Literature DB >> 19252928

Genomics and policymaking: from static models to complex systems?

Bartha Maria Knoppers1.   

Abstract

In the 20 years following the launching of the Human Genome Project, socio-ethical and legal responses to the policy issues raised have varied across jurisdictions. There seems, however, to be a move away from the more static, classical responses that characterized the first decade to a more epigenetic and complex one. The latter policy approach better reflects the dynamic nature of the science itself.

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Year:  2009        PMID: 19252928     DOI: 10.1007/s00439-009-0644-7

Source DB:  PubMed          Journal:  Hum Genet        ISSN: 0340-6717            Impact factor:   4.132


  19 in total

1.  The SNP Consortium website: past, present and future.

Authors:  Gudmundur A Thorisson; Lincoln D Stein
Journal:  Nucleic Acids Res       Date:  2003-01-01       Impact factor: 16.971

2.  A conceptual framework for genetic policy: comparing the medical, public health, and fundamental rights models.

Authors:  L B Andrews
Journal:  Wash Univ Law Q       Date:  2001

Review 3.  The routinisation of genomics and genetics: implications for ethical practices.

Authors:  M W Foster; C D M Royal; R R Sharp
Journal:  J Med Ethics       Date:  2006-11       Impact factor: 2.903

Review 4.  A call for the creation of personalized medicine databases.

Authors:  David Gurwitz; Jeantine E Lunshof; Russ B Altman
Journal:  Nat Rev Drug Discov       Date:  2006-01       Impact factor: 84.694

5.  Science and industry. Research alone is not enough.

Authors:  Lewis M Branscomb
Journal:  Science       Date:  2008-08-15       Impact factor: 47.728

6.  Personal genomes: Misdirected precaution.

Authors:  Barbara Prainsack; Jenny Reardon; Richard Hindmarsh; Herbert Gottweis; Ursula Naue; Jeantine E Lunshof
Journal:  Nature       Date:  2008-11-06       Impact factor: 49.962

7.  DNA sampling and informed consent.

Authors:  B M Knoppers; C Laberge
Journal:  CMAJ       Date:  1989-05-01       Impact factor: 8.262

Review 8.  Informed consent for genetic research on stored tissue samples.

Authors:  E W Clayton; K K Steinberg; M J Khoury; E Thomson; L Andrews; M J Kahn; L M Kopelman; J O Weiss
Journal:  JAMA       Date:  1995-12-13       Impact factor: 56.272

9.  Systems medicine: the future of medical genomics and healthcare.

Authors:  Charles Auffray; Zhu Chen; Leroy Hood
Journal:  Genome Med       Date:  2009-01-20       Impact factor: 11.117

10.  Translating genomics into the clinic: moving to the post-Mendelian world.

Authors:  Mildred K Cho
Journal:  Genome Med       Date:  2009-01-20       Impact factor: 11.117

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  9 in total

1.  Consent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent.

Authors:  Bartha Maria Knoppers
Journal:  EMBO Rep       Date:  2010-05-07       Impact factor: 8.807

2.  Retrospective access to data: the ENGAGE consent experience.

Authors:  Anne Marie Tassé; Isabelle Budin-Ljøsne; Bartha Maria Knoppers; Jennifer R Harris
Journal:  Eur J Hum Genet       Date:  2010-03-24       Impact factor: 4.246

3.  Personalized Medicine Beyond Genomics: New Technologies, Global Health Diplomacy and Anticipatory Governance.

Authors:  V Ozdemir; D Husereau; S Hyland; S Samper; M Z Salleh
Journal:  Curr Pharmacogenomics Person Med       Date:  2009-12

4.  Nutriproteomics and Proteogenomics: Cultivating Two Novel Hybrid Fields of Personalized Medicine with Added Societal Value.

Authors:  Vural Ozdemir; Jean Armengaud; Laurette Dubé; Ramy Karam Aziz; Bartha M Knoppers
Journal:  Curr Pharmacogenomics Person Med       Date:  2010-12-01

5.  Reflexive governance in biobanking: on the value of policy led approaches and the need to recognise the limits of law.

Authors:  Graeme Laurie
Journal:  Hum Genet       Date:  2011-07-16       Impact factor: 4.132

6.  Meeting the governance challenges of next-generation biorepository research.

Authors:  Stephanie M Fullerton; Nicholas R Anderson; Greg Guzauskas; Dena Freeman; Kelly Fryer-Edwards
Journal:  Sci Transl Med       Date:  2010-01-20       Impact factor: 17.956

7.  Designing a post-genomics knowledge ecosystem to translate pharmacogenomics into public health action.

Authors:  Edward S Dove; Samer A Faraj; Eugene Kolker; Vural Ozdemir
Journal:  Genome Med       Date:  2012-11-29       Impact factor: 11.117

8.  Power to the people: a wiki-governance model for biobanks.

Authors:  Edward S Dove; Yann Joly; Bartha M Knoppers
Journal:  Genome Biol       Date:  2012-05-29       Impact factor: 13.583

Review 9.  Governing the research-care divide in clinical biobanking: Dutch perspectives.

Authors:  Martin Boeckhout; Conor M W Douglas
Journal:  Life Sci Soc Policy       Date:  2015-08-06
  9 in total

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