Literature DB >> 19360461

Risk perception among women at risk for hereditary breast and ovarian cancer.

Robert Pilarski1.   

Abstract

This paper is a summation of selected history and literature on risk perception as it pertains to genetic counseling and testing, with a focus on hereditary breast and ovarian cancer, the area which has seen the greatest focus of research. Risk perception is a complex and incompletely understood concept which seeks to capture the myriad meanings that an individual attaches to the experience of being at increased risk. It is now evident that "risk", as perceived by the patient, is different from the objective, quantifiable risk estimate often provided to them during genetic counseling. What is also clear is that the complicated set of factors influencing risk perception are not yet well understood, nor are the mechanisms the lead from perceived risk to behavioral change in the patient. In situations where specific behavioral changes such as increased cancer screening are an inherent goal of the genetic risk assessment and counseling process, gaining a better understanding of the specific factors motivating change will be essential.

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Year:  2009        PMID: 19360461     DOI: 10.1007/s10897-009-9227-y

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  45 in total

Review 1.  An analysis of the concept of risk.

Authors:  L A Jacobs
Journal:  Cancer Nurs       Date:  2000-02       Impact factor: 2.592

Review 2.  A heuristics approach to understanding cancer risk perception: contributions from judgment and decision-making research.

Authors:  Ellen Peters; Kevin D McCaul; Michael Stefanek; Wendy Nelson
Journal:  Ann Behav Med       Date:  2006-02

3.  Intention to undergo prophylactic bilateral mastectomy in women at increased risk of developing hereditary breast cancer.

Authors:  B Meiser; P Butow; M Friedlander; V Schnieden; M Gattas; J Kirk; G Suthers; E Haan; K Tucker
Journal:  J Clin Oncol       Date:  2000-06       Impact factor: 44.544

4.  A descriptive study of breast cancer worry.

Authors:  K D McCaul; A D Branstetter; S M O'Donnell; K Jacobson; K B Quinlan
Journal:  J Behav Med       Date:  1998-12

5.  Family history of breast cancer: what do women understand and recall about their genetic risk?

Authors:  M Watson; V Duvivier; M Wade Walsh; S Ashley; J Davidson; M Papaikonomou; V Murday; N Sacks; R Eeles
Journal:  J Med Genet       Date:  1998-09       Impact factor: 6.318

Review 6.  Effectiveness of preventive interventions in BRCA1/2 gene mutation carriers: a systematic review.

Authors:  M J Bermejo-Pérez; S Márquez-Calderón; A Llanos-Méndez
Journal:  Int J Cancer       Date:  2007-07-15       Impact factor: 7.396

7.  Coping disposition, perceived risk, and psychological distress among women at increased risk for ovarian cancer.

Authors:  M D Schwartz; C Lerman; S M Miller; M Daly; A Masny
Journal:  Health Psychol       Date:  1995-05       Impact factor: 4.267

8.  Genetic counseling -- the postcounseling period: II. Making reproductive choices.

Authors:  A Lippman-Hand; F C Fraser
Journal:  Am J Med Genet       Date:  1979

9.  Psychological distress and surveillance behaviors of women with a family history of breast cancer.

Authors:  K M Kash; J C Holland; M S Halper; D G Miller
Journal:  J Natl Cancer Inst       Date:  1992-01-01       Impact factor: 13.506

10.  Familial breast cancer: a controlled study of risk perception, psychological morbidity and health beliefs in women attending for genetic counselling.

Authors:  S Lloyd; M Watson; B Waites; L Meyer; R Eeles; S Ebbs; A Tylee
Journal:  Br J Cancer       Date:  1996-08       Impact factor: 7.640

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  10 in total

1.  Genetic Testing and Post-Testing Decision Making among BRCA-Positive Mutation Women: A Psychosocial Approach.

Authors:  Sharlene Hesse-Biber; Chen An
Journal:  J Genet Couns       Date:  2016-01-13       Impact factor: 2.537

2.  Intuition versus cognition: a qualitative exploration of how women understand and manage their increased breast cancer risk.

Authors:  Louise Heiniger; Phyllis N Butow; Margaret Charles; Melanie A Price
Journal:  J Behav Med       Date:  2015-03-28

3.  "It was an Emotional Baby": Previvors' Family Planning Decision-Making Styles about Hereditary Breast and Ovarian Cancer Risk.

Authors:  Marleah Dean; Emily A Rauscher
Journal:  J Genet Couns       Date:  2017-01-30       Impact factor: 2.537

4.  Factors influencing consultation to discuss family history of cancer by asymptomatic patients in primary care.

Authors:  Jennifer N W Lim; Jenny Hewison; Carol E Chu; Hamdan Al-Habsi
Journal:  J Community Genet       Date:  2011-02-02

5.  Genetic risk, perceived risk, and cancer worry in daughters of breast cancer patients.

Authors:  John M Quillin; Joann N Bodurtha; Donna McClish; Diane Baer Wilson
Journal:  J Genet Couns       Date:  2010-12-04       Impact factor: 2.537

6.  Perceived risk and protective behaviors regarding COVID-19 among Iranian pregnant women.

Authors:  Soodabeh Aghababaei; Saeed Bashirian; Alireza Soltanian; Mansoureh Refaei; Tahereh Omidi; Samereh Ghelichkhani; Farzaneh Soltani
Journal:  Middle East Fertil Soc J       Date:  2020-09-18

7.  Comparison of the screening practices of unaffected noncarriers under 40 and between 40 and 49 in BRCA1/2 families.

Authors:  Christelle Duprez; Véronique Christophe; Isabelle Milhabet; Aurélie Krzeminski; Claude Adenis; Pascaline Berthet; Jean-Philippe Peyrat; Philippe Vennin
Journal:  J Genet Couns       Date:  2013-01-25       Impact factor: 2.537

8.  How do women at increased, but unexplained, familial risk of breast cancer perceive and manage their risk? A qualitative interview study.

Authors:  Louise A Keogh; Belinda J McClaren; Carmel Apicella; John L Hopper
Journal:  Hered Cancer Clin Pract       Date:  2011-09-06       Impact factor: 2.857

9.  Short-term psychological impact of the BRCA1/2 test result in women with breast cancer according to their perceived probability of genetic predisposition to cancer.

Authors:  A Brédart; J L Kop; A Depauw; O Caron; S Sultan; D Leblond; A Fajac; B Buecher; M Gauthier-Villars; C Noguès; C Flahault; D Stoppa-Lyonnet; S Dolbeault
Journal:  Br J Cancer       Date:  2013-03-05       Impact factor: 7.640

10.  Non-genetic health professionals' attitude towards, knowledge of and skills in discussing and ordering genetic testing for hereditary cancer.

Authors:  Kirsten F L Douma; Ellen M A Smets; Dawn C Allain
Journal:  Fam Cancer       Date:  2016-04       Impact factor: 2.375

  10 in total

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