Literature DB >> 22005975

Connecting the public with biobank research: reciprocity matters.

Herbert Gottweis1, George Gaskell, Johannes Starkbaum.   

Abstract

Mesh：

Year:  2011        PMID： 22005975     DOI： 10.1038/nrg3083

Source DB:  PubMed          Journal:  Nat Rev Genet        ISSN： 1471-0056            Impact factor:   53.242


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  9 in total

1.  Attitudes toward biotechnology in the European Union.

Authors:  Rafael Pardo; Cees Midden; Jon D Miller
Journal:  J Biotechnol       Date:  2002-09-11       Impact factor: 3.307

2.  Community engagement in genetic research: results of the first public consultation for the Quebec CARTaGENE project.

Authors:  Béatrice Godard; Jennifer Marshall; Claude Laberge
Journal:  Community Genet       Date:  2007

3.  Donors perceptions of consent to and feedback from biobank research: time to acknowledge diversity?

Authors:  K Hoeyer
Journal:  Public Health Genomics       Date:  2009-11-26       Impact factor: 2.000

4.  Biobanks need publicity.

Authors:  George Gaskell; Herbert Gottweis
Journal:  Nature       Date:  2011-03-10       Impact factor: 49.962

5.  Public and biobank participant attitudes toward genetic research participation and data sharing.

Authors:  A A Lemke; W A Wolf; J Hebert-Beirne; M E Smith
Journal:  Public Health Genomics       Date:  2010-01-15       Impact factor: 2.000

6.  Communication of biobanks' research results: what do (potential) participants want?

Authors:  Tineke M Meulenkamp; Sjef K Gevers; Jasper A Bovenberg; Gerard H Koppelman; Astrid van Hylckama Vlieg; Ellen M A Smets
Journal:  Am J Med Genet A       Date:  2010-10       Impact factor: 2.802

7.  Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns.

Authors:  Aaro Tupasela; Sinikka Sihvo; Karolna Snell; Pa Jallinoja; Arja R Aro; Elina Hemminki
Journal:  Scand J Public Health       Date:  2009-11-11       Impact factor: 3.021

8.  Public opinion about the importance of privacy in biobank research.

Authors:  David J Kaufman; Juli Murphy-Bollinger; Joan Scott; Kathy L Hudson
Journal:  Am J Hum Genet       Date:  2009-10-29       Impact factor: 11.025

9.  Research on stored biological samples: views of African American and White American cancer patients.

Authors:  Rebecca D Pentz; Laurent Billot; David Wendler
Journal:  Am J Med Genet A       Date:  2006-04-01       Impact factor: 2.802
  9 in total
  19 in total

Review 1.  Development and progress of Ireland's biobank network: Ethical, legal, and social implications (ELSI), standardized documentation, sample and data release, and international perspective.

Authors:  Blanaid Mee; Eoin Gaffney; Sharon A Glynn; Simona Donatello; Paul Carroll; Elizabeth Connolly; Sarah Mc Garrigle; Terry Boyle; Delia Flannery; Francis J Sullivan; Paul McCormick; Mairead Griffin; Cian Muldoon; Joanna Fay; Tony O'Grady; Elaine Kay; Joe Eustace; Louise Burke; Asim A Sheikh; Stephen Finn; Richard Flavin; Francis J Giles
Journal:  Biopreserv Biobank       Date:  2013-02       Impact factor: 2.300

2.  Factors associated with willingness to participate in biospecimen research among Chinese Americans.

Authors:  Wanzhen Gao; Grace X Ma; Yin Tan; Carolyn Fang; JoEllen Weaver; Ming Jin; Philip Lai
Journal:  Biopreserv Biobank       Date:  2014-04       Impact factor: 2.300

Review 3.  Public-private relationships in biobanking: a still underestimated key component of open innovation.

Authors:  Paul Hofman; Christian Bréchot; Kurt Zatloukal; Georges Dagher; Bruno Clément
Journal:  Virchows Arch       Date:  2013-12-14       Impact factor: 4.064

4.  The MICHR Genomic DNA BioLibrary: An Empirical Study of the Ethics of Biorepository Development.

Authors:  Blake J Roessler; Nicholas H Steneck; Lisa Connally
Journal:  J Empir Res Hum Res Ethics       Date:  2015-01-06       Impact factor: 1.742

5.  'Born in Michigan? You're in the biobank': engaging population biobank participants through Facebook advertisements.

Authors:  J E Platt; T Platt; D Thiel; S L R Kardia
Journal:  Public Health Genomics       Date:  2013-06-21       Impact factor: 2.000

6.  Using Mixed Methods to Examine Perceptions and Willingness to Participate in Bio-specimen Banking in Diverse Asian Americans.

Authors:  Grace X Ma; Brenda F Seals; Yin Tan; Richard Lee; Jamil Toubbeh
Journal:  J Community Med Health Educ       Date:  2014-04-30

7.  Power to the people: a wiki-governance model for biobanks.

Authors:  Edward S Dove; Yann Joly; Bartha M Knoppers
Journal:  Genome Biol       Date:  2012-05-29       Impact factor: 13.583

8.  Public's attitudes on participation in a biobank for research: an Italian survey.

Authors:  Corinna Porteri; Patrizio Pasqualetti; Elena Togni; Michael Parker
Journal:  BMC Med Ethics       Date:  2014-11-26       Impact factor: 2.652

9.  'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research.

Authors:  Pauline McCormack; Anna Kole; Sabina Gainotti; Deborah Mascalzoni; Caron Molster; Hanns Lochmüller; Simon Woods
Journal:  Eur J Hum Genet       Date:  2016-04-06       Impact factor: 4.246

10.  The evolution of withdrawal: negotiating research relationships in biobanking.

Authors:  Karen Melham; Linda Briceno Moraia; Colin Mitchell; Michael Morrison; Harriet Teare; Jane Kaye
Journal:  Life Sci Soc Policy       Date:  2014-10-05
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