Literature DB >> 28936235

Health Literacy and Atrial Fibrillation: Relevance and Future Directions for Patient-centred Care.

Konstantinos N Aronis1, Brittany Edgar2, Wendy Lin3, Maria Auxiliadora Parreiras Martins4, Michael K Paasche-Orlow5, Jared W Magnani6.   

Abstract

Atrial fibrillation (AF) is a common cardiac arrhythmia with significant clinical outcomes, and is associated with high medical and social costs. AF is complicated for patients because of its specialised terminology, long-term adherence, symptom monitoring, referral to specialty care, array of potential interventions and potential for adversity. Health literacy is a frequently under-recognised, yet fundamental, component towards successful care in AF. Health literacy is defined as the capacity to obtain, process and understand health information, and has had markedly limited study in AF. However, health literacy could contribute to how patients interpret symptoms, navigate care, and participate in treatment evaluation and decision-making. This review aims to summarise the clinical importance and essential relevance of health literacy in AF. We focus here on central aspects of AF care that are most related to self-care, including understanding the symptoms of AF, shared decision-making, adherence and anticoagulation for stroke prevention. We discuss opportunities to enhance AF care based on findings from the literature on health literacy, and identify important gaps. Our overall objective is to articulate the importance and relevance of integrating health literacy in the care of individuals with AF.

Entities:  

Keywords:  Atrial fibrillation; health literacy; patient-centred care; patients; prevention; risk factors

Year:  2017        PMID: 28936235      PMCID: PMC5603910          DOI: 10.15420/ecr.2017:2:2

Source DB:  PubMed          Journal:  Eur Cardiol        ISSN: 1758-3756


  41 in total

1.  Communicating with patients who cannot read.

Authors:  B D Weiss; C Coyne
Journal:  N Engl J Med       Date:  1997-07-24       Impact factor: 91.245

Review 2.  Shared decision making in atrial fibrillation: where we are and where we should be going.

Authors:  Luke Seaburg; Erik P Hess; Megan Coylewright; Henry H Ting; Christopher J McLeod; Victor M Montori
Journal:  Circulation       Date:  2014-02-11       Impact factor: 29.690

3.  The effect of progressive, reinforcing telephone education and counseling versus brief educational intervention on knowledge, self-care behaviors and heart failure symptoms.

Authors:  David W Baker; Darren A Dewalt; Dean Schillinger; Victoria Hawk; Bernice Ruo; Kirsten Bibbins-Domingo; Morris Weinberger; Aurelia Macabasco-O'Connell; Kathy L Grady; George M Holmes; Brian Erman; Kimberly A Broucksou; Michael Pignone
Journal:  J Card Fail       Date:  2011-07-23       Impact factor: 5.712

4.  Patient activation and 30-day post-discharge hospital utilization.

Authors:  Suzanne E Mitchell; Paula M Gardiner; Ekaterina Sadikova; Jessica M Martin; Brian W Jack; Judith H Hibbard; Michael K Paasche-Orlow
Journal:  J Gen Intern Med       Date:  2013-10-04       Impact factor: 5.128

5.  Validation of the AF-QoL, a disease-specific quality of life questionnaire for patients with atrial fibrillation.

Authors:  Fernando Arribas; José Miguel Ormaetxe; Rafael Peinado; Nuria Perulero; Patricia Ramírez; Xavier Badia
Journal:  Europace       Date:  2010-01-06       Impact factor: 5.214

6.  Effectiveness of the diabetes education and self management for ongoing and newly diagnosed (DESMOND) programme for people with newly diagnosed type 2 diabetes: cluster randomised controlled trial.

Authors:  M J Davies; S Heller; T C Skinner; M J Campbell; M E Carey; S Cradock; H M Dallosso; H Daly; Y Doherty; S Eaton; C Fox; L Oliver; K Rantell; G Rayman; K Khunti
Journal:  BMJ       Date:  2008-02-14

Review 7.  Educational and behavioural interventions for anticoagulant therapy in patients with atrial fibrillation.

Authors:  Danielle E Clarkesmith; Helen M Pattison; Deirdre A Lane
Journal:  Cochrane Database Syst Rev       Date:  2013-06-04

Review 8.  Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making.

Authors:  Natalie Joseph-Williams; Glyn Elwyn; Adrian Edwards
Journal:  Patient Educ Couns       Date:  2013-11-09

9.  Relationship between literacy, knowledge, self-care behaviors, and heart failure-related quality of life among patients with heart failure.

Authors:  Aurelia Macabasco-O'Connell; Darren A DeWalt; Kimberly A Broucksou; Victoria Hawk; David W Baker; Dean Schillinger; Bernice Ruo; Kirsten Bibbins-Domingo; George M Holmes; Brian Erman; Morris Weinberger; Michael Pignone
Journal:  J Gen Intern Med       Date:  2011-03-03       Impact factor: 5.128

10.  Development of a questionnaire to measure health-related quality of life (HRQoL) in patients with atrial fibrillation (AF-QoL).

Authors:  Xavier Badia; Fernando Arribas; Jose Miguel Ormaetxe; Rafael Peinado; Miguel Sainz de Los Terreros
Journal:  Health Qual Life Outcomes       Date:  2007-07-04       Impact factor: 3.186

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  13 in total

1.  Patient and Caregiver Perspectives on Terms Used to Describe Kidney Health.

Authors:  Allison Tong; Andrew S Levey; Kai-Uwe Eckardt; Samaya Anumudu; Cristina M Arce; Amanda Baumgart; Louese Dunn; Talia Gutman; Tess Harris; Liz Lightstone; Nicole Scholes-Robertson; Jenny I Shen; David C Wheeler; David M White; Martin Wilkie; Jonathan C Craig; Michel Jadoul; Wolfgang C Winkelmayer
Journal:  Clin J Am Soc Nephrol       Date:  2020-06-25       Impact factor: 8.237

Review 2.  Shared Decision Making in Cardiac Electrophysiology Procedures and Arrhythmia Management.

Authors:  Mina K Chung; Angela Fagerlin; Paul J Wang; Tinuola B Ajayi; Larry A Allen; Tina Baykaner; Emelia J Benjamin; Megan Branda; Kerri L Cavanaugh; Lin Y Chen; George H Crossley; Rebecca K Delaney; Lee L Eckhardt; Kathleen L Grady; Ian G Hargraves; Mellanie True Hills; Matthew M Kalscheur; Daniel B Kramer; Marleen Kunneman; Rachel Lampert; Aisha T Langford; Krystina B Lewis; Ying Lu; John M Mandrola; Kathryn Martinez; Daniel D Matlock; Sarah R McCarthy; Victor M Montori; Peter A Noseworthy; Kate M Orland; Elissa Ozanne; Rod Passman; Krishna Pundi; Dan M Roden; Elizabeth V Saarel; Monika M Schmidt; Samuel F Sears; Dawn Stacey; Randall S Stafford; Benjamin A Steinberg; Sojin Youn Wass; Jennifer M Wright
Journal:  Circ Arrhythm Electrophysiol       Date:  2021-12-06

3.  Design and rationale of the mobile health intervention for rural atrial fibrillation.

Authors:  Jared W Magnani; Danielle Ferry; Gretchen Swabe; Deborah Martin; Xirun Chen; Maria M Brooks; Everlyne Kimani; Michael K Paasche-Orlow; Stefán Ólafsson; Timothy Bickmore; Samar R El Khoudary
Journal:  Am Heart J       Date:  2022-06-09       Impact factor: 5.099

4.  Shared decision-making in atrial fibrillation: patient-reported involvement in treatment decisions.

Authors:  Fatima Ali-Ahmed; Karen Pieper; Rebecca North; Larry A Allen; Paul S Chan; Michael D Ezekowitz; Gregg C Fonarow; James V Freeman; Alan S Go; Bernard J Gersh; Peter R Kowey; Kenneth W Mahaffey; Gerald V Naccarelli; Sean D Pokorney; James A Reiffel; Daniel E Singer; Benjamin A Steinberg; Eric D Peterson; Jonathan P Piccini; Emily C O'Brien
Journal:  Eur Heart J Qual Care Clin Outcomes       Date:  2020-10-01

5.  Mind the gap: Deficits in fundamental disease-specific knowledge in atrial fibrillation.

Authors:  Anna R LaRosa; Alexandra M Pusateri; Andrew D Althouse; Abigail S Mathier; Utibe R Essien; Jared W Magnani
Journal:  Int J Cardiol       Date:  2019-06-20       Impact factor: 4.164

6.  Association of income and health-related quality of life in atrial fibrillation.

Authors:  Emily Guhl; Andrew Althouse; Michael Sharbaugh; Alexandra M Pusateri; Michael Paasche-Orlow; Jared W Magnani
Journal:  Open Heart       Date:  2019-04-11

Review 7.  Social determinants of atrial fibrillation.

Authors:  Utibe R Essien; Jelena Kornej; Amber E Johnson; Lucy B Schulson; Emelia J Benjamin; Jared W Magnani
Journal:  Nat Rev Cardiol       Date:  2021-06-02       Impact factor: 32.419

8.  Sociodemographic, behavioral, and clinical factors associated with low atrial fibrillation knowledge among older adults with atrial fibrillation: The SAGE-AF study.

Authors:  Colleen Sedney; Hawa O Abu; Katherine Trymbulak; Jordy Mehawej; Ziyue Wang; Molly E Waring; Jane Saczynski; David D McManus
Journal:  Patient Educ Couns       Date:  2020-07-15

9.  The Atrial Fibrillation Health Literacy Information Technology System: Pilot Assessment.

Authors:  Jared W Magnani; Courtney L Schlusser; Everlyne Kimani; Bruce L Rollman; Michael K Paasche-Orlow; Timothy W Bickmore
Journal:  JMIR Cardio       Date:  2017-12-12

Review 10.  Relation between health literacy, self-care and adherence to treatment with oral anticoagulants in adults: a narrative systematic review.

Authors:  Ana Cristina Cabellos-García; Antonio Martínez-Sabater; Enrique Castro-Sánchez; Mari Kangasniemi; Raul Juárez-Vela; Vicente Gea-Caballero
Journal:  BMC Public Health       Date:  2018-10-04       Impact factor: 3.295

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