Literature DB >> 31659323

A framework for tiered informed consent for health genomic research in Africa.

Victoria Nembaware1, Katherine Johnston2, Alpha A Diallo3,4, Maritha J Kotze5,6, Alice Matimba7, Keymanthri Moodley8, Godfrey B Tangwa9, Rispah Torrorey-Sawe5,10, Nicki Tiffin11,12,13.   

Abstract

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Year:  2019        PMID： 31659323      PMCID： PMC7258308          DOI： 10.1038/s41588-019-0520-x

Source DB:  PubMed          Journal:  Nat Genet        ISSN： 1061-4036            Impact factor:   38.330


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  1 in total

1.  iCONCUR: informed consent for clinical data and bio-sample use for research.

Authors:  Hyeoneui Kim; Elizabeth Bell; Jihoon Kim; Amy Sitapati; Joe Ramsdell; Claudiu Farcas; Dexter Friedman; Stephanie Feudjio Feupe; Lucila Ohno-Machado
Journal:  J Am Med Inform Assoc       Date:  2017-03-01       Impact factor: 4.497
  1 in total
  13 in total

Review 1.  African genetic diversity and adaptation inform a precision medicine agenda.

Authors:  Luisa Pereira; Leon Mutesa; Paulina Tindana; Michèle Ramsay
Journal:  Nat Rev Genet       Date:  2021-01-11       Impact factor: 53.242

2.  Symbolic Legislation and the Regulation of Stroke Biobanking and Genomics Research in Sub-Saharan Africa.

Authors:  Muyiwa Adigun; Babatunde Ojebuyi; Joshua Akinyemi; Kolawole Wahab; Albert Akpalu; Fred S Sarfo; Lukman F Owolabi; Rabiu Musbahu; Abiodun Bello; Reginald Obiako; Mayowa Ogunronbi; Michelle Nichols; Carolyn Jenkins; Ayodele Jegede; Rajesh Kalaria; Mayowa Owolabi; Bruce Ovbiagele; Oyedunni Arulogun; Rufus Akinyemi
Journal:  Theory Pract Legis       Date:  2022-01-31

3.  Handling Ethics Dumping and Neo-Colonial Research: From the Laboratory to the Academic Literature.

Authors:  Jaime A Teixeira da Silva
Journal:  J Bioeth Inq       Date:  2022-06-22       Impact factor: 2.216

4.  Translational Science, DNA Commercialization, and Informed Consent: The Need for Specific Terminology, Insights from a Review of H3Africa Projects.

Authors:  Patricia Marshall; Charmaine D M Royal; Ruth Chadwick
Journal:  Public Health Genomics       Date:  2022-01-25       Impact factor: 2.132

5.  "I'm a Little More Trusting": Components of Trustworthiness in the Decision to Participate in Genomics Research for African Americans.

Authors:  Susan Racine Passmore; Amelia M Jamison; Gregory R Hancock; Moaz Abdelwadoud; C Daniel Mullins; Taylor B Rogers; Stephen B Thomas
Journal:  Public Health Genomics       Date:  2020-01-17       Impact factor: 2.000

6.  TBDBT: A TB DataBase Template for collection of harmonized TB clinical research data in REDCap, facilitating data standardisation for inter-study comparison and meta-analyses.

Authors:  Taryn Allie; Amanda Jackson; Jon Ambler; Katherine Johnston; Elsa Du Bruyn; Charlotte Schultz; Linda Boloko; Sean Wasserman; Angharad Davis; Graeme Meintjes; Robert J Wilkinson; Nicki Tiffin
Journal:  PLoS One       Date:  2021-03-26       Impact factor: 3.240

7.  Genomics governance: advancing justice, fairness and equity through the lens of the African communitarian ethic of Ubuntu.

Authors:  Nchangwi Syntia Munung; Jantina de Vries; Bridget Pratt
Journal:  Med Health Care Philos       Date:  2021-04-02

8.  Evaluating models of consent in changing health research environments.

Authors:  Svenja Wiertz; Joachim Boldt
Journal:  Med Health Care Philos       Date:  2022-03-14

9.  Human OMICs and Computational Biology Research in Africa: Current Challenges and Prospects.

Authors:  Yosr Hamdi; Lyndon Zass; Houcemeddine Othman; Fouzia Radouani; Imane Allali; Mariem Hanachi; Chiamaka Jessica Okeke; Melek Chaouch; Maureen Bilinga Tendwa; Chaimae Samtal; Reem Mohamed Sallam; Nihad Alsayed; Michael Turkson; Samah Ahmed; Alia Benkahla; Lilia Romdhane; Oussema Souiai; Özlem Tastan Bishop; Kais Ghedira; Faisal Mohamed Fadlelmola; Nicola Mulder; Samar Kamal Kassim
Journal:  OMICS       Date:  2021-04-01

10.  Stakeholder perspectives on the ethico-legal dimensions of biobanking in South Africa.

Authors:  Shenuka Singh; Keymanthri Moodley
Journal:  BMC Med Ethics       Date:  2021-07-01       Impact factor: 2.652
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