Literature DB >> 9564083

Decision-making through dialogue: reconfiguring autonomy in genetic counseling.

M T White1.   

Abstract

Nondirective genetic counseling developed as a means of promoting informed and independent decision-making. To the extent that it minimizes risks of coercion, this counseling approach effectively respects client autonomy. However, it also permits clients to make partially informed, poorly reasoned or ethically questionable choices, and denies counselors a means of demonstrating accountability for the use of their services. These practical and ethical tensions result from an excessive focus on noncoercion while neglecting the contribution of adequate information and deliberative competence to autonomous decision-making. A counseling approach that emphasizes the role of deliberation may more reliably produce thoroughly reasoned decisions. In such an approach, characterized by dialogue, counselors are responsible for ensuring that decisions are fully informed and carefully deliberated. Counseling remains nonprescriptive, but in the course of discussion counselors may introduce unsolicited information and/or challenge what they believe are questionable choices. By this means clients can be better assured that the decisions they make are fully considered, while counselors demonstrate a limited degree of professional accountability.

Keywords:  Analytical Approach; Genetics and Reproduction; Professional Patient Relationship

Mesh:

Year:  1998        PMID: 9564083     DOI: 10.1023/a:1009976119490

Source DB:  PubMed          Journal:  Theor Med Bioeth        ISSN: 1386-7415


  16 in total

1.  Process issues in genetic counseling.

Authors:  S Kessler
Journal:  Birth Defects Orig Artic Ser       Date:  1992

2.  Twice-told tales: stories about genetic disorders.

Authors:  A Lippman; B S Wilfond
Journal:  Am J Hum Genet       Date:  1992-10       Impact factor: 11.025

3.  Genetic counselor attitudes towards fetal sex identification and selective abortion.

Authors:  B M Burke
Journal:  Soc Sci Med       Date:  1992-06       Impact factor: 4.634

Review 4.  Psychological aspects of genetic counseling: VI. A critical review of the literature dealing with education and reproduction.

Authors:  S Kessler
Journal:  Am J Med Genet       Date:  1989-11

5.  Autonomy & the refusal of lifesaving treatment.

Authors:  B L Miller
Journal:  Hastings Cent Rep       Date:  1981-08       Impact factor: 2.683

6.  Genetic counseling--the postcounseling period: I. Parents' perceptions of uncertainty.

Authors:  A Lippman-Hand; F C Fraser
Journal:  Am J Med Genet       Date:  1979

7.  Genetic counseling -- the postcounseling period: II. Making reproductive choices.

Authors:  A Lippman-Hand; F C Fraser
Journal:  Am J Med Genet       Date:  1979

8.  Parental perceptions of the burden of genetic disease.

Authors:  E E Ekwo; J O Kim; C A Gosselink
Journal:  Am J Med Genet       Date:  1987-12

9.  Genetic counseling and reproductive uncertainty.

Authors:  D C Wertz; J R Sorenson; T C Heeren
Journal:  Am J Med Genet       Date:  1984-05

10.  Clients' interpretation of risks provided in genetic counseling.

Authors:  D C Wertz; J R Sorenson; T C Heeren
Journal:  Am J Hum Genet       Date:  1986-08       Impact factor: 11.025

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  7 in total

1.  A national survey of genetic counselors' personal values.

Authors:  Sara M Pirzadeh; Patricia McCarthy Veach; Dianne M Bartels; Juihsien Kao; Bonnie S Leroy
Journal:  J Genet Couns       Date:  2007-09-15       Impact factor: 2.537

2.  Genetic Counseling-Stress, Coping, and the Empowerment Perspective.

Authors:  A McConkie-Rosell; J A Sullivan
Journal:  J Genet Couns       Date:  1999-12       Impact factor: 2.537

3.  Back to the Future of Genetic Counseling: Commentary on "Psychosocial Genetic Counseling in the Post-Nondirective Era".

Authors:  Barbara Bowles Biesecker
Journal:  J Genet Couns       Date:  2003-06       Impact factor: 2.537

4.  Enhancing family communication about genetics: ethical and professional dilemmas.

Authors:  Jan Hodgson; Clara Gaff
Journal:  J Genet Couns       Date:  2012-07-26       Impact factor: 2.537

5.  Concurrent use of cultural health practices and Western medicine during pregnancy: exploring the Mexican experience in the United States.

Authors:  Deborah I Barragan; Kelly E Ormond; Michelle N Strecker; Jon Weil
Journal:  J Genet Couns       Date:  2011-07-16       Impact factor: 2.537

6.  Genetic counseling for prenatal testing: where is the discussion about disability?

Authors:  Ellyn Farrelly; Mildred K Cho; Lori Erby; Debra Roter; Anabel Stenzel; Kelly Ormond
Journal:  J Genet Couns       Date:  2012-08-17       Impact factor: 2.537

7.  Development, Experience, and Expression of Meaning in Genetic Counselors' Lives: an Exploratory Analysis.

Authors:  David M Wells; Patricia McCarthy Veach; Meredith A Martyr; Bonnie S LeRoy
Journal:  J Genet Couns       Date:  2015-10-24       Impact factor: 2.537

  7 in total

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