Literature DB >> 29481108

Responsible practices for data sharing.

George Alter1, Richard Gonzalez2.   

Abstract

Research transparency, reproducibility, and data sharing uphold core principles of science at a time when the integrity of scientific research is being questioned. This article discusses how research data in psychology can be made accessible for reproducibility and reanalysis by describing practical ways to overcome barriers to data sharing. We examine key issues surrounding the sharing of data such as who owns research data, how to protect the confidentiality of the research participant, how to give appropriate credit to the data creator, how to deal with metadata and codebooks, how to address provenance, and other specifics such as versioning and file formats. The protection of research subjects is a fundamental obligation, and we explain frameworks and procedures designed to protect against the harms that may result from disclosure of confidential information. We also advocate greater recognition for data creators and the authors of program code used in the management and analysis of data. We argue that research data and program code are important scientific contributions that should be cited in the same way as publications. (PsycINFO Database Record (c) 2018 APA, all rights reserved).

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Mesh:

Year:  2018        PMID: 29481108      PMCID: PMC5967383          DOI: 10.1037/amp0000258

Source DB:  PubMed          Journal:  Am Psychol        ISSN: 0003-066X


  10 in total

1.  Social science. Promoting transparency in social science research.

Authors:  E Miguel; C Camerer; K Casey; J Cohen; K M Esterling; A Gerber; R Glennerster; D P Green; M Humphreys; G Imbens; D Laitin; T Madon; L Nelson; B A Nosek; M Petersen; R Sedlmayr; J P Simmons; U Simonsohn; M Van der Laan
Journal:  Science       Date:  2014-01-03       Impact factor: 47.728

Review 2.  Reforming biobank consent policy: a necessary move away from broad consent toward dynamic consent.

Authors:  Dorit T Stein; Sharon F Terry
Journal:  Genet Test Mol Biomarkers       Date:  2013-12

3.  Maintained Individual Data Distributed Likelihood Estimation (MIDDLE).

Authors:  Steven M Boker; Timothy R Brick; Joshua N Pritikin; Yang Wang; Timo von Oertzen; Donald Brown; John Lach; Ryne Estabrook; Michael D Hunter; Hermine H Maes; Michael C Neale
Journal:  Multivariate Behav Res       Date:  2015       Impact factor: 5.923

4.  SCIENTIFIC STANDARDS. Promoting an open research culture.

Authors:  B A Nosek; G Alter; G C Banks; D Borsboom; S D Bowman; S J Breckler; S Buck; C D Chambers; G Chin; G Christensen; M Contestabile; A Dafoe; E Eich; J Freese; R Glennerster; D Goroff; D P Green; B Hesse; M Humphreys; J Ishiyama; D Karlan; A Kraut; A Lupia; P Mabry; T A Madon; N Malhotra; E Mayo-Wilson; M McNutt; E Miguel; E Levy Paluck; U Simonsohn; C Soderberg; B A Spellman; J Turitto; G VandenBos; S Vazire; E J Wagenmakers; R Wilson; T Yarkoni
Journal:  Science       Date:  2015-06-26       Impact factor: 47.728

5.  The Belmont Report. Ethical principles and guidelines for the protection of human subjects of research.

Authors: 
Journal:  J Am Coll Dent       Date:  2014

Review 6.  Degrees of Freedom in Planning, Running, Analyzing, and Reporting Psychological Studies: A Checklist to Avoid p-Hacking.

Authors:  Jelte M Wicherts; Coosje L S Veldkamp; Hilde E M Augusteijn; Marjan Bakker; Robbie C M van Aert; Marcel A L M van Assen
Journal:  Front Psychol       Date:  2016-11-25

7.  The impact of the EU general data protection regulation on scientific research.

Authors:  Gauthier Chassang
Journal:  Ecancermedicalscience       Date:  2017-01-03

8.  PSYCHOLOGY. Estimating the reproducibility of psychological science.

Authors: 
Journal:  Science       Date:  2015-08-28       Impact factor: 47.728

9.  The FAIR Guiding Principles for scientific data management and stewardship.

Authors:  Mark D Wilkinson; Michel Dumontier; I Jsbrand Jan Aalbersberg; Gabrielle Appleton; Myles Axton; Arie Baak; Niklas Blomberg; Jan-Willem Boiten; Luiz Bonino da Silva Santos; Philip E Bourne; Jildau Bouwman; Anthony J Brookes; Tim Clark; Mercè Crosas; Ingrid Dillo; Olivier Dumon; Scott Edmunds; Chris T Evelo; Richard Finkers; Alejandra Gonzalez-Beltran; Alasdair J G Gray; Paul Groth; Carole Goble; Jeffrey S Grethe; Jaap Heringa; Peter A C 't Hoen; Rob Hooft; Tobias Kuhn; Ruben Kok; Joost Kok; Scott J Lusher; Maryann E Martone; Albert Mons; Abel L Packer; Bengt Persson; Philippe Rocca-Serra; Marco Roos; Rene van Schaik; Susanna-Assunta Sansone; Erik Schultes; Thierry Sengstag; Ted Slater; George Strawn; Morris A Swertz; Mark Thompson; Johan van der Lei; Erik van Mulligen; Jan Velterop; Andra Waagmeester; Peter Wittenburg; Katherine Wolstencroft; Jun Zhao; Barend Mons
Journal:  Sci Data       Date:  2016-03-15       Impact factor: 6.444

10.  The mPower study, Parkinson disease mobile data collected using ResearchKit.

Authors:  Brian M Bot; Christine Suver; Elias Chaibub Neto; Michael Kellen; Arno Klein; Christopher Bare; Megan Doerr; Abhishek Pratap; John Wilbanks; E Ray Dorsey; Stephen H Friend; Andrew D Trister
Journal:  Sci Data       Date:  2016-03-03       Impact factor: 6.444

  10 in total
  13 in total

1.  Translation of Digital Health Technologies to Advance Precision Medicine: Informing Regulatory Science.

Authors:  Joan E Adamo; Robert V Bienvenu Ii; Felipe Dolz; Michael Liebman; Wendy Nilsen; Scott J Steele
Journal:  Digit Biomark       Date:  2020-02-07

Review 2.  Seven steps toward more transparency in statistical practice.

Authors:  Eric-Jan Wagenmakers; Alexandra Sarafoglou; Sil Aarts; Casper Albers; Johannes Algermissen; Štěpán Bahník; Noah van Dongen; Rink Hoekstra; David Moreau; Don van Ravenzwaaij; Aljaž Sluga; Franziska Stanke; Jorge Tendeiro; Balazs Aczel
Journal:  Nat Hum Behav       Date:  2021-11-11

3.  Survey of Investigators About Sharing Human Research Data in the Neurosciences.

Authors:  Saskia Hendriks; Khara M Ramos; Christine Grady
Journal:  Neurology       Date:  2022-08-18       Impact factor: 11.800

4.  Open science practices for eating disorders research.

Authors:  Natasha L Burke; Guido K W Frank; Anja Hilbert; Thomas Hildebrandt; Kelly L Klump; Jennifer J Thomas; Tracey D Wade; B Timothy Walsh; Shirley B Wang; Ruth Striegel Weissman
Journal:  Int J Eat Disord       Date:  2021-09-23       Impact factor: 5.791

5.  Public attitudes towards sharing loyalty card data for academic health research: a qualitative study.

Authors:  Elizabeth H Dolan; Kate Shiells; James Goulding; Anya Skatova
Journal:  BMC Med Ethics       Date:  2022-06-07       Impact factor: 2.834

6.  The Data Tags Suite (DATS) model for discovering data access and use requirements.

Authors:  George Alter; Alejandra Gonzalez-Beltran; Lucila Ohno-Machado; Philippe Rocca-Serra
Journal:  Gigascience       Date:  2020-02-01       Impact factor: 6.524

7.  Biomedical Data Sharing Among Researchers: A Study from Jordan.

Authors:  Lina Al-Ebbini; Omar F Khabour; Karem H Alzoubi; Almuthanna K Alkaraki
Journal:  J Multidiscip Healthc       Date:  2020-11-23

8.  Open Science Within Pediatric Medical and Mental Health Systems: Practical Considerations for Behavioral Health Researchers.

Authors:  Robyn E Metcalfe
Journal:  Front Psychol       Date:  2022-03-03

9.  A Functional Model for Unifying Brain Computer Interface Terminology.

Authors:  Chuck Easttom; Luigi Bianchi; Davide Valeriani; Chang S Nam; Ali Hossaini; Dariusz Zapala; Avid Roman-Gonzalez; Avinash K Singh; Alberto Antonietti; Guillermo Sahonero-Alvarez; Pradeep Balachandran
Journal:  IEEE Open J Eng Med Biol       Date:  2021-02-05

Review 10.  Data sharing and privacy issues in neuroimaging research: Opportunities, obstacles, challenges, and monsters under the bed.

Authors:  Tonya White; Elisabet Blok; Vince D Calhoun
Journal:  Hum Brain Mapp       Date:  2020-07-04       Impact factor: 5.038

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