Literature DB >> 30140984

"They Thought It Was an Obsession": Trajectories and Perspectives of Autistic Transgender and Gender-Diverse Adolescents.

John F Strang1,2,3,4, Meredith D Powers5,6,7, Megan Knauss5,7,8, Ely Sibarium5,9, Scott F Leibowitz10, Lauren Kenworthy5,6, Eleonora Sadikova5,6,7, Shannon Wyss11, Laura Willing6,7, Reid Caplan12, Noor Pervez12, Joel Nowak13, Dena Gohari5,7, Veronica Gomez-Lobo6,7,14, David Call6,7, Laura G Anthony15.   

Abstract

Despite research exploring autism in gender-diverse adolescents, no studies have elicited these individuals' perspectives. In-depth interviews with 22 well-characterized autistic gender-diverse adolescents revealed critical themes, including: recollections of pre-pubertal gender nonconformity; vivid experiences of gender dysphoria; a fear of social gender expression due to perceived animosity toward transgender people; and specific challenges that result from the interplay of gender diversity and neurodiversity. During the ~ 22 month study social gender affirmation increased in six participants and gender dysphoria attenuated in four participants. Given the ethical imperative to understand and prioritize the voiced perspectives and needs of autistic gender minority adolescents as well as the discovery of shared themes and experiences in this population, results should inform clinical research approaches and priorities.

Entities:  

Keywords:  Autism spectrum disorder; Autistic; Gender dysphoria; Gender minority; Gender nonbinary; Gender-diverse; Neurodiversity; Transgender

Mesh:

Year:  2018        PMID: 30140984     DOI: 10.1007/s10803-018-3723-6

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  39 in total

1.  "Gender Dysphoria" and Autism Spectrum Disorder: Is the Link Real?

Authors:  Jack L Turban; Gerrit I van Schalkwyk
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2018-01       Impact factor: 8.829

Review 2.  How pupils on the autism spectrum make sense of themselves in the context of their experiences in a mainstream school setting: A qualitative metasynthesis.

Authors:  Emma I Williams; Kate Gleeson; Bridget E Jones
Journal:  Autism       Date:  2017-11-15

3.  Head circumference and height in autism: a study by the Collaborative Program of Excellence in Autism.

Authors:  Janet E Lainhart; Erin D Bigler; Maureen Bocian; Hilary Coon; Elena Dinh; Geraldine Dawson; Curtis K Deutsch; Michelle Dunn; Annette Estes; Helen Tager-Flusberg; Susan Folstein; Susan Hepburn; Susan Hyman; William McMahon; Nancy Minshew; Jeff Munson; Kathy Osann; Sally Ozonoff; Patricia Rodier; Sally Rogers; Marian Sigman; M Anne Spence; Christopher J Stodgell; Fred Volkmar
Journal:  Am J Med Genet A       Date:  2006-11-01       Impact factor: 2.802

4.  The autism diagnostic observation schedule-generic: a standard measure of social and communication deficits associated with the spectrum of autism.

Authors:  C Lord; S Risi; L Lambrecht; E H Cook; B L Leventhal; P C DiLavore; A Pickles; M Rutter
Journal:  J Autism Dev Disord       Date:  2000-06

5.  Young people with features of gender dysphoria: Demographics and associated difficulties.

Authors:  Vicky Holt; Elin Skagerberg; Michael Dunsford
Journal:  Clin Child Psychol Psychiatry       Date:  2014-11-26       Impact factor: 2.544

6.  Initial Clinical Guidelines for Co-Occurring Autism Spectrum Disorder and Gender Dysphoria or Incongruence in Adolescents.

Authors:  John F Strang; Haley Meagher; Lauren Kenworthy; Annelou L C de Vries; Edgardo Menvielle; Scott Leibowitz; Aron Janssen; Peggy Cohen-Kettenis; Daniel E Shumer; Laura Edwards-Leeper; Richard R Pleak; Norman Spack; Dan H Karasic; Herbert Schreier; Anouk Balleur; Amy Tishelman; Diane Ehrensaft; Leslie Rodnan; Emily S Kuschner; Francie Mandel; Antonia Caretto; Hal C Lewis; Laura G Anthony
Journal:  J Clin Child Adolesc Psychol       Date:  2016-10-24

7.  Between a ROC and a hard place: decision making and making decisions about using the SCQ.

Authors:  Christina Corsello; Vanessa Hus; Andrew Pickles; Susan Risi; Edwin H Cook; Bennett L Leventhal; Catherine Lord
Journal:  J Child Psychol Psychiatry       Date:  2007-09       Impact factor: 8.982

8.  Evaluation of Asperger Syndrome in Youth Presenting to a Gender Dysphoria Clinic.

Authors:  Daniel E Shumer; Sari L Reisner; Laura Edwards-Leeper; Amy Tishelman
Journal:  LGBT Health       Date:  2015-12-01       Impact factor: 4.151

9.  Using the Autism Diagnostic Interview-Revised and the Autism Diagnostic Observation Schedule-Generic for the diagnosis of autism spectrum disorders in a Greek sample with a wide range of intellectual abilities.

Authors:  Katerina Papanikolaou; Elena Paliokosta; Giorgos Houliaras; Sofia Vgenopoulou; Eleni Giouroukou; Artemios Pehlivanidis; Vlassis Tomaras; Ioannis Tsiantis
Journal:  J Autism Dev Disord       Date:  2008-08-28

10.  Autism spectrum disorders in gender dysphoric children and adolescents.

Authors:  Annelou L C de Vries; Ilse L J Noens; Peggy T Cohen-Kettenis; Ina A van Berckelaer-Onnes; Theo A Doreleijers
Journal:  J Autism Dev Disord       Date:  2010-08
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  11 in total

1.  Brief Report: Links Between Nonconformity to Gender Norms, Autistic Features, and Internalizing Symptoms in a Non-clinical College Sample.

Authors:  Hillary K Schiltz; Alana J McVey; Ilana Seager van Dyk; Elyse J Adler; Amy V Van Hecke
Journal:  J Autism Dev Disord       Date:  2021-04-23

2.  Standards of Care for the Health of Transgender and Gender Diverse People, Version 8.

Authors:  E Coleman; A E Radix; W P Bouman; G R Brown; A L C de Vries; M B Deutsch; R Ettner; L Fraser; M Goodman; J Green; A B Hancock; T W Johnson; D H Karasic; G A Knudson; S F Leibowitz; H F L Meyer-Bahlburg; S J Monstrey; J Motmans; L Nahata; T O Nieder; S L Reisner; C Richards; L S Schechter; V Tangpricha; A C Tishelman; M A A Van Trotsenburg; S Winter; K Ducheny; N J Adams; T M Adrián; L R Allen; D Azul; H Bagga; K Başar; D S Bathory; J J Belinky; D R Berg; J U Berli; R O Bluebond-Langner; M-B Bouman; M L Bowers; P J Brassard; J Byrne; L Capitán; C J Cargill; J M Carswell; S C Chang; G Chelvakumar; T Corneil; K B Dalke; G De Cuypere; E de Vries; M Den Heijer; A H Devor; C Dhejne; A D'Marco; E K Edmiston; L Edwards-Leeper; R Ehrbar; D Ehrensaft; J Eisfeld; E Elaut; L Erickson-Schroth; J L Feldman; A D Fisher; M M Garcia; L Gijs; S E Green; B P Hall; T L D Hardy; M S Irwig; L A Jacobs; A C Janssen; K Johnson; D T Klink; B P C Kreukels; L E Kuper; E J Kvach; M A Malouf; R Massey; T Mazur; C McLachlan; S D Morrison; S W Mosser; P M Neira; U Nygren; J M Oates; J Obedin-Maliver; G Pagkalos; J Patton; N Phanuphak; K Rachlin; T Reed; G N Rider; J Ristori; S Robbins-Cherry; S A Roberts; K A Rodriguez-Wallberg; S M Rosenthal; K Sabir; J D Safer; A I Scheim; L J Seal; T J Sehoole; K Spencer; C St Amand; T D Steensma; J F Strang; G B Taylor; K Tilleman; G G T'Sjoen; L N Vala; N M Van Mello; J F Veale; J A Vencill; B Vincent; L M Wesp; M A West; J Arcelus
Journal:  Int J Transgend Health       Date:  2022-09-06

3.  Greater gender diversity among autistic children by self-report and parent-report.

Authors:  Blythe A Corbett; Rachael A Muscatello; Mark E Klemencic; Millicent West; Ahra Kim; John F Strang
Journal:  Autism       Date:  2022-04-01

4.  "Straight Sex is Complicated Enough!": The Lived Experiences of Autistics Who are Gay, Lesbian, Bisexual, Asexual, or Other Sexual Orientations.

Authors:  Laura Foran Lewis; Caroline Ward; Noah Jarvis; Eleni Cawley
Journal:  J Autism Dev Disord       Date:  2021-07

5.  Community-Based Participatory Design for Research that Impacts the Lives of Transgender and/or Gender-Diverse Autistic and/or Neurodiverse People.

Authors:  John F Strang; Sascha E Klomp; Reid Caplan; April D Griffin; Laura G Anthony; Marvel C Harris; Elizabeth K Graham; Megan Knauss; Anna I R van der Miesen
Journal:  Clin Pract Pediatr Psychol       Date:  2019-12

Review 6.  Exploring Three Core Psychological Elements When Treating Adolescents on the Autism Spectrum: Self-Awareness, Gender Identity, and Sexuality.

Authors:  Ann Genovese
Journal:  Cureus       Date:  2021-03-26

7.  Longitudinal outcomes of gender identity in children (LOGIC): a study protocol for a prospective longitudinal qualitative study of the experiences and well-being of families referred to the UK Gender Identity Development Service.

Authors:  Kathy McKay; Eilis Kennedy; Chloe Lane; Talen Wright; Bridget Young
Journal:  BMJ Open       Date:  2021-11-03       Impact factor: 2.692

8.  The lived experience of gender dysphoria in autistic young people: a phenomenological study with young people and their parents.

Authors:  Kate Cooper; Catherine Butler; Ailsa Russell; William Mandy
Journal:  Eur Child Adolesc Psychiatry       Date:  2022-04-04       Impact factor: 4.785

9.  Autistic Traits, Empathizing-Systemizing, and Gender Diversity.

Authors:  Olivia Hendriks; Yimeng Wei; Varun Warrier; Gareth Richards
Journal:  Arch Sex Behav       Date:  2022-04-25

10.  Transgender Youth Executive Functioning: Relationships with Anxiety Symptoms, Autism Spectrum Disorder, and Gender-Affirming Medical Treatment Status.

Authors:  John F Strang; Diane Chen; Eric Nelson; Scott F Leibowitz; Leena Nahata; Laura G Anthony; Amber Song; Connor Grannis; Elizabeth Graham; Shane Henise; Eric Vilain; Eleonora Sadikova; Andrew Freeman; Cara Pugliese; Ayesha Khawaja; Tekla Maisashvili; Michael Mancilla; Lauren Kenworthy
Journal:  Child Psychiatry Hum Dev       Date:  2021-06-19
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