Literature DB >> 29517535

The institutional development award states pediatric clinical trials network: building research capacity among the rural and medically underserved.

Jessica Snowden1, Paul Darden2, Paul Palumbo3, Phil Saul4, Jeannette Lee5.   

Abstract

PURPOSE OF REVIEW: The institutional development award (IDeA) program was created to increase the competitiveness of investigators in states with historically low success rates for National Institutes of Health (NIH) research funding applications. IDeA states have high numbers of rural and medically underserved residents with disproportionately high rates of infant mortality, obesity, and poverty. This program supports the development and expansion of research infrastructure and research activities in these states. The IDeA States Pediatric Clinical Trials Network (ISPCTN) is part of the environmental influences on child health outcomes program. Its purpose is to build research capacity within IDeA states and provide opportunities for children in IDeA states to participate in clinical trials. This review describes the current and future activities of the network. RECENT
FINDINGS: In its initial year, the ISPCTN created an online series on clinical trials, initiated participation in a study conducted by the pediatric trials network, and proposed two novel clinical trials for obese children. Capacity building and clinical trial implementation will continue in future years.
SUMMARY: The ISPCTN is uniquely poised to establish and support new pediatric clinical research programs in underserved populations, producing both short and long-term gains in the understanding of child health.

Entities:  

Mesh:

Year:  2018        PMID: 29517535      PMCID: PMC5927618          DOI: 10.1097/MOP.0000000000000597

Source DB:  PubMed          Journal:  Curr Opin Pediatr        ISSN: 1040-8703            Impact factor:   2.856


  23 in total

1.  Pediatric clinical research networks: current status, common challenges, and potential solutions.

Authors:  Eric J Slora; Donna L Harris; Alison B Bocian; Richard C Wasserman
Journal:  Pediatrics       Date:  2010-09-13       Impact factor: 7.124

Review 2.  Barriers to recruiting underrepresented populations to cancer clinical trials: a systematic review.

Authors:  Jean G Ford; Mollie W Howerton; Gabriel Y Lai; Tiffany L Gary; Shari Bolen; M Chris Gibbons; Jon Tilburt; Charles Baffi; Teerath Peter Tanpitukpongse; Renee F Wilson; Neil R Powe; Eric B Bass
Journal:  Cancer       Date:  2008-01-15       Impact factor: 6.860

3.  Association between pediatric clinical trials and global burden of disease.

Authors:  Florence T Bourgeois; Karen L Olson; John P A Ioannidis; Kenneth D Mandl
Journal:  Pediatrics       Date:  2013-12-16       Impact factor: 7.124

4.  Moving toward true inclusion of racial/ethnic minorities in federally funded studies. A key step for achieving respiratory health equality in the United States.

Authors:  Esteban G Burchard; Sam S Oh; Marilyn G Foreman; Juan C Celedón
Journal:  Am J Respir Crit Care Med       Date:  2015-03-01       Impact factor: 21.405

5.  Pediatric versus adult drug trials for conditions with high pediatric disease burden.

Authors:  Florence T Bourgeois; Srinivas Murthy; Catia Pinto; Karen L Olson; John P A Ioannidis; Kenneth D Mandl
Journal:  Pediatrics       Date:  2012-07-23       Impact factor: 7.124

6.  Relative or absolute standards for child poverty: a state-level analysis of infant and child mortality.

Authors:  Marianne M Hillemeier; John Lynch; Sam Harper; Trivellore Raghunathan; George A Kaplan
Journal:  Am J Public Health       Date:  2003-04       Impact factor: 9.308

Review 7.  A concise history of the cancer and leukemia group B.

Authors:  Richard L Schilsky; O Ross McIntyre; James F Holland; Emil Frei
Journal:  Clin Cancer Res       Date:  2006-06-01       Impact factor: 12.531

8.  The ecology of medical care for children in the United States.

Authors:  Susan Dovey; Michael Weitzman; George Fryer; Larry Green; Barbara Yawn; David Lanier; Robert Phillips
Journal:  Pediatrics       Date:  2003-05       Impact factor: 7.124

9.  Clinical trials: the art of enrollment.

Authors:  Claudia R Baquet; Kimberly Henderson; Patricia Commiskey; Jamila N Morrow
Journal:  Semin Oncol Nurs       Date:  2008-11       Impact factor: 2.315

10.  Characterization of the population pharmacokinetics of ampicillin in neonates using an opportunistic study design.

Authors:  Adriana Tremoulet; Jennifer Le; Brenda Poindexter; Janice E Sullivan; Matthew Laughon; Paula Delmore; Andrea Salgado; Sandy Ian-U Chong; Chiara Melloni; Jamie Gao; Daniel K Benjamin; Edmund V Capparelli; Michael Cohen-Wolkowiez
Journal:  Antimicrob Agents Chemother       Date:  2014-03-10       Impact factor: 5.938

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  15 in total

1.  IDeA States Pediatric Clinical Trials Network for Underserved and Rural Communities.

Authors:  Robert D Annett; Sheva Chervinskiy; Thomas H Chun; Kelly Cowan; Kristina Foster; Nathaniel Goodrich; Matthew Hirschfeld; Daniel S Hsia; J Dean Jarvis; Kurtis Kulbeth; Christi Madden; Clare Nesmith; Hengameh Raissy; Judith Ross; J Philip Saul; Bruce Shiramizu; Paul Smith; Janice E Sullivan; Lauren Tucker; Andrew M Atz
Journal:  Pediatrics       Date:  2020-09-17       Impact factor: 7.124

2.  The ACT NOW Clinical Practice Survey: Gaps in the Care of Infants With Neonatal Opioid Withdrawal Syndrome.

Authors:  Jessica N Snowden; A Akshatha; Robert D Annett; Margaret M Crawford; Abhik Das; Lori A Devlin; Rosemary D Higgins; Zhuopei Hu; Elizabeth Lindsay; Stephanie Merhar; Clare Campbell Nesmith; Heather Pratt-Chavez; Judith Ross; Alan E Simon; M Cody Smith; Christine B Turley; Anita Walden; Leslie Young; Bonny Whalen
Journal:  Hosp Pediatr       Date:  2019-07-19

3.  Training as an Intervention to Decrease Medical Record Abstraction Errors Multicenter Studies.

Authors:  Meredith Nahm Zozus; Leslie W Young; Alan E Simon; Maryam Garza; Lora Lawrence; Songthip T Ounpraseuth; Megan Bledsoe; Sarah Newman-Norlund; J Dean Jarvis; Mary McNally; Kimberly R Harris; Russell McCulloh; Rachel Aikman; Sara Cox; Lacy Malloch; Anita Walden; Jessica Snowden; Irene Mangan Chedjieu; Chester A Wicker; Lauren Atkins; Lori A Devlin
Journal:  Stud Health Technol Inform       Date:  2019

4.  Development of a Prospective Real-World Data Clinical Registry of Children and Adolescents With Migraine.

Authors:  Christoph P Hornik; Amy A Gelfand; Christina L Szperka; Tara Pezzuto; Amanda Utevsky; Shirley Kessel; Susan McCune; John J Alexander; Daniel K Benjamin; Michael Cohen-Wolkowiez
Journal:  Headache       Date:  2019-11-22       Impact factor: 5.887

5.  Capacity Building in a New Clinical Trials Network through Inter-Network Collaboration.

Authors:  Lisa Knight; Barbara A Pahud; Margaret Scheffler; Joshua C Euteneuer; Christine Allen; Judith Ross; Wail Ali; Marisa Meyer; Prashant J Purohit; Kanecia O Zimmerman; Janice E Sullivan
Journal:  J Pediatr       Date:  2021-04-30       Impact factor: 6.314

Review 6.  Prenatal Opioid Exposure: Neurodevelopmental Consequences and Future Research Priorities.

Authors:  Elisabeth Conradt; Tess Flannery; Judy L Aschner; Robert D Annett; Lisa A Croen; Cristiane S Duarte; Alexander M Friedman; Constance Guille; Monique M Hedderson; Julie A Hofheimer; Miranda R Jones; Christine Ladd-Acosta; Monica McGrath; Angela Moreland; Jenae M Neiderhiser; Ruby H N Nguyen; Jonathan Posner; Judith L Ross; David A Savitz; Steven J Ondersma; Barry M Lester
Journal:  Pediatrics       Date:  2019-09       Impact factor: 9.703

7.  Enhancing Clinical Data and Clinical Research Data with Biomedical Ontologies - Insights from the Knowledge Representation Perspective.

Authors:  Jonathan P Bona; Fred W Prior; Meredith N Zozus; Mathias Brochhausen
Journal:  Yearb Med Inform       Date:  2019-08-16

8.  Rationale and protocol for a cluster randomized, cross-over trial of recruitment methods of rural children in primary care clinics: A feasibility study of a pediatric weight control trial in the IDeA States Pediatric Clinical Trials Network.

Authors:  Ann M Davis; Paul M Darden; Jessica Snowden; Alan E Simon; Russell J McCulloh; Milan Bimali; Jeannette Lee
Journal:  Contemp Clin Trials       Date:  2021-06-09       Impact factor: 2.261

9.  Team Science Process Builds Research Coordinators' Voices in a National Pediatric Clinical Trials Network.

Authors:  Christi Madden; Lacy Malloch; J Dean Jarvis; Mary McNally; Kristina Foster; Sara Cox; Amy Swango-Wilson; Jennifer Faiella; Megan Bledsoe; Laurie Chassereau; Sarah Sanders; Olivia Nunez; Grace McCauley; Barbara Bancroft; Jessica Snowden; Phyllis Nader
Journal:  SOCRA Source       Date:  2020-08

10.  A health care professionals training needs assessment for oncology in Uganda.

Authors:  Josaphat Byamugisha; Ian G Munabi; Aloysius G Mubuuke; Amos D Mwaka; Mike Kagawa; Isaac Okullo; Nixon Niyonzima; Pastan Lusiba; Peruth Ainembabazi; Caroline Kankunda; Dennis D Muhumuza; Jackson Orem; Diana Atwine; Charles Ibingira
Journal:  Hum Resour Health       Date:  2020-09-01
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