Teresa L Hagan1, Susan M Cohen2, Margaret Q Rosenzweig3, Kristin Zorn4, Clement A Stone5, Heidi S Donovan6. 1. Center for Psychiatric Oncology and Behavioral Sciences, Massachusetts General Hospital/Harvard Medical School, Boston, MA, USA. 2. Department of Health Promotion and Development, University of Pittsburgh School of Nursing, Pittsburgh, PA, USA. 3. Department of Acute and Tertiary Care, University of Pittsburgh School of Nursing, Pittsburgh, PA, USA. 4. Department of Obstetrics & Gynecology, University of Arkansas for Medical Sciences, Little Rock, AR, USA. 5. Department of Psychology in Education, University of Pittsburgh School of Education, Pittsburgh, PA, USA. 6. Department of Health & Community Systems, University of Pittsburgh School of Nursing, Pittsburgh, PA, USA.
Abstract
AIM: To develop and psychometrically test the validity of the Female Self-Advocacy in Cancer Survivorship Scale. BACKGROUND: Female cancer survivors need to self-advocate to overcome challenges associated with cancer yet no valid measure of self-advocacy exists. DESIGN: Instrument development. Mixed-mode cross-sectional survey design. PARTICIPANTS: We recruited adult females (18+ years; N = 317) with a history of invasive cancer from local and national tumour registries and advocacy organizations to complete online or paper questionnaires. METHODS: Between July 2014 - March 2015 to evaluate the construct validity based on evidence of the scale's: (1) internal structure consistent with the underlying model of self-advocacy; (2) sensitivity to differences between groups known to differ in self-advocacy skills; (3) relationships between self-advocacy and key potential predictors (openness and conscientiousness; information engagement; social support) and outcomes (symptom burden and healthcare utilization); (4) relationships between self-advocacy and related concepts (patient activation; self-advocacy within another patient population); and (5) relationships between self-advocacy and criterion measures. Analyses included an exploratory factor analysis, t tests, and bivariate correlations using validated, reliable measures for constructs. RESULTS: Evidence from all five hypotheses supported the construct validity of the Female Self-Advocacy in Cancer Survivorship Scale. The factor analysis confirmed the three underlying dimensions of self-advocacy resulting in a 20-item measure with strong internal consistency that explained almost half of response variance. CONCLUSION: The Female Self-Advocacy in Cancer Survivorship Scale is a valid, reliable measure of how well adult female cancer survivors can get their needs met in the face of adversity.
AIM: To develop and psychometrically test the validity of the Female Self-Advocacy in Cancer Survivorship Scale. BACKGROUND: Female cancer survivors need to self-advocate to overcome challenges associated with cancer yet no valid measure of self-advocacy exists. DESIGN: Instrument development. Mixed-mode cross-sectional survey design. PARTICIPANTS: We recruited adult females (18+ years; N = 317) with a history of invasive cancer from local and national tumour registries and advocacy organizations to complete online or paper questionnaires. METHODS: Between July 2014 - March 2015 to evaluate the construct validity based on evidence of the scale's: (1) internal structure consistent with the underlying model of self-advocacy; (2) sensitivity to differences between groups known to differ in self-advocacy skills; (3) relationships between self-advocacy and key potential predictors (openness and conscientiousness; information engagement; social support) and outcomes (symptom burden and healthcare utilization); (4) relationships between self-advocacy and related concepts (patient activation; self-advocacy within another patient population); and (5) relationships between self-advocacy and criterion measures. Analyses included an exploratory factor analysis, t tests, and bivariate correlations using validated, reliable measures for constructs. RESULTS: Evidence from all five hypotheses supported the construct validity of the Female Self-Advocacy in Cancer Survivorship Scale. The factor analysis confirmed the three underlying dimensions of self-advocacy resulting in a 20-item measure with strong internal consistency that explained almost half of response variance. CONCLUSION: The Female Self-Advocacy in Cancer Survivorship Scale is a valid, reliable measure of how well adult female cancer survivors can get their needs met in the face of adversity.
Authors: Hester Wessels; Alexander de Graeff; Klaske Wynia; Miriam de Heus; Cas L J J Kruitwagen; Gerda T G J Woltjer; Saskia C C M Teunissen; Emile E Voest Journal: Oncologist Date: 2010-05-27
Authors: Charles L Shapiro; Mary S McCabe; Karen L Syrjala; Debra Friedman; Linda A Jacobs; Patricia A Ganz; Lisa Diller; Marci Campell; Kathryn Orcena; Alfred C Marcus Journal: J Cancer Surviv Date: 2009-01-24 Impact factor: 4.442
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