Literature DB >> 10414820

'Because of the risks': how US pregnant women account for refusing prenatal screening.

S Markens1, C H Browner, N Press.   

Abstract

Most research on prenatal fetal testing in general, and maternal alpha-fetoprotein (AFP) screening in particular, has focused on women who accept and even actively seek prenatal diagnosis. Much of this work suggests that agreeing to prenatal diagnosis is inextricably linked to the processes associated with the 'medicalization' of reproduction and that most women do not see refusal as an option. In contrast, little attention has been paid to women who decline fetal diagnosis. Instead, it is generally assumed that women who do so are resisting this thrust toward medicalization and/or are opposed to abortion. Our research is designed to address this imbalance. We analyze how a group of US women who refused the offer of AFP screening account for their decisions and compare their explanations with those of women who took the test. Contrary to our expectations, we found that refusal did not signify rejection of and/or resistance to the offerings of science and technology. Rather, women who refused often employed biomedical categories, particularly the concept of 'risk', to reject its very offerings. Furthermore, refusers and acceptors were more alike than different in their views on abortion, medicalization and pregnancy. We conclude that the key difference between the two groups lies in their interpretation and application of biomedical concepts and modern risk-assessment.

Entities:  

Keywords:  Empirical Approach; Genetics and Reproduction

Mesh:

Year:  1999        PMID: 10414820     DOI: 10.1016/s0277-9536(99)00097-0

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  23 in total

1.  Authoritative knowledge, the technological imperative and women's responses to prenatal diagnostic technologies.

Authors:  Judith L M McCoyd
Journal:  Cult Med Psychiatry       Date:  2010-12

2.  Awareness and attitudes regarding prenatal testing among Texas women of childbearing age.

Authors:  Amy P Case; Tunu A Ramadhani; Mark A Canfield; Catherine A Wicklund
Journal:  J Genet Couns       Date:  2007-08-03       Impact factor: 2.537

3.  "Don't Want No Risk and Don't Want No Problems": Public Understandings of the Risks and Benefits of Non-Invasive Prenatal Testing in the United States.

Authors:  Megan Allyse; Lauren Carter Sayres; Taylor Goodspeed; Marsha Michie; Mildred K Cho
Journal:  AJOB Empir Bioeth       Date:  2015

4.  "The Top Priority Is a Healthy Baby": Narratives of Health, Disability, and Abortion in Online Pregnancy Forum Discussions in the US and China.

Authors:  Grace Li; Subhashini Chandrasekharan; Megan Allyse
Journal:  J Genet Couns       Date:  2016-06-09       Impact factor: 2.537

5.  What's at stake? Genetic information from the perspective of people with epilepsy and their family members.

Authors:  Sara Shostak; Dana Zarhin; Ruth Ottman
Journal:  Soc Sci Med       Date:  2011-07-23       Impact factor: 4.634

6.  Cell-free fetal DNA testing for fetal aneuploidy and beyond: clinical integration challenges in the US context.

Authors:  Megan Allyse; Lauren C Sayres; Jaime S King; Mary E Norton; Mildred K Cho
Journal:  Hum Reprod       Date:  2012-08-03       Impact factor: 6.918

7.  Genetic testing likelihood: the impact of abortion views and quality of life information on women's decisions.

Authors:  Jessica L Wilson; Gail M Ferguson; Judith M Thorn
Journal:  J Genet Couns       Date:  2010-11-06       Impact factor: 2.537

8.  Demographic and experiential correlates of public attitudes towards cell-free fetal DNA screening.

Authors:  Lauren C Sayres; Megan Allyse; Taylor A Goodspeed; Mildred K Cho
Journal:  J Genet Couns       Date:  2014-04-09       Impact factor: 2.537

Review 9.  A systematic review of decision support needs of parents making child health decisions.

Authors:  Cath Jackson; Francine M Cheater; Innes Reid
Journal:  Health Expect       Date:  2008-09       Impact factor: 3.377

10.  Best ethical practices for clinicians and laboratories in the provision of noninvasive prenatal testing.

Authors:  M A Allyse; L C Sayres; M Havard; J S King; H T Greely; L Hudgins; J Taylor; M E Norton; M K Cho; D Magnus; K E Ormond
Journal:  Prenat Diagn       Date:  2013-05-21       Impact factor: 3.050

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