Literature DB >> 21562227

Universal design of research: inclusion of persons with disabilities in mainstream biomedical studies.

Ann S Williams1, Shirley M Moore.   

Abstract

Although persons with disabilities of all kinds have as wide a range of health conditions as the general population, they are profoundly underrepresented in mainstream health research. Such underrepresentation might contribute to the health disparities in this population. We propose the concept of Universal Design of Research (UDR), which would promote routine inclusion of persons with disabilities in mainstream biomedical and psychosocial studies, without the need for adaptation or specialized design. Elements of UDR include the use of multisensory formats for recruiting participants, presenting research instruments and interventions, and data gathering from participants and should promote the inclusion of participants with a wide range of abilities, thus enhancing the generalizability of results.

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Mesh:

Year:  2011        PMID: 21562227      PMCID: PMC3320239          DOI: 10.1126/scitranslmed.3002133

Source DB:  PubMed          Journal:  Sci Transl Med        ISSN: 1946-6234            Impact factor:   17.956


  3 in total

1.  A comparison of dosing accuracy: visually impaired and sighted people using insulin pens.

Authors:  Ann S Williams; Patrick A Schnarrenberger
Journal:  J Diabetes Sci Technol       Date:  2010-05-01

2.  Prevalence and most common causes of disability among adults--United States, 2005.

Authors: 
Journal:  MMWR Morb Mortal Wkly Rep       Date:  2009-05-01       Impact factor: 17.586

3.  Universal design in diabetes care: an idea whose time has come.

Authors:  Ann S Williams
Journal:  Diabetes Educ       Date:  2009 Jan-Feb       Impact factor: 2.140

  3 in total
  20 in total

1.  Scientific reasons for including persons with disabilities in clinical and translational diabetes research.

Authors:  Shirley M Moore
Journal:  J Diabetes Sci Technol       Date:  2012-03-01

2.  Cardiac Arrest Outcomes in Children With Preexisting Neurobehavioral Impairment.

Authors:  James R Christensen; Beth S Slomine; Faye S Silverstein; Kent Page; Richard Holubkov; J Michael Dean; Frank W Moler
Journal:  Pediatr Crit Care Med       Date:  2019-06       Impact factor: 3.624

3.  Conducting Accessible Research: Including People With Disabilities in Public Health, Epidemiological, and Outcomes Studies.

Authors:  Dianne Rios; Susan Magasi; Catherine Novak; Mark Harniss
Journal:  Am J Public Health       Date:  2016-10-13       Impact factor: 9.308

4.  Parent ratings of ability to consent for clinical trials in fragile X syndrome.

Authors:  Donald B Bailey; Melissa Raspa; Anne Wheeler; Anne Edwards; Ellen Bishop; Carla Bann; David Borasky; Paul S Appelbaum
Journal:  J Empir Res Hum Res Ethics       Date:  2014-07       Impact factor: 1.742

5.  Analysis: linking laboratory data to human factors and inclusion of persons with disabilities in diabetes technology research.

Authors:  Ann S Williams
Journal:  J Diabetes Sci Technol       Date:  2011-09-01

Review 6.  Making Pain Research More Inclusive: Why and How.

Authors:  Mary R Janevic; Vani A Mathur; Staja Q Booker; Calia Morais; Samantha M Meints; Katherine A Yeager; Salimah H Meghani
Journal:  J Pain       Date:  2021-10-20       Impact factor: 5.383

7.  In Different Voices: The Views of People with Disabilities about Return of Results from Precision Medicine Research.

Authors:  Maya Sabatello; Yuan Zhang; Ying Chen; Paul S Appelbaum
Journal:  Public Health Genomics       Date:  2020-04-15       Impact factor: 2.000

8.  Disability inclusion in precision medicine research: a first national survey.

Authors:  Maya Sabatello; Ying Chen; Yuan Zhang; Paul S Appelbaum
Journal:  Genet Med       Date:  2019-03-22       Impact factor: 8.822

9.  Precision medicine, health disparities, and ethics: the case for disability inclusion.

Authors:  Maya Sabatello
Journal:  Genet Med       Date:  2017-08-03       Impact factor: 8.822

10.  Methods for translating evidence-based behavioral interventions for health-disparity communities.

Authors:  Anna Maria Nápoles; Jasmine Santoyo-Olsson; Anita L Stewart
Journal:  Prev Chronic Dis       Date:  2013-11-21       Impact factor: 2.830

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