Literature DB >> 10732878

Genetic ignorance, moral obligations and social duties.

T Takala1, M Häyry.   

Abstract

In a contribution to The Journal of Medicine and Philosophy, Professor Rosamond Rhodes argues that individuals sometimes have an obligation to know about their genetic disorders, because this is required by their status as autonomous persons. Her analysis, which is based on Kant's concept of autonomy and Aristotle's notion of friendship, is extended here to consequentialist concerns. These are of paramount importance if, as we believe and Professor Rhodes herself implies, the Kantian and Aristotelian doctrines can be helpful only in the sphere of private morality, not in the public realm. Better tools for assessing the right to genetic ignorance as an issue of public policy can, we contend, be found in Mill's ideas concerning liberty and the prevention of harm. Our own conclusion, based on the Millian way of thinking, is that individuals probably do have the right to remain in ignorance in the cases Professor Rhodes presents as examples of a duty to know.

Entities:  

Keywords:  Analytical Approach; Aristotle; Genetics and Reproduction; Professional Patient Relationship

Mesh:

Year:  2000        PMID: 10732878     DOI: 10.1076/0360-5310(200002)25:1;1-V;FT107

Source DB:  PubMed          Journal:  J Med Philos        ISSN: 0360-5310


  14 in total

Review 1.  Genetic information, rights, and autonomy.

Authors:  M Häyry; T Takala
Journal:  Theor Med Bioeth       Date:  2001-09

Review 2.  The tension between self governance and absolute inner worth in Kant's moral philosophy.

Authors:  M Häyry
Journal:  J Med Ethics       Date:  2005-11       Impact factor: 2.903

3.  Questioning the consensus: managing carrier status results generated by newborn screening.

Authors:  Fiona Alice Miller; Jason Scott Robert; Robin Z Hayeems
Journal:  Am J Public Health       Date:  2008-12-04       Impact factor: 9.308

Review 4.  Just ignore it? Parents and genetic information.

Authors:  S Vehmas
Journal:  Theor Med Bioeth       Date:  2001-09

Review 5.  Antenatal genetic testing and the right to remain in ignorance.

Authors:  R Bennett
Journal:  Theor Med Bioeth       Date:  2001-09

6.  Communicating genetic information in the family: enriching the debate through the notion of integrity.

Authors:  Paula Boddington; Maggie Gregory
Journal:  Med Health Care Philos       Date:  2008-04-09

Review 7.  Reconsidering reproductive benefit through newborn screening: a systematic review of guidelines on preconception, prenatal and newborn screening.

Authors:  Yvonne Bombard; Fiona A Miller; Robin Z Hayeems; Denise Avard; Bartha M Knoppers
Journal:  Eur J Hum Genet       Date:  2010-03-03       Impact factor: 4.246

8.  Different concepts and models of information for family-relevant genetic findings: comparison and ethical analysis.

Authors:  Christian Lenk; Debora Frommeld
Journal:  Med Health Care Philos       Date:  2015-08

9.  The value of autonomy in medical ethics.

Authors:  Jukka Varelius
Journal:  Med Health Care Philos       Date:  2006-10-11

10.  Diversity and uniformity in genetic responsibility: moral attitudes of patients, relatives and lay people in Germany and Israel.

Authors:  Aviad E Raz; Silke Schicktanz
Journal:  Med Health Care Philos       Date:  2009-07-24
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