Literature DB >> 19545972

Prevalence and correlates of mothers and fathers attending pretest cancer genetic counseling together.

Tiffani A Demarco1, Rachel H Nusbaum, Beth N Peshkin, Andrea F Patenaude, Katherine A Schneider, Judy E Garber, Heiddis B Valdimarsdottir, Kenneth P Tercyak.   

Abstract

OBJECTIVE: To determine the prevalence of fathers' attendance at pretest cancer genetic counseling sessions with mothers undergoing BRCA1/2 genetic testing for hereditary breast/ovarian cancer (HBOC) risk, and to identify psychosocial and other correlates of fathers' attendance.
METHODS: One hundred and twenty-one fathers of minor-age children who were spouses/partners of women (mothers) undergoing such counseling and testing were recruited, completed a behavioral self-report survey, and provided data about their sociodemographic backgrounds, father-child cancer communication histories, parenting relationship quality, and information-seeking and perceived knowledge.
RESULTS: A total of 27.3% of fathers attended pretest cancer genetic counseling with mothers. Compared to fathers who did not attend pretest cancer genetic counseling, those who did had stronger parenting alliances with mothers, were more likely to have sought out information about BRCA1/2 testing, and felt more informed about testing. In an adjusted logistic regression model of session attendance, the strength of the parenting alliance was associated with a 6% increase in the likelihood of attending genetic counseling (odds ratio [OR]=1.06, 95% confidence interval [CI]=1.01, 1.12, p<.05) and greater perceived knowledge about BRCA1/2 testing was associated with a four-fold increase in the likelihood of session attendance (OR=4.03, CI=1.77, 9.37, p<.001).
CONCLUSION: One in three fathers attend pretest cancer genetic counseling with mothers undergoing BRCA1/2 testing; those who do have closer parenting relationships and are more informed about BRCA1/2 testing. PRACTICE IMPLICATIONS: When possible, providers should discuss mothers including fathers in cancer genetic counseling sessions as this may affect outcomes of HBOC genetic counseling and testing.

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Year:  2009        PMID: 19545972      PMCID: PMC2787643          DOI: 10.1016/j.pec.2009.05.013

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  36 in total

Review 1.  Parenthood experiences during the child's first year: literature review.

Authors:  Kerstin Nyström; Kerstin Ohrling
Journal:  J Adv Nurs       Date:  2004-05       Impact factor: 3.187

2.  Family system characteristics and psychological adjustment to cancer susceptibility genetic testing: a prospective study.

Authors:  I van Oostrom; H Meijers-Heijboer; H J Duivenvoorden; A H J T Bröcker-Vriends; C J van Asperen; R H Sijmons; C Seynaeve; A R van Gool; J G M Klijn; A Tibben
Journal:  Clin Genet       Date:  2007-01       Impact factor: 4.438

3.  Comparison of individuals opting for BRCA1/2 or HNPCC genetic susceptibility testing with regard to coping, illness perceptions, illness experiences, family system characteristics and hereditary cancer distress.

Authors:  Iris van Oostrom; Hanne Meijers-Heijboer; Hugo J Duivenvoorden; Annette H J T Bröcker-Vriends; Christi J van Asperen; Rolf H Sijmons; Caroline Seynaeve; Arthur R Van Gool; Jan G M Klijn; Aad Tibben
Journal:  Patient Educ Couns       Date:  2006-07-26

4.  Effects of spouses on distress experienced by BRCA1 mutation carriers over time.

Authors:  Jean E Wylie; Ken R Smith; Jeffrey R Botkin
Journal:  Am J Med Genet C Semin Med Genet       Date:  2003-05-15       Impact factor: 3.908

5.  Genetic counseling for BRCA1/BRCA2 testing.

Authors:  K A Schneider
Journal:  Genet Test       Date:  1997

6.  Associations between relationship support and psychological reactions of participants and partners to BRCA1 and BRCA2 testing in a clinic-based sample.

Authors:  Sharon Manne; Janet Audrain; Marc Schwartz; David Main; Clinton Finch; Caryn Lerman
Journal:  Ann Behav Med       Date:  2004-12

7.  Learning of your parent's BRCA mutation during adolescence or early adulthood: a study of offspring experiences.

Authors:  Angela R Bradbury; Linda Patrick-Miller; Kimberly Pawlowski; Comfort N Ibe; Shelly A Cummings; Fay Hlubocky; Olufunmilayo I Olopade; Christopher K Daugherty
Journal:  Psychooncology       Date:  2009-02       Impact factor: 3.894

8.  American Society of Clinical Oncology policy statement update: genetic testing for cancer susceptibility.

Authors: 
Journal:  J Clin Oncol       Date:  2003-04-11       Impact factor: 44.544

9.  The phases of disclosing BRCA1/2 genetic information to offspring.

Authors:  Susan Clarke; Kate Butler; Mary Jane Esplen
Journal:  Psychooncology       Date:  2008-08       Impact factor: 3.894

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  4 in total

1.  Distress and the parenting dynamic among BRCA1/2 tested mothers and their partners.

Authors:  Darren Mays; Tiffani A DeMarco; George Luta; Beth N Peshkin; Andrea F Patenaude; Katherine A Schneider; Judy E Garber; Kenneth P Tercyak
Journal:  Health Psychol       Date:  2013-06-24       Impact factor: 4.267

2.  Parenting through genetic uncertainty: themes in the disclosure of breast cancer risk information to children.

Authors:  McKane E Sharff; Tiffani A DeMarco; Darren Mays; Beth N Peshkin; Heiddis B Valdimarsdottir; Judy E Garber; Katherine A Schneider; Andrea F Patenaude; Kenneth P Tercyak
Journal:  Genet Test Mol Biomarkers       Date:  2011-11-15

3.  Modeling the dyadic effects of parenting, stress, and coping on parent-child communication in families tested for hereditary breast-ovarian cancer risk.

Authors:  Jada G Hamilton; Darren Mays; Tiffani DeMarco; Kenneth P Tercyak
Journal:  Fam Cancer       Date:  2016-10       Impact factor: 2.375

4.  Results of an online community needs assessment for psychoeducational interventions among partners of hereditary breast cancer previvors and survivors.

Authors:  Kenneth P Tercyak; Darren Mays; Tiffani A DeMarco; McKane E Sharff; Susan Friedman
Journal:  J Med Internet Res       Date:  2012-01-18       Impact factor: 5.428

  4 in total

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