Literature DB >> 29760260

Older patient engagement in advance care planning in Canadian primary care practices: Results of a multisite survey.

Michelle Howard1, Carrie Bernard2, Doug Klein3, Amy Tan4, Marissa Slaven5, Doris Barwich6, John J You7, Gabriel Asselin8, Jessica Simon9, Daren K Heyland10.   

Abstract

OBJECTIVE: To assess primary care patients' engagement in advance care planning (ACP) and predictors of engagement.
DESIGN: Cross-sectional survey using a revised version of a validated questionnaire.
SETTING: Alberta, Ontario, and British Columbia. PARTICIPANTS: Convenience sample of 20 family practices that provided a consecutive sample of 810 patients aged 50 years and older. MAIN OUTCOME MEASURES: Engagement in ACP activities, and sociodemographic and health-related predictors of having engaged in ACP activities.
RESULTS: Patients had a mean age of 66 years (55.6% women). Two-thirds of patients (68.5%; 555) had thought about the kinds of medical treatments they would want or not want if they were sick and in hospital, 52.8% (n = 428) had talked with someone about what they would want, 32.0% (n = 259) had written down their wishes, 50.4% (n = 408) had named someone to be their substitute decision maker, and 23.0% (n = 186) had engaged in all 4 key ACP activities. Of those patients who had talked to someone about medical treatments wanted or not, 17.5% (n = 75) had talked to their family doctors. Age (adjusted odds ratio per 10-year category of 1.55; 95% CI 1.26 to 1.90; P < .001) was significantly associated with having engaged in all ACP activities.
CONCLUSION: Many patients have engaged in some ACP activities, but few have discussed ACP with their family physicians. Strategies should be implemented in primary care to reduce the barriers to discussing ACP. Copyright© the College of Family Physicians of Canada.

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Year:  2018        PMID: 29760260      PMCID: PMC5951655     

Source DB:  PubMed          Journal:  Can Fam Physician        ISSN: 0008-350X            Impact factor:   3.275


  26 in total

1.  What really matters in end-of-life discussions? Perspectives of patients in hospital with serious illness and their families.

Authors:  John J You; Peter Dodek; Francois Lamontagne; James Downar; Tasnim Sinuff; Xuran Jiang; Andrew G Day; Daren K Heyland
Journal:  CMAJ       Date:  2014-11-03       Impact factor: 8.262

2.  Improving End-of-Life Communication and Decision Making: The Development of a Conceptual Framework and Quality Indicators.

Authors:  Tasnim Sinuff; Peter Dodek; John J You; Doris Barwich; Carolyn Tayler; James Downar; Michael Hartwick; Christopher Frank; Henry T Stelfox; Daren K Heyland
Journal:  J Pain Symptom Manage       Date:  2015-01-24       Impact factor: 3.612

3.  The patient-centred clinical method. 1. A model for the doctor-patient interaction in family medicine.

Authors:  J H Levenstein; E C McCracken; I R McWhinney; M A Stewart; J B Brown
Journal:  Fam Pract       Date:  1986-03       Impact factor: 2.267

Review 4.  Stability of end-of-life preferences: a systematic review of the evidence.

Authors:  Catherine L Auriemma; Christina A Nguyen; Rachel Bronheim; Saida Kent; Shrivatsa Nadiger; Dustin Pardo; Scott D Halpern
Journal:  JAMA Intern Med       Date:  2014-07       Impact factor: 21.873

5.  Awareness of do-not-resuscitate orders: what do patients know and want?

Authors:  Claire Robinson; Sharlene Kolesar; Mark Boyko; Jonathan Berkowitz; Betty Calam; Marisa Collins
Journal:  Can Fam Physician       Date:  2012-04       Impact factor: 3.275

6.  Failure to engage hospitalized elderly patients and their families in advance care planning.

Authors:  Daren K Heyland; Doris Barwich; Deb Pichora; Peter Dodek; Francois Lamontagne; John J You; Carolyn Tayler; Pat Porterfield; Tasnim Sinuff; Jessica Simon
Journal:  JAMA Intern Med       Date:  2013-05-13       Impact factor: 21.873

7.  Barriers to goals of care discussions with seriously ill hospitalized patients and their families: a multicenter survey of clinicians.

Authors:  John J You; James Downar; Robert A Fowler; François Lamontagne; Irene W Y Ma; Dev Jayaraman; Jennifer Kryworuchko; Patricia H Strachan; Roy Ilan; Aman P Nijjar; John Neary; John Shik; Kevin Brazil; Amen Patel; Kim Wiebe; Martin Albert; Anita Palepu; Elysée Nouvet; Amanda Roze des Ordons; Nishan Sharma; Amane Abdul-Razzak; Xuran Jiang; Andrew Day; Daren K Heyland
Journal:  JAMA Intern Med       Date:  2015-04       Impact factor: 21.873

8.  The impact of advance care planning on end of life care in elderly patients: randomised controlled trial.

Authors:  Karen M Detering; Andrew D Hancock; Michael C Reade; William Silvester
Journal:  BMJ       Date:  2010-03-23

9.  Prior capacity of patients lacking decision making ability early in hospitalization: implications for advance directive administration. The SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments.

Authors:  N S Wenger; R K Oye; P E Bellamy; J Lynn; R S Phillips; N A Desbiens; P Kussin; S J Youngner
Journal:  J Gen Intern Med       Date:  1994-10       Impact factor: 5.128

10.  The prevalence of medical error related to end-of-life communication in Canadian hospitals: results of a multicentre observational study.

Authors:  Daren K Heyland; Roy Ilan; Xuran Jiang; John J You; Peter Dodek
Journal:  BMJ Qual Saf       Date:  2015-11-09       Impact factor: 7.035

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  13 in total

1.  A novel decision aid to help plan for serious illness: a multisite randomized trial.

Authors:  Daren K Heyland; Rebecca Heyland; Alice Bailey; Michelle Howard
Journal:  CMAJ Open       Date:  2020-04-28

Review 2.  A rapid scoping review of end-of-life conversations with frail older adults in Canada.

Authors:  Celina Carter; Francesco Leanza; Shan Mohammed; Ross E G Upshur; Pia Kontos
Journal:  Can Fam Physician       Date:  2021-11       Impact factor: 3.275

3.  Effect of an Interactive Website to Engage Patients in Advance Care Planning in Outpatient Settings.

Authors:  Michelle Howard; Carole A Robinson; Michael McKenzie; Gillian Fyles; Rebecca L Sudore; Elizabeth Andersen; Neha Arora; Doris Barwich; Carrie Bernard; Dawn Elston; Rebecca Heyland; Doug Klein; Erin McFee; Lawrence Mroz; Marissa Slaven; Amy Tan; Daren K Heyland
Journal:  Ann Fam Med       Date:  2020-03       Impact factor: 5.166

4.  Adaptation and Preliminary Validation of the Advance Care Planning Engagement Survey for Surrogate Decision Makers.

Authors:  Lauren J Van Scoy; Andrew G Day; Michelle Howard; Rebecca Sudore; Daren K Heyland
Journal:  J Pain Symptom Manage       Date:  2019-01-24       Impact factor: 3.612

5.  Exploring patient-reported barriers to advance care planning in family practice.

Authors:  Carrie Bernard; Amy Tan; Marissa Slaven; Dawn Elston; Daren K Heyland; Michelle Howard
Journal:  BMC Fam Pract       Date:  2020-05-25       Impact factor: 2.497

6.  "I was not able to keep myself away from tending to her immediate needs": Primary Care Physicians' Perspectives of Serious Illness Conversations at Community Health Centers.

Authors:  Deborah Swiderski; Annette Georgia; Elizabeth Chuang; Allison Stark; Justin Sanders; Anna Flattau
Journal:  J Gen Intern Med       Date:  2021-07-29       Impact factor: 5.128

7.  Facilitating advance care planning in the general practice setting for patients with a chronic, life-limiting illness: protocol for a phase-III cluster-randomized controlled trial and process evaluation of the ACP-GP intervention.

Authors:  Koen Pardon; Aline De Vleminck; Julie Stevens; Peter Pype; Kim Eecloo; Luc Deliens
Journal:  BMC Palliat Care       Date:  2021-06-25       Impact factor: 3.234

8.  Cultural adaptation of a community-based advance serious illness planning decision aid to the Quebec context involving end-users.

Authors:  Ariane Plaisance; Yoanna Skrobik; Mathieu Moreau; Felix Pageau; Diane Tapp; Daren K Heyland
Journal:  Health Expect       Date:  2022-02-02       Impact factor: 3.318

9.  Recognizing difficult trade-offs: values and treatment preferences for end-of-life care in a multi-site survey of adult patients in family practices.

Authors:  Michelle Howard; Nick Bansback; Amy Tan; Doug Klein; Carrie Bernard; Doris Barwich; Peter Dodek; Aman Nijjar; Daren K Heyland
Journal:  BMC Med Inform Decis Mak       Date:  2017-12-06       Impact factor: 2.796

10.  Exploring Community-Dwelling Older Adults' Considerations About Values and Preferences for Future End-of-Life Care: A Study from Sweden.

Authors:  Malin Eneslätt; Gert Helgesson; Carol Tishelman
Journal:  Gerontologist       Date:  2020-09-15
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