Literature DB >> 20448662

Consent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent.

Bartha Maria Knoppers1.   

Abstract

Mesh：

Year:  2010        PMID： 20448662      PMCID： PMC2892328          DOI： 10.1038/embor.2010.69

Source DB:  PubMed          Journal:  EMBO Rep        ISSN： 1469-221X            Impact factor:   8.807


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  14 in total

1.  Data storage and DNA banking for biomedical research: technical, social and ethical issues.

Authors: 
Journal:  Eur J Hum Genet       Date:  2003-12       Impact factor: 4.246

Review 2.  Genomics and policymaking: from static models to complex systems?

Authors:  Bartha Maria Knoppers
Journal:  Hum Genet       Date:  2009-02-28       Impact factor: 4.132

Review 3.  From genetic privacy to open consent.

Authors:  Jeantine E Lunshof; Ruth Chadwick; Daniel B Vorhaus; George M Church
Journal:  Nat Rev Genet       Date:  2008-05       Impact factor: 53.242

4.  Evaluation of genetic tests for susceptibility to common complex diseases: why, when and how?

Authors:  Caroline Fiona Wright; Mark Kroese
Journal:  Hum Genet       Date:  2009-11-20       Impact factor: 4.132

5.  Using lifetime risk estimates in personal genomic profiles: estimation of uncertainty.

Authors:  Quanhe Yang; W Dana Flanders; Ramal Moonesinghe; John P A Ioannidis; Idris Guessous; Muin J Khoury
Journal:  Am J Hum Genet       Date:  2009-12       Impact factor: 11.025

6.  Prepublication data sharing.

Authors:  Ewan Birney; Thomas J Hudson; Eric D Green; Chris Gunter; Sean Eddy; Jane Rogers; Jennifer R Harris; S Dusko Ehrlich; Rolf Apweiler; Christopher P Austin; Lisa Berglund; Martin Bobrow; Chas Bountra; Anthony J Brookes; Anne Cambon-Thomsen; Nigel P Carter; Rex L Chisholm; Jorge L Contreras; Robert M Cooke; William L Crosby; Ken Dewar; Richard Durbin; Stephanie O M Dyke; Joseph R Ecker; Khaled El Emam; Lars Feuk; Stacey B Gabriel; John Gallacher; William M Gelbart; Antoni Granell; Francisco Guarner; Tim Hubbard; Scott A Jackson; Jennifer L Jennings; Yann Joly; Steven M Jones; Jane Kaye; Karen L Kennedy; Bartha Maria Knoppers; Nikos C Kyrpides; William W Lowrance; Jingchu Luo; John J MacKay; Luis Martín-Rivera; W Richard McCombie; John D McPherson; Linda Miller; Webb Miller; Don Moerman; Vincent Mooser; Cynthia C Morton; James M Ostell; B F Francis Ouellette; Julian Parkhill; Parminder S Raina; Christopher Rawlings; Steven E Scherer; Stephen W Scherer; Paul N Schofield; Christoph W Sensen; Victoria C Stodden; Michael R Sussman; Toshihiro Tanaka; Janet Thornton; Tatsuhiko Tsunoda; David Valle; Eero I Vuorio; Neil M Walker; Susan Wallace; George Weinstock; William B Whitman; Kim C Worley; Cathy Wu; Jiayan Wu; Jun Yu
Journal:  Nature       Date:  2009-09-10       Impact factor: 49.962

Review 7.  Data sharing in genomics--re-shaping scientific practice.

Authors:  Jane Kaye; Catherine Heeney; Naomi Hawkins; Jantina de Vries; Paula Boddington
Journal:  Nat Rev Genet       Date:  2009-05       Impact factor: 53.242

8.  Size matters: just how big is BIG?: Quantifying realistic sample size requirements for human genome epidemiology.

Authors:  Paul R Burton; Anna L Hansell; Isabel Fortier; Teri A Manolio; Muin J Khoury; Julian Little; Paul Elliott
Journal:  Int J Epidemiol       Date:  2008-08-01       Impact factor: 7.196

9.  Public access to genome-wide data: five views on balancing research with privacy and protection.

Authors:  George Church; Catherine Heeney; Naomi Hawkins; Jantina de Vries; Paula Boddington; Jane Kaye; Martin Bobrow; Bruce Weir
Journal:  PLoS Genet       Date:  2009-10-02       Impact factor: 5.917

10.  Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.

Authors:  Nils Homer; Szabolcs Szelinger; Margot Redman; David Duggan; Waibhav Tembe; Jill Muehling; John V Pearson; Dietrich A Stephan; Stanley F Nelson; David W Craig
Journal:  PLoS Genet       Date:  2008-08-29       Impact factor: 5.917
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  10 in total

1.  Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.

Authors:  George Gaskell; Herbert Gottweis; Johannes Starkbaum; Monica M Gerber; Jacqueline Broerse; Ursula Gottweis; Abbi Hobbs; Ilpo Helén; Maria Paschou; Karoliina Snell; Alexandra Soulier
Journal:  Eur J Hum Genet       Date:  2012-06-06       Impact factor: 4.246

2.  Biobanks and the phantom public.

Authors:  Herbert Gottweis; Haidan Chen; Johannes Starkbaum
Journal:  Hum Genet       Date:  2011-07-20       Impact factor: 4.132

3.  Addressing Benefits, Risks and Consent in Next Generation Sequencing Studies.

Authors:  R Meller
Journal:  J Clin Res Bioeth       Date:  2015-12-14

4.  Samples and data accessibility in research biobanks: an explorative survey.

Authors:  Marco Capocasa; Paolo Anagnostou; Flavio D'Abramo; Giulia Matteucci; Valentina Dominici; Giovanni Destro Bisol; Fabrizio Rufo
Journal:  PeerJ       Date:  2016-02-25       Impact factor: 2.984

5.  Precision medicine driven by cancer systems biology.

Authors:  Fabian V Filipp
Journal:  Cancer Metastasis Rev       Date:  2017-03       Impact factor: 9.264

6.  Direct-to-Consumer Genetic Testing's Red Herring: "Genetic Ancestry" and Personalized Medicine.

Authors:  Mwenza Blell; M A Hunter
Journal:  Front Med (Lausanne)       Date:  2019-03-29

7.  Rethinking the ethical principles of genomic medicine services.

Authors:  Stephanie B Johnson; Ingrid Slade; Alberto Giubilini; Mackenzie Graham
Journal:  Eur J Hum Genet       Date:  2019-09-18       Impact factor: 4.246

8.  Identifiability and privacy in pluripotent stem cell research.

Authors:  Rosario Isasi; Peter W Andrews; Jay M Baltz; Annelien L Bredenoord; Paul Burton; Ing-Ming Chiu; Sara Chandros Hull; Ji-Won Jung; Andreas Kurtz; Geoffrey Lomax; Tenneille Ludwig; Michael McDonald; Clive Morris; Huck Hui Ng; Heather Rooke; Alka Sharma; Glyn N Stacey; Clare Williams; Fanyi Zeng; Bartha Maria Knoppers
Journal:  Cell Stem Cell       Date:  2014-04-03       Impact factor: 24.633

9.  'Sifting the significance from the data' - the impact of high-throughput genomic technologies on human genetics and health care.

Authors:  Angus J Clarke; David N Cooper; Michael Krawczak; Chris Tyler-Smith; Helen M Wallace; Andrew O M Wilkie; Frances Lucy Raymond; Ruth Chadwick; Nick Craddock; Ros John; John Gallacher; Mathias Chiano
Journal:  Hum Genomics       Date:  2012-08-02       Impact factor: 4.639

Review 10.  Three decades of genetic privacy: a metaphoric journey.

Authors:  Bartha Maria Knoppers; Michael J S Beauvais
Journal:  Hum Mol Genet       Date:  2021-10-01       Impact factor: 6.150
  10 in total

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