| Literature DB >> 20439252 |
Olga C Damman1, Ylva Ka van den Hengel, A Jeanne M van Loon, Jany Rademakers.
Abstract
BACKGROUND: On more and more websites, consumers are provided with public reports about health care. This move toward provision of more comparative information has resulted in different information types being published that often contain contradictory information.Entities:
Mesh:
Year: 2010 PMID: 20439252 PMCID: PMC2885782 DOI: 10.2196/jmir.1191
Source DB: PubMed Journal: J Med Internet Res ISSN: 1438-8871 Impact factor: 5.428
Brief descriptions of reviewed websites
| Country and Websitea | URL (Archived WebCite URL)b | Description | |
| 1. Your Hospitals | Initiative of the Consumer Participation and Information Program. The aim is to provide information to patients, caregivers, and health care professionals. The information is generated by the Department of Health, its funded agencies, and special interest groups. | ||
| 2. Hospital Report | Initiative of the HHRC (Hospital Report Research Collaborative). The aims are to increase public accountability and to improve quality of care. | ||
| 3. Sundhed | Initiative of the Danish Ministry of Health. The reporting system ‘Sundhedkvalitet’ is managed by the National Board of Health. The aim is to support consumers in their health care choices. | ||
| 4. Weisse Liste | Initiative of the Bertelsmann Stiftung in collaboration with patient associations and scientific partners. The aims are to empower consumers and to support them in their health care choices. | ||
| 5. Klinik Führer Rhein-Ruhr | Initiative of the Initiativkreis Ruhrgebiet Verwaltungs-GmbH (a collaborative of hospitals) in collaboration with scientific partners. The aim is to support consumers in their health care choices. The information is generated from the hospitals and from patient surveys. | ||
| 6. Klinikführer | Initiative of the Krankenhauszweckverband Köln, Bonn, und Region (KHVZ) (a collaborative of hospitals). The aim is to support consumers in their health care choices. The information is generated from the hospitals by the KHVZ. | ||
| 7. Hamburger | Initiative of 25 hospitals in collaboration with other partners. The aim is to support consumers in their health care choices, and to stimulate providers’ quality improvement initiatives. The information is generated from the hospitals by independent audit parties. | ||
| 8.Klinikbe- | Initiative of MedizInfo, which is an Internetportal about health and health care. The aim is to provide an independent online forum about consumers’ experiences in order to help consumers in their health care choices. A second aim is to stimulate providers’ quality improvement initiatives. The information is generated from consumers’ reports on the forum. | ||
| 9. Health Information and Quality Authority | Initiative of the Health Information and Quality Authority (part of the government’s health reform program). The aims are to monitor quality of care on a set of standards and to stimulate improvement initiatives. A third aim is to help consumers in their health care choices. | ||
| 10. kiesBeter | Initiative of the Ministry of Health and managed by the National Institute for Public Health and the Environment (RIVM) in collaboration with patient associations, health care providers, and scientific partners. The aim is to provide an independent portal for all questions from the public about health and health care. One particular aim is to support consumers in their health care choices. | ||
| 11. Independer | Initiative of Independer.nl in collaboration with other parties. The aim is to increase transparency and to support consumers in their health care choices. The information is generated by the external parties, Mediquest and Zorgweb. | ||
| 12. Zorgkiezer | Initiative of DGN Publishers (Internet company) in collaboration with health care providers and health insurance companies. The aim is to help consumers and health care professionals in their choices. The information is generated by the website editors. | ||
| 13. Zorgbelang | Initiative of Zorgbelang Nederland (association of local organizations advocating health care consumers’ interests) in collaboration with patient associations and other parties. The aim is to provide the public with information about health care. | ||
| 14. Agis Zorggids | Initiative of health insurer Agis. The aim is to inform the insured about their options in health care (concerning contracted providers) and to provide public accountability for the activities of Agis. The information is generated by external parties. | ||
| 15. Menzis | Initiative of health insurer Menzis. The aim is to support the insured in their health care choices (concerning contracted providers). The information is generated by the health purchase department and by external parties. | ||
| 16. VGZ Zorggids -Vergelijk en kies | Initiative of health insurer VGZ. The aim is to support the insured in their health care choices (concerning contracted providers). The information is generated by external parties. | ||
| 17. CZ Ziekenhuisver-gelijker | Initiative of health insurer CZ. The aim is to support the insured in their health care choices (concerning contracted providers). The information is generated by external parties. | ||
| 18. AD Ziekenhuisver-gelijker | Initiative of the daily paper Algemeen Dagblad (AD), in collaboration with health care professionals and medical associations. The aim is to inform the public about hospital performances. The information is generated by the paper: hospitals are asked to provide the information. | ||
| 19. Elsevier Beste Ziekenhuizen | Initiative of the weekly magazine, Elsevier, in collaboration with health care professionals, managers, and researchers. The aim is to inform the public about hospital performance concerning current questions in health care. | ||
| 20. Vaatpatient | Initiative of the Vereniging van Vaatpatienten (VVVP) (vascular disease patient association). The aim is to support patients in their health care choices. The information is generated by external parties. The VVVP provides quality marks based on the information. | ||
| 21. Fritt Sykehusvalg Norge | Initiative of the Norwegian Ministry of Health in collaboration with patient advisors. The aim is to empower consumers and to support consumers and health care professionals in their choices. In addition, the aim is to stimulate competition and quality improvement. | ||
| 22. Dr. Foster | Private initiative in collaboration with the Information Centre for Health and Social Care, health service organizations, and local authorities. The aims are to inform consumers and health care professionals about the options in health care, and to support consumers in their health care choices. In addition, the aim is to stimulate quality improvement initiatives. The information is generated from a number of external sources. | ||
| 23. NHS choices | Initiative of the NHS (National Health Services), in collaboration with the National Library for Health, the Information Centre for Health and Social Care, the Health care Commission and other parties. The aim is to support consumers in their decisions about health and health care. | ||
| 24. Human Fertilisation and Embryology | Initiative of the Human Fertilisation and Embryology Authority (HFEA). The aims are to inform consumers about the options in health care and to support them in their health care choices. The information is generated by the HFEA and provided by the clinics. | ||
| 25. British Association of Aesthetic Plastic | Initiative of the British Association of Aesthetic Plastic Surgeons. The aims are to inform the public about the practice and quality of plastic surgery and to support consumers in their health care choices. | ||
| 26. Private Healthcare UK | Initiative of Intuition Communication Ltd (a commercial organization). The aims are to inform consumers about options in private health care and to support them in their health care choices. | ||
| 27. Hospital Compare | Initiative of the US Department of Health and Human Services (HHS). Hospital Compare is a collaboration of the Centers for Medicare and Medicaid Services (CMS), the Department of Health and Human Services, and members of the Hospital Quality Alliance (HQA). The aim is to support consumers in their health care choices. The information is provided by the health care providers. | ||
| 28. The Leapfrog Group | Initiative of the Leapfrog Group (a collaboration of employers). The aim is to stimulate transparency and access to information in order to support health purchasers and consumers in their choices. In addition, the aim is to stimulate quality improvement initiatives. The information is provided by the health care providers. | ||
| 29. The Patient Advocate | Initiative of the Office of the Patient Advocate (OPA) in collaboration with the Department of Managed Health Care. The aim is to inform health care consumers about their rights and about the options in health care (patient empowerment). In addition, aims are to stimulate health care transparency and to support health care purchasers and consumers in their choices. The information is generated from a number of external sources. | ||
| 30. Nursing Home | Initiative of Medicare. The aims are to inform the public about nursing home options in Medicare and to support consumers in their choices. The information is generated by external parties and/or provided by the nursing homes. | ||
| 31. Home Health care Compare | Initiative of Medicare. The aims are to inform the public about home health care options in Medicare and to support consumers in their choices. The information is generated by external parties and/or provided by the home health care providers. | ||
| 32. Dialysis Facility Compare | Initiative of Medicare. The aims are to inform the public about chronic kidney disease and dialysis, about dialysis facility options in Medicare, and to support consumers in their choices. The information is generated by external parties and/or provided by the facilities. | ||
| 33. Medicare Options Compare | Initiative of Medicare. The aims are to inform the public about health plans options in Medicare and to support consumers in their choices. The information is generated by external parties and / or provided by the plans. | ||
| 34. U Compare | Initiative of About, Inc (part of the New York Times Company). The aim is to support consumers in their health care choices. The information is generated from a number of external federal sources | ||
| 35. California Nursing Home Search | Initiative of the California Health care Foundation in collaboration with the Department of Social and Behavioral Sciences of the University of California. The aim is to inform the public about the options in health care. The information is generated from a number of external state and federal sources. | ||
| 36. NCQA | Initiative of the National Committee for Quality Assurance (NCQA). The aim is to stimulate transparency and quality improvement initiatives. In addition, the aim is to support consumers in their health care decisions. The information (based on a set of standardized measures) is generated by the NCQA. | ||
| 37. US News Health | Initiative of the US News magazine (which also includes a weekly digital magazine). The aim is to inform the public about performance of hospitals (America’s best hospitals) and about health plans (America’s best health plans). The information is generated by the magazine’s editors. | ||
| 38. AHD.com | Initiative of the American Hospital Directory, Inc. (a private company). The aim is to inform subscribers about performances of hospitals. The information is generated by the company and extracted form a number of external sources. | ||
| 39. Health Care Choices | Initiative of Health Care Choices (HCC) which is a not-for-profit corporation. The aims are to inform the public about the health care system and to support health care purchasers and consumers in their choices. | ||
| 40. Quality Check | Initiative of the Joint Commission on Accreditation of Health care Organizations (JCAHQ), which is a non-for-profit organization. The aim is to support consumers in their health care choices. The information is provided by the health care providers to the Joint Commission. | ||
| 41. PHC4 | Initiative of the Pennsylvania’s Health Care Cost Containment Council. The aim is to increase transparency and competition between health care providers. The information is generated from hospitals and health plans by the Council. | ||
| 42. Aldre-guiden | Initiative of Socialstyrelsen (a governmental organization of the Ministry of Health). The aims are to inform consumers about the options in elderly care and to support their choices. In addition, the aim is to stimulate quality improvement initiatives. The information is provided by local authorities. | ||
aDescription based on website content in September 2008.
bBecause website content and presentation formats change over time, the URLs have been archived: the URLs within brackets can be used to view the information on the home page.
Figure 1Example of a typical tabular format displaying providers in rows and attributes in columns
Reviewed websites and their information characteristics
| Websitea | Health Care Sector | Types of | Classification of Integration | Drill Down Paths | Information Display | Rationale for Presentation |
| 1. Your Hospitals | Hospitals | B, C | 2 | No drill down paths, reports downloaded as PDF files | Words; numbers | - |
| 2. Hospital Report | Hospitals | B, C | 0 | No drill down paths, reports downloaded as PDF files | Numbers | - |
| 3. Sundhed | Hospitals | A, B, C | 0 (separate pages for different types of information); 2 (different types in one table by | Drill down paths to same information per provider | Numbers; stars (5); capitals | - |
| 4. Weisse Liste | Hospitals (will include nursing homes and | A, B, C | 1 | Drill down paths to more specific information per hospital | Words; numbers; horizontal bars; round icons (favorites) | D, E, F |
| 5. Klinik Führer Rhein-Ruhr | Hospitals | A, B, C | 3 | Drill down paths to more specific information per hospital | Words; numbers; thermometers | - |
| 6. Klinikführer Rheinland | Hospitals | A, B | 3 | Drill down paths to more specific information per hospital | Words; numbers; traffic lights (3 colors); horizontal bars | D, E, F |
| 7. Hamburger Krankenhaus-spiegel | Hospitals | A, B | 0 | No drill down paths | Numbers; horizontal bars | - |
| 8.Klinikbe- | Hospitals | A, C (anecdotal information) | 3 | Drill down paths to specific evaluations of patients | Numbers; stars (6); words | - |
| 9. Health Information and Quality | Hospitals | B | - | No drill down paths, reports downloaded as PDF files | Words in different colors (= symbols) | - |
| 10. kiesBeter | Hospitals, nursing homes, home care, outpatient mental health care, care for the handicapped, | A, B, C | 0 and 2 (depending on health care sector); 3 (summary information) | Drill down paths to more detailed information | Words; numbers; capital letters; stars (3); stars (5); horizontal bars (1) | D, E, F |
| 11. Independer | Hospitals, home care, primary care, physiotherapy, health plans | A, B, C | 3 | Drill down paths to more specific information per provider | Words, numbers, stars (4), stars (5), round icons (colored), coins, horizontal bars | D, E, G |
| 12. Zorgkiezer | Hospitals, health plans | A, B | 3 | Drill down paths to more specific information per provider | Words, numbers, stars (5), checkmarks | - |
| 13. Zorgbelang | Nursing homes, home care, care for the handicapped, outpatient mental health care | A (links to websites with B and C) | - | No drill down paths | Words | - |
| 14. Agis Zorggids | Contracted hospitals | A ,C | 0 | No drill down paths | Words, round icons (3) | E, F |
| 15. Menzis behandelwijzer | Contracted hospitals | A, B, C | 3 | No drill down paths | Words, numbers, stars (4), round icons (with certain degree of filling), plus icons (3) | F, G |
| 16. VGZ Zorggids -Vergelijk en kies | Contracted hospitals and other providers | A, B, C | 3 | No drill down paths | Words, numbers, squares (4) | - |
| 17. CZ Ziekenhuisver-gelijker | Contracted hospitals | A, B, C | 1 | No drill down paths | Words, numbers, stars (4), stars (5) | - |
| 18. AD Ziekenhuisver-gelijker | Hospitals | B, C | 2 | Drill down paths to more specific information per provider | Words, numbers | - |
| 19. Elsevier Beste | Hospitals | A, B | 3 | No drill down paths, reports downloaded as PDF files | Round icons (5, colored), horizontal bars | - |
| 20. Vaatpatient | Hospitals | A, B | 2 | Drill down paths to more specific information per provider | Numbers, checkmarks | - |
| 21. Fritt Sykehusvalg Norge | Hospitals | A, B, C | 1 | Drill down paths to somewhat more detailed quality information | Numbers, words, symbols (-, +, 0) | - |
| 22. Dr. Foster | Hospitals, specialized clinics, complementary practitioners | A, B | 1 (with exception of distance) | Drill down paths to more specific information per hospital; selection options to obtain more detailed information | Words,numbers, horizontal bars, stars (5), squares (3) | - |
| 23. NHS choices | Hospitals | A, B, C | 3 (summary information); 1 (detailed information) | Drill down paths to more detailed information; drill down paths to more specific information per provider | Words, numbers, round icons with words, stars (3), horizontal bars, squares (5) | - |
| 24. Human Fertilisation and Embryology | Specialized clinics | A, B | 0 | No drill down paths | Words, numbers, horizontal bars, triangles (1) | - |
| 25. British Association of Aesthetic Plastic Surgeons | Plastic surgeons | A, B | 2 | Drill down paths to more specific information per provider | Words, numbers, stars (1) | - |
| 26. Private Healthcare UK | Hospitals, doctors, GP’s, nursing homes, cosmetic surgery, dental care, health plans | A, B, C (anecdotal information) | 1 | Drill down paths to more specific information per provider | Words, numbers, ribbons (1) | D |
| 27. Hospital Compare | Hospitals | A, B, C | 3 (summary information); 2 (after selection of hospitals) | Drill down paths to hospital location on map | Words, numbers, horizontal bars (1) | - |
| 28. The Leapfrog Group | Hospitals | B | - | Drill down paths to more specific information per provider | Vertical bars (4), horizontal bars (1) | - |
| 29. The Patient Advocate | Medical groups, hospitals, health plans | B, C | 3 (summary information); 0 (detailed information) | Drill down paths to more detailed information | numbers, stars (4), horizontal bars (1), round icons with words and colors (5) | - |
| 30. Nursing Home Compare | Nursing homes | A, B | 0 (summary information); 2 (detailed information) | Drill down paths to more specific information per provider; drill down paths to provider location on map; drill down paths to visual display in bar graphs | Words, numbers, cubes in bar (4), horizontal bars | - |
| 31. Home Health care Compare | Home care | A, B | 0 (summary information); 2 (detailed information) | Drill down paths to visual display in bar graphs | Words, numbers, checkmarks, horizontal bars | - |
| 32. Dialysis Facility Compare | Specialized centra | A, B | 0 (summary information); 1 (detailed information) | Drill down paths to more specific information per provider; drill down paths to more detailed quality information; drill down paths to provider location on map | Words, numbers, horizontal bars, checkmarks | - |
| 33. Medicare Options Compare | Health plans | A, B, C | 0 (summary information); 3 (detailed information) | Drill down paths to more specific information per health plan | Words, numbers, stars (5) | - |
| 34. U Compare Healthcare | Doctors, hospitals, nursing homes, health plans, mammography centers; fertility clinics | A, B | 1 | Drill down paths to more specific information per provider | Words, numbers, vertical bars (1), plus icons (1), checkmarks | - |
| 35. California Nursing Home Search | Nursing homes, home care, hospices | A, B | 3 (summary information); 1 (detailed information) | Drill down paths to more specific information per provider | Words, numbers, stars (3) | D |
| 36. NCQA | Doctors, health plans | A, B, C | 3 (summary and detailed information) | Drill down paths to more detailed quality information; drill down paths to more specific information per provider | Words, numbers, stars (4), horizontal bars, certification symbols (1) | - |
| 37. US News Health | Hospitals, health plans | B, C | 0 (hospitals); 3 (health plans) | Drill down paths to more detailed information; drill down paths to more specific information per provider | Words, numbers, round colored icons (5), stars (5) | - |
| 38. AHD.com | Hospitals | A, (B and C only when for members) | 0 (summary and detailed information) | Drill down paths to more specific information per provider | Words, numbers, colored parts | - |
| 39. Health Care Choices | Hospitals (and doctors for pay) | A, links to B | - | No drill down paths | Words, numbers | - |
| 40. Quality Check | Hospitals, nursing homes, home care, outpatient mental health care | A, B | 1 (summary information); 0 (detailed information) | Drill down paths to more specific information per provider; drill down paths to more detailed information | Words, numbers, checkmarks, certification symbols (1), round icons (3) | - |
| 41. PHC4 | Hospitals, health plans | A, B, C | 3 (hospitals); 0 (health plans) | No drill down paths, reports downloaded as PDF files | Numbers, round icons (3) | F |
| 42. Aldre- | Care for the elderly | B | - | Drill down paths to more detailed quality information | Numbers, vertical bars | D, E, F |
aDescription based on website content in September 2008. Website content and presentation formats change over time. Therefore, the URLs have been archived (see Table 1).
bThis classification is based on Van Loon and Tolboom [20]: A = Factual information based on provider characteristics and services; B = Quality information based on performance indicators; C = Quality information based on health care user experience
c0 = no integration of different types of information (different types of information on different pages); 1 = limited integration of different types of information (different types of information can be selected and viewed on one page, but no integration in one table on one page); 2 = quite amount of integration of different types of information (different types on one page, but clearly separated from each other); 3 = high level of integration of different types of information (different types of information presented in one table, with or without action of the consumer).
dD = test(s) of different formats; E = existing scientific knowledge; F = expert opinion; G = other rationale
Figure 2Example of type 0 integration (no integration of different types of comparative information)
Figure 5Example of type 3 integration (high integration of different types of comparative information)
Figure 3Example of type 1 integration (limited integration of different types of comparative information)
Figure 4Example of type 2 integration (medium amount of integration of different types of comparative information)
Figure 6Example of drill down path to more detailed information