Literature DB >> 12748438

Where there's a web, there's a way: commercial genetic testing and the Internet.

Bryn Williams-Jones1.   

Abstract

The Internet has become a "global marketplace", enabling consumers to purchase health care products and services, including genetic testing, through a variety of national and international sources. A web search for commercial (for-profit) genetic testing companies found 12 with a web presence that were offering adult genetic susceptibility testing, of which 3 offered direct-to-consumer access. In this paper, Canada--with its educated population and universal health care system--will serve as a case study for illustrating the social, ethical and policy issues (e.g., information privacy, just access to health care, product safety, and access to unbiased health information) arising with Internet-based access to commercial genetic testing. Health professionals, policy makers and consumers in all developed nations will be faced with complex technical, social and ethical issues, but without further discussion it will not be possible to determine how best to manage and maximise the benefits of this increased accessibility and choice, while minimising the associated personal and social costs. Copyright 2003 S. Karger AG, Basel

Keywords:  Genetics and Reproduction

Mesh:

Year:  2003        PMID: 12748438     DOI: 10.1159/000069538

Source DB:  PubMed          Journal:  Community Genet        ISSN: 1422-2795


  19 in total

1.  Direct-to-consumer sales of genetic services on the Internet.

Authors:  Sarah E Gollust; Benjamin S Wilfond; Sara Chandros Hull
Journal:  Genet Med       Date:  2003 Jul-Aug       Impact factor: 8.822

Review 2.  Genetics and public health--evolution, or revolution?

Authors:  Jane L Halliday; Veronica R Collins; Mary Anne Aitken; Martin P M Richards; Craig A Olsson
Journal:  J Epidemiol Community Health       Date:  2004-11       Impact factor: 3.710

3.  Are the kids really all right? Direct-to-consumer genetic testing in children: are company policies clashing with professional norms?

Authors:  Heidi Carmen Howard; Denise Avard; Pascal Borry
Journal:  Eur J Hum Genet       Date:  2011-06-01       Impact factor: 4.246

Review 4.  Ethical issues of predictive genetic testing for diabetes.

Authors:  Susanne B Haga
Journal:  J Diabetes Sci Technol       Date:  2009-07-01

5.  Primary care physicians' awareness, experience and opinions of direct-to-consumer genetic testing.

Authors:  Karen P Powell; Whitney A Cogswell; Carol A Christianson; Gaurav Dave; Amit Verma; Sonja Eubanks; Vincent C Henrich
Journal:  J Genet Couns       Date:  2011-07-16       Impact factor: 2.537

6.  Update on Direct-to-Consumer Marketing in Oncology.

Authors:  Stacy W Gray; Gregory A Abel
Journal:  J Oncol Pract       Date:  2012-02-21       Impact factor: 3.840

7.  The utility and predictive value of combinations of low penetrance genes for screening and risk prediction of colorectal cancer.

Authors:  Steven J Hawken; Celia M T Greenwood; Thomas J Hudson; Rafal Kustra; John McLaughlin; Quanhe Yang; Brent W Zanke; Julian Little
Journal:  Hum Genet       Date:  2010-05-01       Impact factor: 4.132

Review 8.  Biomedical informatics and translational medicine.

Authors:  Indra Neil Sarkar
Journal:  J Transl Med       Date:  2010-02-26       Impact factor: 5.531

9.  Attitudes of healthcare professionals and parents regarding genetic testing for violent traits in childhood.

Authors:  E Campbell; L F Ross
Journal:  J Med Ethics       Date:  2004-12       Impact factor: 2.903

Review 10.  Genetic susceptibility testing for neurodegenerative diseases: ethical and practice issues.

Authors:  J Scott Roberts; Wendy R Uhlmann
Journal:  Prog Neurobiol       Date:  2013-04-09       Impact factor: 11.685

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