Literature DB >> 23237855

23 and Me, We, and You: direct-to-consumer genetics, intellectual property, and informed consent.

Megan Allyse1.   

Abstract

Entities:  

Mesh：

Year:  2012        PMID： 23237855      PMCID： PMC6309979          DOI： 10.1016/j.tibtech.2012.11.007

Source DB:  PubMed          Journal:  Trends Biotechnol        ISSN： 0167-7799            Impact factor:   19.536


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  7 in total

1.  Trust, The fragile foundation of contemporary biomedical research.

Authors:  N E Kass; J Sugarman; R Faden; M Schoch-Spana
Journal:  Hastings Cent Rep       Date:  1996 Sep-Oct       Impact factor: 2.683

2.  Patently unpatentable: implications of the Myriad court decision on genetic diagnostics.

Authors:  Mildred Cho
Journal:  Trends Biotechnol       Date:  2010-11       Impact factor: 19.536

3.  Informational risk, institutional review, and autonomy in the proposed changes to the common rule.

Authors:  Megan Allyse; Katrina Karkazis; Sandra Soo-Jin Lee; Sara L Tobin; Henry T Greely; Mildred K Cho; David Magnus
Journal:  IRB       Date:  2012 May-Jun

4.  Greenberg v. Miami Children 's Hospital: unjust enrichment and the patenting of human genetic material.

Authors:  Debra L Greenfield
Journal:  Ann Health Law       Date:  2006

5.  Customers or research participants? Guidance for research practices in commercialization of personal genomics.

Authors:  Sara L Tobin; Mildred K Cho; Sandra S-J Lee; David C Magnus; Megan Allyse; Kelly E Ormond; Nanibaa' A Garrison
Journal:  Genet Med       Date:  2012-06-14       Impact factor: 8.822

6.  Storage and use of residual newborn screening blood spots: a public policy emergency.

Authors:  Beth A Tarini
Journal:  Genet Med       Date:  2011-07       Impact factor: 8.822

7.  The role of race and trust in tissue/blood donation for genetic research.

Authors:  Jada Bussey-Jones; Joanne Garrett; Gail Henderson; Mairead Moloney; Connie Blumenthal; Giselle Corbie-Smith
Journal:  Genet Med       Date:  2010-02       Impact factor: 8.822
  7 in total
  3 in total

Review 1.  Privacy challenges and research opportunities for genomic data sharing.

Authors:  Luca Bonomi; Yingxiang Huang; Lucila Ohno-Machado
Journal:  Nat Genet       Date:  2020-06-29       Impact factor: 38.330

2.  Direct-to-consumer genomics on the scales of autonomy.

Authors:  Effy Vayena
Journal:  J Med Ethics       Date:  2014-05-05       Impact factor: 2.903

3.  Ethical issues in consumer genome sequencing: Use of consumers' samples and data.

Authors:  Emilia Niemiec; Heidi Carmen Howard
Journal:  Appl Transl Genom       Date:  2016-02-01
  3 in total

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