Literature DB >> 18581934

Ethics, evidence, and cost in newborn screening.

Mary Ann Baily1, Thomas H Murray.   

Abstract

When deciding what disorders to screen newborns for, we should be guided by evidence of real effectiveness, take opportunity cost into account, distribute costs and benefits fairly, and respect human rights. Current newborn screening policy does not meet these requirements.

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Mesh：

Year:  2008        PMID： 18581934     DOI： 10.1353/hcr.0.0009

Source DB:  PubMed          Journal:  Hastings Cent Rep        ISSN： 0093-0334            Impact factor:   2.683


  16 in total

Review 1.  Potential Uses and Inherent Challenges of Using Genome-Scale Sequencing to Augment Current Newborn Screening.

Authors:  Jonathan S Berg; Cynthia M Powell
Journal:  Cold Spring Harb Perspect Med       Date:  2015-10-05       Impact factor: 6.915

2.  The Impact of the Affordable Care Act on Funding for Newborn Screening Services.

Authors:  Julia F Costich; Andrea L Durst
Journal:  Public Health Rep       Date:  2016 Jan-Feb       Impact factor: 2.792

Review 3.  Challenges of translating genetic tests into clinical and public health practice.

Authors:  Wolf H Rogowski; Scott D Grosse; Muin J Khoury
Journal:  Nat Rev Genet       Date:  2009-07       Impact factor: 53.242

Review 4.  Genetic screening.

Authors:  Wylie Burke; Beth Tarini; Nancy A Press; James P Evans
Journal:  Epidemiol Rev       Date:  2011-06-27       Impact factor: 6.222

5.  Newborn screening and cascade testing for FMR1 mutations.

Authors:  Page L Sorensen; Louise W Gane; Mark Yarborough; Randi J Hagerman; Flora Tassone
Journal:  Am J Med Genet A       Date:  2012-12-13       Impact factor: 2.802

Review 6.  Newborn screening and renal disease: where we have been; where we are now; where we are going.

Authors:  J Lawrence Merritt; David Askenazi; Si Houn Hahn
Journal:  Pediatr Nephrol       Date:  2011-09-27       Impact factor: 3.714

7.  Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies.

Authors:  Josephine Johnston; John D Lantos; Aaron Goldenberg; Flavia Chen; Erik Parens; Barbara A Koenig
Journal:  Hastings Cent Rep       Date:  2018-07       Impact factor: 2.683

8.  Parental attitudes toward ethical and social issues surrounding the expansion of newborn screening using new technologies.

Authors:  L E Hasegawa; K A Fergus; N Ojeda; S M Au
Journal:  Public Health Genomics       Date:  2010-07-30       Impact factor: 2.000

9.  CHALLENGES FOR IMPLEMENTING A PTSD PREVENTIVE GENOMIC SEQUENCING PROGRAM IN THE U.S. MILITARY.

Authors:  Gabriel Lázaro-Muñoz; Eric T Juengst
Journal:  Case West Reserve J Int Law       Date:  2015

10.  Pediatricians' attitudes about screening newborns for infectious diseases.

Authors:  Hanna Schittek; Joy Koopmans; Lainie Friedman Ross
Journal:  Matern Child Health J       Date:  2008-12-09
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