Literature DB >> 27775428

Initial Clinical Guidelines for Co-Occurring Autism Spectrum Disorder and Gender Dysphoria or Incongruence in Adolescents.

John F Strang1, Haley Meagher1, Lauren Kenworthy1, Annelou L C de Vries2, Edgardo Menvielle3, Scott Leibowitz4, Aron Janssen5, Peggy Cohen-Kettenis6, Daniel E Shumer7, Laura Edwards-Leeper8, Richard R Pleak9, Norman Spack10, Dan H Karasic11, Herbert Schreier12, Anouk Balleur6, Amy Tishelman13, Diane Ehrensaft14, Leslie Rodnan15, Emily S Kuschner16, Francie Mandel17, Antonia Caretto18, Hal C Lewis19, Laura G Anthony20.   

Abstract

Evidence indicates an overrepresentation of youth with co-occurring autism spectrum disorders (ASD) and gender dysphoria (GD). The clinical assessment and treatment of adolescents with this co-occurrence is often complex, related to the developmental aspects of ASD. There are no guidelines for clinical care when ASD and GD co-occur; however, there are clinicians and researchers experienced in this co-occurrence. This study develops initial clinical consensus guidelines for the assessment and care of adolescents with co-occurring ASD and GD, from the best clinical practices of current experts in the field. Expert participants were identified through a comprehensive international search process and invited to participate in a two-stage Delphi procedure to form clinical consensus statements. The Delphi Method is a well-studied research methodology for obtaining consensus among experts to define appropriate clinical care. Of 30 potential experts identified, 22 met criteria as expert in co-occurring ASD and GD youth and participated. Textual data divided into the following data nodes: guidelines for assessment; guidelines for treatment; six primary clinical/psychosocial challenges: social functioning, medical treatments and medical safety, risk of victimization/safety, school, and transition to adulthood issues (i.e., employment and romantic relationships). With a cutoff of 75% consensus for inclusion, identified experts produced a set of initial guidelines for clinical care. Primary themes include the importance of assessment for GD in ASD, and vice versa, as well as an extended diagnostic period, often with overlap/blurring of treatment and assessment.

Entities:  

Mesh:

Year:  2016        PMID: 27775428     DOI: 10.1080/15374416.2016.1228462

Source DB:  PubMed          Journal:  J Clin Child Adolesc Psychol        ISSN: 1537-4416


  29 in total

1.  Brief Report: Sexual Orientation in Individuals with Autistic Traits: Population Based Study of 47,000 Adults in Stockholm County.

Authors:  Christiane E S Rudolph; Andreas Lundin; Jill W Åhs; Christina Dalman; Kyriaki Kosidou
Journal:  J Autism Dev Disord       Date:  2018-02

Review 2.  Management of gender dysphoria in adolescents in primary care.

Authors:  Joseph H Bonifacio; Catherine Maser; Katie Stadelman; Mark Palmert
Journal:  CMAJ       Date:  2019-01-21       Impact factor: 8.262

3.  Double Helix Rainbow Kids.

Authors:  Diane Ehrensaft
Journal:  J Autism Dev Disord       Date:  2018-12

4.  The Co-occurrence of Gender Dysphoria and Autism Spectrum Disorder in Adults: An Analysis of Cross-Sectional and Clinical Chart Data.

Authors:  Gunter Heylens; Lore Aspeslagh; Jesper Dierickx; Kariann Baetens; Birgit Van Hoorde; Griet De Cuypere; Els Elaut
Journal:  J Autism Dev Disord       Date:  2018-06

5.  LGBTQ + and autism spectrum disorder: Experiences and challenges.

Authors:  Ashleigh Hillier; Nicholas Gallop; Eva Mendes; Dylan Tellez; Abigail Buckingham; Afreen Nizami; Derek OToole
Journal:  Int J Transgend Health       Date:  2019-04-22

Review 6.  Psychosocial challenges and hormonal treatment in gender diverse children and adolescents. A narrative review.

Authors:  Laura Baetens; Karlien Dhondt
Journal:  Int J Impot Res       Date:  2020-05-04       Impact factor: 2.896

7.  Health care provider perceptions of fertility preservation barriers and challenges with transgender patients and families: qualitative responses to an international survey.

Authors:  Amy C Tishelman; Megan E Sutter; Diane Chen; Amani Sampson; Leena Nahata; Victoria D Kolbuck; Gwendolyn P Quinn
Journal:  J Assist Reprod Genet       Date:  2019-01-03       Impact factor: 3.412

8.  Potentially Reversible Social Deficits Among Transgender Youth.

Authors:  Jack L Turban
Journal:  J Autism Dev Disord       Date:  2018-12

9.  "They Thought It Was an Obsession": Trajectories and Perspectives of Autistic Transgender and Gender-Diverse Adolescents.

Authors:  John F Strang; Meredith D Powers; Megan Knauss; Ely Sibarium; Scott F Leibowitz; Lauren Kenworthy; Eleonora Sadikova; Shannon Wyss; Laura Willing; Reid Caplan; Noor Pervez; Joel Nowak; Dena Gohari; Veronica Gomez-Lobo; David Call; Laura G Anthony
Journal:  J Autism Dev Disord       Date:  2018-12

10.  A Multisite, Multidisciplinary Delphi Consensus Study Describing "Usual Care" Intervention Strategies for School-Age to Transition-Age Youth With Autism.

Authors:  Connor M Kerns; Lauren J Moskowitz; Tamara Rosen; Amy Drahota; Allison Wainer; Anne R Josephson; Latha Soorya; Elizabeth Cohn; Anil Chacko; Matthew D Lerner
Journal:  J Clin Child Adolesc Psychol       Date:  2018-01-31
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