Literature DB >> 9131350

"Decoding" informed consent. Insights from women regarding breast cancer susceptibility testing.

G Geller, M Strauss, B A Bernhardt, N A Holtzman.   

Abstract

Cancer susceptibility testing is likely to become routine in medical practice, despite many limitations and unanswered questions. These uncertainties greatly complicate the process of informed consent, creating an excellent opportunity to reconsider exactly how it should be conducted. Research with women's reactions to the availability of genetic susceptibility testing for breast cancer dramatically underscores that informed consent ought to be highly individualized, taking care to discern what patients believe about the disease and its causes and what role they want their physician to play.

Entities:  

Keywords:  Analytical Approach; Empirical Approach; Genetics and Reproduction; Professional Patient Relationship

Mesh：

Year:  1997        PMID： 9131350

Source DB:  PubMed          Journal:  Hastings Cent Rep        ISSN： 0093-0334            Impact factor:   2.683


  10 in total

1.  Toward a model informed consent process for BRCA1 testing: a qualitative assessment of women's attitudes.

Authors:  Barbara A Bernhardt; Gail Geller; Misha Strauss; Kathy J Helzlsouer; Michael Stefanek; Patti M Wilcox; Neil A Holtzman
Journal:  J Genet Couns       Date:  1997-06       Impact factor: 2.537

2.  Informing the public.

Authors:  Joseph Erban
Journal:  CMAJ       Date:  2004-08-17       Impact factor: 8.262

3.  Comparison of Informed Consent Preferences for Multiplex Genetic Carrier Screening among a Diverse Population.

Authors:  Ashley Reeves; Angela Trepanier
Journal:  J Genet Couns       Date:  2015-07-16       Impact factor: 2.537

4.  Voluntary participation and informed consent to international genetic research.

Authors:  Patricia A Marshall; Clement A Adebamowo; Adebowale A Adeyemo; Temidayo O Ogundiran; Mirjana Vekich; Teri Strenski; Jie Zhou; T Elaine Prewitt; Richard S Cooper; Charles N Rotimi
Journal:  Am J Public Health       Date:  2006-10-03       Impact factor: 9.308

5.  The effect of experiential knowledge on construction of risk perception in hereditary breast/ovarian cancer.

Authors:  Lori d'Agincourt-Canning
Journal:  J Genet Couns       Date:  2005-02       Impact factor: 2.537

6.  Understanding participation by African Americans in cancer genetics research.

Authors:  Jasmine A McDonald; Frances K Barg; Benita Weathers; Carmen E Guerra; Andrea B Troxel; Susan Domchek; Deborah Bowen; Judy A Shea; Chanita Hughes Halbert
Journal:  J Natl Med Assoc       Date:  2012 Jul-Aug       Impact factor: 1.798

7.  Risk perception among women at risk for hereditary breast and ovarian cancer.

Authors:  Robert Pilarski
Journal:  J Genet Couns       Date:  2009-04-10       Impact factor: 2.537

8.  Empirical evaluation of the need for 'on-going consent' in clinical research.

Authors:  William Smith; Christine Grady; Benjamin Krohmal; Jaime Lazovski; David Wendler
Journal:  AIDS       Date:  2011-01-02       Impact factor: 4.177

9.  Trust and Perceptions of Physicians' Nonverbal Behavior Among Women with Immigrant Backgrounds.

Authors:  Marij A Hillen; Hanneke C J M de Haes; Mathilde G E Verdam; Ellen M A Smets
Journal:  J Immigr Minor Health       Date:  2018-08

10.  All eyes on the patient: the influence of oncologists' nonverbal communication on breast cancer patients' trust.

Authors:  Marij A Hillen; Hanneke C J M de Haes; Geertjan van Tienhoven; Nina Bijker; Hanneke W M van Laarhoven; Daniëlle M Vermeulen; Ellen M A Smets
Journal:  Breast Cancer Res Treat       Date:  2015-07-31       Impact factor: 4.872
  10 in total

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