Literature DB >> 19736695

Patient satisfaction with cancer genetic counseling: a psychometric analysis of the Genetic Counseling Satisfaction Scale.

Tiffani A DeMarco1, Beth N Peshkin, Bryn D Mars, Kenneth P Tercyak.   

Abstract

Satisfaction is an important patient reported outcome of genetic counseling, as it is one of the elements used by professional organizations and healthcare accrediting bodies to determine the quality of professional work. However, empirical research on patient satisfaction with genetic counseling has been limited, partly due to the lack of standardized measures available to assess this construct. The purpose of this study was to conduct a psychometric analysis of a new satisfaction measure, the Genetic Counseling Satisfaction Scale (GCSS), within a sample of women participating in a no-cost cancer genetic counseling and testing program. The sample consisted of 61 women undergoing counseling and testing for hereditary breast-ovarian cancer risk (BRCA1/2 testing) who completed the GCSS following pretest counseling. The results suggest that the GCSS was reliable (Cronbach's coefficient alpha = 0.90) and that participants were highly satisfied with the care they received. In addition, there were no differences in satisfaction between cancer genetic counseling and prenatal counseling participants (based on preexisting norms), and satisfaction did not vary by sociodemographic characteristics. Implications and recommendations are discussed.

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Year:  2004        PMID: 19736695      PMCID: PMC3551590          DOI: 10.1023/b:jogc.0000035523.96133.bc

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  26 in total

Review 1.  Methods for incorporating patients' views in health care.

Authors:  Michel Wensing; Glyn Elwyn
Journal:  BMJ       Date:  2003-04-19

2.  Coping style, psychological distress, risk perception, and satisfaction in subjects attending genetic counselling for hereditary cancer.

Authors:  K Nordin; A Lidén; M Hansson; R Rosenquist; G Berglund
Journal:  J Med Genet       Date:  2002-09       Impact factor: 6.318

3.  Emerging quality improvement measures in genetic counseling.

Authors:  D H Lea
Journal:  J Genet Couns       Date:  1996-09       Impact factor: 2.537

4.  Genetic counselling: information given, recall and satisfaction.

Authors:  S Michie; V McDonald; T M Marteau
Journal:  Patient Educ Couns       Date:  1997 Sep-Oct

5.  Recommendations for Telephone Counseling.

Authors:  K E Ormond; J Haun; L Cook; D Duquette; C Ludowese; A L Matthews
Journal:  J Genet Couns       Date:  2000-02       Impact factor: 2.537

Review 6.  Quality of care and patient satisfaction: a review of measuring instruments.

Authors:  C van Campen; H Sixma; R D Friele; J J Kerssens; L Peters
Journal:  Med Care Res Rev       Date:  1995-03       Impact factor: 3.929

7.  Development of an Interactive Decision Aid for Female BRCA1/BRCA2 Carriers.

Authors:  Elizabeth M Kaufman; Beth N Peshkin; William F Lawrence; Rebecca Shelby; Claudine Isaacs; Karen Brown; Jessica Rispoli; Suzanne O'Neill; Karen Hurley; Tiffani DeMarco; Barbara Brogan; Sherry Grumet; Lina Jandorf; Kristine McKenna; Heiddis Valdimarsdottir; Marc D Schwartz
Journal:  J Genet Couns       Date:  2003-04       Impact factor: 2.537

8.  Across the Spectrum: Case Studies in Genetic Counseling for Breast and Ovarian Cancer.

Authors:  T A DeMarco; B N Peshkin; B M Brogan
Journal:  J Genet Couns       Date:  2001-10       Impact factor: 2.537

9.  An interactive computer program can effectively educate patients about genetic testing for breast cancer susceptibility.

Authors:  M J Green; B B Biesecker; A M McInerney; D Mauger; N Fost
Journal:  Am J Med Genet       Date:  2001-09-15

10.  The use of videotaped information in cancer genetic counselling: a randomized evaluation study.

Authors:  A Cull; H Miller; T Porterfield; J Mackay; E D Anderson; C M Steel; R A Elton
Journal:  Br J Cancer       Date:  1998-03       Impact factor: 7.640

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  40 in total

1.  Genetic counseling as a tool for type 2 diabetes prevention: a genetic counseling framework for common polygenetic disorders.

Authors:  Jessica L Waxler; Kelsey E O'Brien; Linda M Delahanty; James B Meigs; Jose C Florez; Elyse R Park; Barbara R Pober; Richard W Grant
Journal:  J Genet Couns       Date:  2012-10       Impact factor: 2.537

2.  Elucidating Genetic Counseling Outcomes from the Perspective of Genetic Counselors.

Authors:  Heather A Zierhut; K M Shannon; D L Cragun; S A Cohen
Journal:  J Genet Couns       Date:  2016-01-19       Impact factor: 2.537

3.  Evaluation of telephone genetic counselling to facilitate germline BRCA1/2 testing in women with high-grade serous ovarian cancer.

Authors:  Erin Tutty; Lara Petelin; Joanne McKinley; Mary-Anne Young; Bettina Meiser; Victoria M Rasmussen; Rowan Forbes Shepherd; Paul A James; Laura E Forrest
Journal:  Eur J Hum Genet       Date:  2019-04-08       Impact factor: 4.246

4.  Randomized Trial of Telegenetics vs. In-Person Cancer Genetic Counseling: Cost, Patient Satisfaction and Attendance.

Authors:  Adam H Buchanan; Santanu K Datta; Celette Sugg Skinner; Gail P Hollowell; Henry F Beresford; Thomas Freeland; Benjamin Rogers; John Boling; P Kelly Marcom; Martha B Adams
Journal:  J Genet Couns       Date:  2015-04-03       Impact factor: 2.537

5.  Recommendation recall and satisfaction after attending breast/ovarian cancer risk counseling.

Authors:  Sharon L Bober; Lizbeth A Hoke; Rosemary B Duda; Nadine M Tung
Journal:  J Genet Couns       Date:  2007-08-04       Impact factor: 2.537

6.  Assessment of psychosocial outcomes in genetic counseling research: an overview of available measurement scales.

Authors:  Nadine A Kasparian; Claire E Wakefield; Bettina Meiser
Journal:  J Genet Couns       Date:  2007-08-13       Impact factor: 2.537

7.  Effects of a genetic counseling model on mothers of children with down syndrome: a Brazilian pilot study.

Authors:  Marcos Ricardo Datti Micheletto; Nelson Iguimar Valerio; Agnes Cristina Fett-Conte
Journal:  J Genet Couns       Date:  2013-06-23       Impact factor: 2.537

8.  Educational and Psychosocial Support Needs in Lynch Syndrome: Implementation and Assessment of an Educational Workshop and Support Group.

Authors:  Marina J Corines; Jada G Hamilton; Emily Glogowski; Chris A Anrig; Rachael Goldberg; Kate Niehaus; Erin Salo-Mullen; Megan Harlan; Margaret R Sheehan; Magan Trottier; Asad Ahsraf; Christina Tran; Lauren Jacobs; Rohini Rau-Murthy; Anne G Lincoln; Mark E Robson; Jose G Guillem; Arnold J Markowitz; Kenneth Offit; Zsofia K Stadler
Journal:  J Genet Couns       Date:  2016-10-12       Impact factor: 2.537

9.  Women's satisfaction with genetic counseling for hereditary breast-ovarian cancer: psychological aspects.

Authors:  Kenneth P Tercyak; Tiffani A Demarco; Bryn D Mars; Beth N Peshkin
Journal:  Am J Med Genet A       Date:  2004-11-15       Impact factor: 2.802

10.  An assessment of genetic counseling services for individuals with multiple sclerosis.

Authors:  Stephanie Skinner; Colleen Guimond; Rachel Butler; Emily Dwosh; Anthony L Traboulsee; A Dessa Sadovnick
Journal:  J Genet Couns       Date:  2014-07-05       Impact factor: 2.537

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