Literature DB >> 2144943

Reactions of mothers and medical professionals to a film about Down syndrome.

W C Cooley1, E S Graham, J B Moeschler, J M Graham.   

Abstract

Parents, genetic counselors, and nurses were shown an 18-minute video-taped discussion involving parents of persons with Down syndrome and were asked to complete an evaluation. Some of the statistically significant differences were as follows: 89% of mothers believed that the film was an accurate portrayal of parental attitudes compared with 14% of the genetic counselors and 40% of the nurses; 48% of genetic counselors believed that problems outweigh the benefits in parenting a child with Down syndrome, but 94% of mothers and 83% of nurses thought that the benefits predominated; and 56% of genetic counselors believed that parents of a child with Down syndrome would choose to abort a subsequent affected fetus while only 8% of parents and 10% of nurses agreed. It is important that medical professionals have a balanced and accurate view of the impact of Down syndrome on families.

Entities:  

Keywords:  Genetics and Reproduction

Mesh:

Year:  1990        PMID: 2144943     DOI: 10.1001/archpedi.1990.02150340056023

Source DB:  PubMed          Journal:  Am J Dis Child        ISSN: 0002-922X


  6 in total

1.  Children's longing for everydayness: life following traumatic brain injury in the USA.

Authors:  Cecelia I Roscigno; Kristen M Swanson; Monica S Vavilala; Joanne Solchany
Journal:  Brain Inj       Date:  2011-06-01       Impact factor: 2.311

2.  Perception of genetic risk among genetic counselors.

Authors:  J Roggenbuck; J E Olson; T A Sellers; C Ludowese
Journal:  J Genet Couns       Date:  2000-02       Impact factor: 2.537

Review 3.  The relationship between the genetic counseling profession and the disability community: a commentary.

Authors:  Anne C Madeo; Barbara B Biesecker; Campbell Brasington; Lori H Erby; Kathryn F Peters
Journal:  Am J Med Genet A       Date:  2011-05-12       Impact factor: 2.802

Review 4.  Telling parents their child has severe congenital anomalies.

Authors:  S Ryan
Journal:  Postgrad Med J       Date:  1995-09       Impact factor: 2.401

Review 5.  Prenatal diagnosis and selective abortion: a challenge to practice and policy.

Authors:  A Asch
Journal:  Am J Public Health       Date:  1999-11       Impact factor: 9.308

6.  Disability Experiences and Perspectives Regarding Reproductive Decisions, Parenting, and the Utility of Genetic Services: a Qualitative Study.

Authors:  C Roadhouse; C Shuman; K Anstey; K Sappleton; D Chitayat; E Ignagni
Journal:  J Genet Couns       Date:  2018-06-16       Impact factor: 2.537

  6 in total

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