicine, the expository portions represent genetic counselors as neutral parties. Ultimately, this article argues that this ambiguity is harmful to the production of a professional habitus that is consistent with espoused professional values concerning respect for persons with disabilities and the promotion of psychosocial counseling.

Entities:  

Keywords:  Down syndrome; Genetic counseling; Narrative; Prenatal testing

Mesh:

Year:  2018        PMID: 27761686     DOI: 10.1007/s10912-016-9413-5

Source DB:  PubMed          Journal:  J Med Humanit        ISSN: 1041-3545


  11 in total

1.  Process studies in genetic counseling: peering into the black box.

Authors:  B B Biesecker; K F Peters
Journal:  Am J Med Genet       Date:  2001

2.  Genetic counseling and the disabled: feminism examines the stance of those who stand at the gate.

Authors:  Annette Patterson; Martha Satz
Journal:  Hypatia       Date:  2002

3.  Commentary: how individual and profession-level factors influence discussion of disability in prenatal genetic counseling.

Authors:  Jan Hodgson; Jon Weil
Journal:  J Genet Couns       Date:  2011-10-25       Impact factor: 2.537

4.  Practice guidelines for communicating a prenatal or postnatal diagnosis of Down syndrome: recommendations of the national society of genetic counselors.

Authors:  Kathryn B Sheets; Blythe G Crissman; Cori D Feist; Susan L Sell; Lisa R Johnson; Kelly C Donahue; Diane Masser-Frye; Gail S Brookshire; Amanda M Carre; Danielle Lagrave; Campbell K Brasington
Journal:  J Genet Couns       Date:  2011-05-27       Impact factor: 2.537

5.  Receiving the initial Down syndrome diagnosis: a comparison of prenatal and postnatal parent group experiences.

Authors:  Briana S Nelson Goff; Nicole Springer; Laura Cline Foote; Courtney Frantz; Madison Peak; Courtney Tracy; Taylor Veh; Gail E Bentley; Kayli A Cross
Journal:  Intellect Dev Disabil       Date:  2013-12

6.  Talking about disability in prenatal genetic counseling: a report of two interactive workshops.

Authors:  Jan Hodgson; Jon Weil
Journal:  J Genet Couns       Date:  2011-10-25       Impact factor: 2.537

7.  Self-perceptions from people with Down syndrome.

Authors:  Brian G Skotko; Susan P Levine; Richard Goldstein
Journal:  Am J Med Genet A       Date:  2011-09-09       Impact factor: 2.802

8.  Genetic counseling for prenatal testing: where is the discussion about disability?

Authors:  Ellyn Farrelly; Mildred K Cho; Lori Erby; Debra Roter; Anabel Stenzel; Kelly Ormond
Journal:  J Genet Couns       Date:  2012-08-17       Impact factor: 2.537

9.  The decision to continue a pregnancy affected by Down syndrome: timing of decision and satisfaction with receiving a prenatal diagnosis.

Authors:  Emily Hurford; Anne Hawkins; Louanne Hudgins; Joanne Taylor
Journal:  J Genet Couns       Date:  2013-04-21       Impact factor: 2.537

10.  Attitudes towards non-invasive prenatal testing for aneuploidy among US adults of reproductive age.

Authors:  M Allyse; L C Sayres; T A Goodspeed; M K Cho
Journal:  J Perinatol       Date:  2014-03-06       Impact factor: 2.521

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