AIMS: To ascertain the attitudes towards the use of existing diagnostic and research samples, the setting up of a national biobank, and different types of informed consent among Finns. METHOD: A population survey of 2,400 randomly selected Finns aged 24-65 was conducted at the beginning of 2007. RESULTS: A total of 1,195 responses (50%) were received after one reminder. Of the respondents, 83% said that they had little or no knowledge of what biobanks were. Despite this, 77% regarded the setting up of a national biobank in a positive light. One third (34%) would not attach any conditions on their consent, while 42% said that it was important to regain consent when the new study contains diverging steps. One third (30%) wanted consent to be regained for every new research project, and 44% would like to decide what type of research their samples would be used for if they were included in a national biobank. One third of both men and women approved of the use of their samples in research involving private enterprises. CONCLUSIONS: In general, Finns were positive toward the setting up of a national biobank, as well as public-private partnerships, even though they considered their knowledge of biobanking to be limited. This, however, did not mean that they were indifferent to the use of their samples, but most wanted the ability to control how their samples are used.
AIMS: To ascertain the attitudes towards the use of existing diagnostic and research samples, the setting up of a national biobank, and different types of informed consent among Finns. METHOD: A population survey of 2,400 randomly selected Finns aged 24-65 was conducted at the beginning of 2007. RESULTS: A total of 1,195 responses (50%) were received after one reminder. Of the respondents, 83% said that they had little or no knowledge of what biobanks were. Despite this, 77% regarded the setting up of a national biobank in a positive light. One third (34%) would not attach any conditions on their consent, while 42% said that it was important to regain consent when the new study contains diverging steps. One third (30%) wanted consent to be regained for every new research project, and 44% would like to decide what type of research their samples would be used for if they were included in a national biobank. One third of both men and women approved of the use of their samples in research involving private enterprises. CONCLUSIONS: In general, Finns were positive toward the setting up of a national biobank, as well as public-private partnerships, even though they considered their knowledge of biobanking to be limited. This, however, did not mean that they were indifferent to the use of their samples, but most wanted the ability to control how their samples are used.
Authors: Jamie L'Heureux; Jeffrey C Murray; Elizabeth Newbury; Laura Shinkunas; Christian M Simon Journal: Biopreserv Biobank Date: 2013-05-29 Impact factor: 2.300
Authors: Altovise T Ewing; Lori A H Erby; Juli Bollinger; Eva Tetteyfio; Luisel J Ricks-Santi; David Kaufman Journal: Biopreserv Biobank Date: 2015-03-31 Impact factor: 2.300
Authors: Kristen J Wells; Mariana Arevalo; Cathy D Meade; Clement K Gwede; Gwendolyn P Quinn; John S Luque; Gloria San Miguel; Dale Watson; Rebecca Phillips; Carmen Reyes; Margarita Romo; Jim West; Paul B Jacobsen Journal: Cancer Epidemiol Biomarkers Prev Date: 2014-03 Impact factor: 4.254