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Literature DB >> 24283583

Reforming biobank consent policy: a necessary move away from broad consent toward dynamic consent.

Dorit T Stein¹, Sharon F Terry.

Abstract

Mesh：

Year: 2013 PMID： 24283583 DOI： 10.1089/gtmb.2013.1550

Source DB: PubMed Journal: Genet Test Mol Biomarkers ISSN： 1945-0257

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20 in total

1. Ethical considerations in biobanks: how a public health ethics perspective sheds new light on old controversies.

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3. Testing an online, dynamic consent portal for large population biobank research.

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Review 5. Responsible practices for data sharing.

Authors: George Alter; Richard Gonzalez
Journal: Am Psychol Date: 2018 Feb-Mar

Review 6. Research participants' perceptions and views on consent for biobank research: a review of empirical data and ethical analysis.

Authors: Flavio D'Abramo; Jan Schildmann; Jochen Vollmann
Journal: BMC Med Ethics Date: 2015-09-09 Impact factor: 2.652

7. Emerging ethical issues regarding digital health data. On the World Medical Association Draft Declaration on Ethical Considerations Regarding Health Databases and Biobanks.

Authors: Christine Aicardi; Lorenzo Del Savio; Edward S Dove; Federica Lucivero; Niccolo Tempini; Barbara Prainsack
Journal: Croat Med J Date: 2016-04-28 Impact factor: 1.351