Literature DB >> 21673578

Storage and use of residual newborn screening blood spots: a public policy emergency.

Beth A Tarini1.   

Abstract

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Year:  2011        PMID： 21673578      PMCID： PMC3607938          DOI： 10.1097/GIM.0b013e31822176df

Source DB:  PubMed          Journal:  Genet Med        ISSN： 1098-3600            Impact factor:   8.822


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  12 in total

Review 1.  Understanding those who do not understand: a brief review of the anti-vaccine movement.

Authors:  G A Poland; R M Jacobson
Journal:  Vaccine       Date:  2001-03-21       Impact factor: 3.641

Review 2.  The use of the dried blood spot sample in epidemiological studies.

Authors:  S P Parker; W D Cubitt
Journal:  J Clin Pathol       Date:  1999-09       Impact factor: 3.411

3.  Acquiring genome-wide gene expression profiles in Guthrie card blood spots using microarrays.

Authors:  Sok Kean Khoo; Karl Dykema; Naga Manjari Vadlapatla; David LaHaie; Saul Valle; David Satterthwaite; Sara Angeline Ramirez; Janell Alee Carruthers; Peterson Todd Haak; James Howard Resau
Journal:  Pathol Int       Date:  2011-01       Impact factor: 2.534

4.  Storage and use of residual dried blood spots from state newborn screening programs.

Authors:  Richard S Olney; Cynthia A Moore; Jelili A Ojodu; Mary Lou Lindegren; W Harry Hannon
Journal:  J Pediatr       Date:  2006-05       Impact factor: 4.406

5.  Detection of cytomegalovirus DNA in dried blood spots of Minnesota infants who do not pass newborn hearing screening.

Authors:  K Yeon Choi; Lisa A Schimmenti; Anne M Jurek; Bazak Sharon; Kathy Daly; Cindy Khan; Mark McCann; Mark R Schleiss
Journal:  Pediatr Infect Dis J       Date:  2009-12       Impact factor: 2.129

6.  Guidelines for the retention, storage, and use of residual dried blood spot samples after newborn screening analysis: statement of the Council of Regional Networks for Genetic Services.

Authors:  B L Therrell; W H Hannon; K A Pass; F Lorey; C Brokopp; J Eckman; M Glass; R Heidenreich; S Kinney; S Kling; G Landenburger; F J Meaney; E R McCabe; S Panny; M Schwartz; E Shapira
Journal:  Biochem Mol Med       Date:  1996-04

7.  The fate of newborn screening blood spots.

Authors:  Wayne W Grody; R Rodney Howell
Journal:  Pediatr Res       Date:  2010-03       Impact factor: 3.756

8.  Not without my permission: parents' willingness to permit use of newborn screening samples for research.

Authors:  B A Tarini; A Goldenberg; D Singer; S J Clark; A Butchart; M M Davis
Journal:  Public Health Genomics       Date:  2009-07-11       Impact factor: 2.000

9.  Committee report: Considerations and recommendations for national guidance regarding the retention and use of residual dried blood spot specimens after newborn screening.

Authors:  Bradford L Therrell; W Harry Hannon; Donald B Bailey; Edward B Goldman; Jana Monaco; Bent Norgaard-Pedersen; Sharon F Terry; Alissa Johnson; R Rodney Howell
Journal:  Genet Med       Date:  2011-07       Impact factor: 8.822

10.  Archived unfrozen neonatal blood spots are amenable to quantitative gene expression analysis.

Authors:  Peterson T Haak; Julia V Busik; Eric J Kort; Maria Tikhonenko; Nigel Paneth; James H Resau
Journal:  Neonatology       Date:  2008-09-18       Impact factor: 4.035
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  12 in total

1.  Storage and use of Newborn Screening Blood Specimens for Research: Assessing Public Opinion in Illinois.

Authors:  Alexa Hart; Michael Petros; Joel Charrow; Claudia Nash; Catherine Wicklund
Journal:  J Genet Couns       Date:  2014-11-20       Impact factor: 2.537

2.  Public concerns regarding the storage and secondary uses of residual newborn bloodspots: an analysis of print media, legal cases, and public engagement activities.

Authors:  Shannon Cunningham; Kieran C O'Doherty; Karine Sénécal; David Secko; Denise Avard
Journal:  J Community Genet       Date:  2014-12-23

Review 3.  Retention and research use of residual newborn screening bloodspots.

Authors:  Jeffrey R Botkin; Aaron J Goldenberg; Erin Rothwell; Rebecca A Anderson; Michelle Huckaby Lewis
Journal:  Pediatrics       Date:  2012-12-03       Impact factor: 7.124

4.  23 and Me, We, and You: direct-to-consumer genetics, intellectual property, and informed consent.

Authors:  Megan Allyse
Journal:  Trends Biotechnol       Date:  2012-12-11       Impact factor: 19.536

Review 5.  Emerging issues in public health genomics.

Authors:  Dana Dolinoy; Beth Tarini; J Scott Roberts
Journal:  Annu Rev Genomics Hum Genet       Date:  2014       Impact factor: 8.929

6.  How could disclosing incidental information from whole-genome sequencing affect patient behavior?

Authors:  Kurt D Christensen; Robert C Green
Journal:  Per Med       Date:  2013-06       Impact factor: 2.512

Review 7.  Ethical issues with newborn screening in the genomics era.

Authors:  Beth A Tarini; Aaron J Goldenberg
Journal:  Annu Rev Genomics Hum Genet       Date:  2012-05-01       Impact factor: 8.929

8.  Testing an online, dynamic consent portal for large population biobank research.

Authors:  Daniel B Thiel; Jodyn Platt; Tevah Platt; Susan B King; Nicole Fisher; Robert Shelton; Sharon L R Kardia
Journal:  Public Health Genomics       Date:  2014-10-30       Impact factor: 2.000

9.  Best ethical practices for clinicians and laboratories in the provision of noninvasive prenatal testing.

Authors:  M A Allyse; L C Sayres; M Havard; J S King; H T Greely; L Hudgins; J Taylor; M E Norton; M K Cho; D Magnus; K E Ormond
Journal:  Prenat Diagn       Date:  2013-05-21       Impact factor: 3.050

10.  Parents' interest in whole-genome sequencing of newborns.

Authors:  Aaron J Goldenberg; Daniel S Dodson; Matthew M Davis; Beth A Tarini
Journal:  Genet Med       Date:  2013-06-06       Impact factor: 8.822
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