Literature DB >> 22936169

Biobanks, consent and claims of consensus.

Zubin Master1, Erin Nelson, Blake Murdoch, Timothy Caulfield.   

Abstract

Mesh：

Year:  2012        PMID： 22936169     DOI： 10.1038/nmeth.2142

Source DB:  PubMed          Journal:  Nat Methods        ISSN： 1548-7091            Impact factor:   28.547


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  19 in total

1.  Archived specimens: a platform for discussion.

Authors:  D C Wertz
Journal:  Community Genet       Date:  1999

2.  The charitable trust as a model for genomic biobanks.

Authors:  David E Winickoff; Richard N Winickoff
Journal:  N Engl J Med       Date:  2003-09-18       Impact factor: 91.245

3.  Banking together. A unified model of informed consent for biobanking.

Authors:  Elena Salvaterra; Lucilla Lecchi; Silvia Giovanelli; Barbara Butti; Maria Teresa Bardella; Pier Alberto Bertazzi; Silvano Bosari; Guido Coggi; Domenico A Coviello; Faustina Lalatta; Maurizio Moggio; Mario Nosotti; Alberto Zanella; Paolo Rebulla
Journal:  EMBO Rep       Date:  2008-04       Impact factor: 8.807

4.  "Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose.

Authors:  Carlo Petrini
Journal:  Soc Sci Med       Date:  2009-10-21       Impact factor: 4.634

5.  Patients attending tertiary referral urology clinics: willingness to participate in tissue banking.

Authors:  Patricia E Fitzpatrick; Kenneth D McKenzie; Avril Beasley; John D Sheehan
Journal:  BJU Int       Date:  2009-06-02       Impact factor: 5.588

6.  Perceptions of potential donors in the Swedish public towards information and consent procedures in relation to use of human tissue samples in biobanks: a population-based study.

Authors:  Asa Kettis-Lindblad; Lena Ring; Eva Viberth; Mats G Hansson
Journal:  Scand J Public Health       Date:  2007       Impact factor: 3.021

7.  Public opinion about the importance of privacy in biobank research.

Authors:  David J Kaufman; Juli Murphy-Bollinger; Joan Scott; Kathy L Hudson
Journal:  Am J Hum Genet       Date:  2009-10-29       Impact factor: 11.025

8.  Opt-out plus, the patients' choice: preferences of cancer patients concerning information and consent regimen for future research with biological samples archived in the context of treatment.

Authors:  E Vermeulen; M K Schmidt; N K Aaronson; M Kuenen; P van der Valk; C Sietses; P van den Tol; F E van Leeuwen
Journal:  J Clin Pathol       Date:  2008-11-18       Impact factor: 3.411

9.  Qualitative thematic analysis of consent forms used in cancer genome sequencing.

Authors:  Clarissa Allen; William D Foulkes
Journal:  BMC Med Ethics       Date:  2011-07-19       Impact factor: 2.652

10.  Active choice but not too active: public perspectives on biobank consent models.

Authors:  Christian M Simon; Jamie L'heureux; Jeffrey C Murray; Patricia Winokur; George Weiner; Elizabeth Newbury; Laura Shinkunas; Bridget Zimmerman
Journal:  Genet Med       Date:  2011-09       Impact factor: 8.822
View more
  39 in total

1.  Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach.

Authors:  Menno Mostert; Annelien L Bredenoord; Monique C I H Biesaart; Johannes J M van Delden
Journal:  Eur J Hum Genet       Date:  2015-11-11       Impact factor: 4.246

2.  Awareness of risks of biobank research may affect public attitudes toward consent.

Authors:  Sean Nurmsoo; Molly Hayes
Journal:  J Community Genet       Date:  2015-02-03

3.  [Biobanking. Sustainable use of biological resources on the example of the Biobank Graz].

Authors:  T Macheiner; B Huppertz; K Sargsyan
Journal:  Pathologe       Date:  2013-07       Impact factor: 1.011

4.  Scientists' perspectives on consent in the context of biobanking research.

Authors:  Zubin Master; Lisa Campo-Engelstein; Timothy Caulfield
Journal:  Eur J Hum Genet       Date:  2014-07-30       Impact factor: 4.246

5.  Industry involvement in publicly funded biobanks.

Authors:  Timothy Caulfield; Pascal Borry; Herbert Gottweis
Journal:  Nat Rev Genet       Date:  2014-04       Impact factor: 53.242

6.  Patient/family views on data sharing in rare diseases: study in the European LeukoTreat project.

Authors:  Sylviane Darquy; Grégoire Moutel; Anne-Sophie Lapointe; Diane D'Audiffret; Julie Champagnat; Samia Guerroui; Marie-Louise Vendeville; Odile Boespflug-Tanguy; Nathalie Duchange
Journal:  Eur J Hum Genet       Date:  2015-06-17       Impact factor: 4.246

7.  Broad Consent for Research on Biospecimens: The Views of Actual Donors at Four U.S. Medical Centers.

Authors:  Teddy D Warner; Carol J Weil; Christopher Andry; Howard B Degenholtz; Lisa Parker; Latarsha J Carithers; Michelle Feige; David Wendler; Rebecca D Pentz
Journal:  J Empir Res Hum Res Ethics       Date:  2018-02-01       Impact factor: 1.742

8.  Researchers' Perspectives on Informed Consent and Ethical Review of Biobank Research in South Africa: A Cross-Sectional Study.

Authors:  Erisa Mwaka; Lyn Horn
Journal:  J Empir Res Hum Res Ethics       Date:  2019-08-05       Impact factor: 1.742

9.  Incorporating exclusion clauses into informed consent for biobanking.

Authors:  Zubin Master; David B Resnik
Journal:  Camb Q Healthc Ethics       Date:  2013-04       Impact factor: 1.284

10.  Broad consent in practice: lessons learned from a hospital-based biobank for prospective research on genomic and medical data.

Authors:  Gaia Barazzetti; Francesca Bosisio; Daria Koutaissoff; Brenda Spencer
Journal:  Eur J Hum Genet       Date:  2020-02-21       Impact factor: 4.246
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