OBJECTIVES: The goals were (1) to describe and to characterize pediatric clinical research networks (PCRNs) in the United States and Canada, (2) to identify PCRN strengths and weaknesses, (3) to evaluate the potential for collaboration among PCRNs, and (4) to assess untapped potential interest in PCRN participation. METHODS: Data collection included (1) initial identification of PCRNs through an Internet search and word of mouth, (2) follow-up surveys of PCRN leaders, (3) telephone interviews with 21 PCRN leaders, and (4) a survey of 43 American Academy of Pediatrics specialty leaders regarding untapped interest in network research. RESULTS: Seventy exclusively pediatric networks were identified. Of those, specialty care networks constituted the largest proportion (50%), followed by primary care (28.6%) and disease-specific (21.4%) networks. A network profile survey (response rate: 74.3%) revealed that ∼90% held infrastructure funding. Nearly 75% of respondents viewed cross-network collaborations positively. In-depth telephone interviews corroborated the survey data, with cross-network collaboration mentioned consistently as a theme. American Academy of Pediatrics specialty leaders indicated that up to 30% of current nonparticipants might be interested in research involvement. CONCLUSIONS: Pediatric networks exist across the care continuum. Significant numbers of uninvolved practitioners may be interested in joining PCRNs. A strong majority of network leaders cited potential benefits from network collaboration.
OBJECTIVES: The goals were (1) to describe and to characterize pediatric clinical research networks (PCRNs) in the United States and Canada, (2) to identify PCRN strengths and weaknesses, (3) to evaluate the potential for collaboration among PCRNs, and (4) to assess untapped potential interest in PCRN participation. METHODS: Data collection included (1) initial identification of PCRNs through an Internet search and word of mouth, (2) follow-up surveys of PCRN leaders, (3) telephone interviews with 21 PCRN leaders, and (4) a survey of 43 American Academy of Pediatrics specialty leaders regarding untapped interest in network research. RESULTS: Seventy exclusively pediatric networks were identified. Of those, specialty care networks constituted the largest proportion (50%), followed by primary care (28.6%) and disease-specific (21.4%) networks. A network profile survey (response rate: 74.3%) revealed that ∼90% held infrastructure funding. Nearly 75% of respondents viewed cross-network collaborations positively. In-depth telephone interviews corroborated the survey data, with cross-network collaboration mentioned consistently as a theme. American Academy of Pediatrics specialty leaders indicated that up to 30% of current nonparticipants might be interested in research involvement. CONCLUSIONS: Pediatric networks exist across the care continuum. Significant numbers of uninvolved practitioners may be interested in joining PCRNs. A strong majority of network leaders cited potential benefits from network collaboration.
Authors: Robert D Annett; Sheva Chervinskiy; Thomas H Chun; Kelly Cowan; Kristina Foster; Nathaniel Goodrich; Matthew Hirschfeld; Daniel S Hsia; J Dean Jarvis; Kurtis Kulbeth; Christi Madden; Clare Nesmith; Hengameh Raissy; Judith Ross; J Philip Saul; Bruce Shiramizu; Paul Smith; Janice E Sullivan; Lauren Tucker; Andrew M Atz Journal: Pediatrics Date: 2020-09-17 Impact factor: 7.124
Authors: Robert Tamburro; Ann Pawluszka; Deborah Amey; Elyse Tomanio; R Whitney Coleman; Markita Suttle; Anne Eaton; Sue R Beers; Kevin A Van; Ruth Grosskreuz; Tessie W October; Mary Ann DiLiberto; Randi Willey; Stephanie Bisping; Ericka L Fink Journal: Pediatr Res Date: 2022-06-07 Impact factor: 3.953
Authors: Michael G Kahn; L Charles Bailey; Christopher B Forrest; Michael A Padula; Steven Hirschfeld Journal: Pediatrics Date: 2014-02-17 Impact factor: 7.124