Literature DB >> 28707139

Patients' Knowledge of Prenatal Screening for Trisomy 21.

Michal Sheinis1,2, Kira Bensimon1, Amanda Selk3,4,5.   

Abstract

This study's objective was to assess the knowledge of prenatal screening for Trisomy 21 in pregnant women in one institution in Canada. A cross-sectional survey measuring demographics, knowledge of screening, and health literacy, was administered to pregnant women. Of the 135 women who completed the survey, 74% had adequate knowledge of Trisomy 21 and associated screening procedures. Twenty-eight point one percent of women did not receive any counseling. Overall, 29.5% of women did not know that the screening test was optional and 10.2% of women underwent screening prior to having been counseled. Multigravidity (p < 0.05) and prior counseling (p < 0.001) were positively correlated with knowledge while first language other than English (p < 0.001) was negatively correlated with knowledge. Given these findings, an effort needs to be made on the part of health care providers to increase counseling rates to 100%, stressing the optional nature of the test to attain true informed consent.

Entities:  

Keywords:  Down syndrome; Genetic counseling; Health literacy; Informed consent; Patient education; Prenatal screening; Screening; Trisomy 21

Mesh:

Year:  2017        PMID: 28707139     DOI: 10.1007/s10897-017-0126-3

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  32 in total

1.  Standardized Procedural Practices of the Ontario Prenatal Screening Program for aneuploidies and open neural tube defects.

Authors:  Nathalie Lepage; Ayeshah Chaudhry; Danijela Konforte; Julie Shaw; Kika Veljkovic; Alan Dennis; Shamim Rashid; Sandra A Farrell
Journal:  Clin Biochem       Date:  2012-06-23       Impact factor: 3.281

2.  Informed decision-making in prenatal screening for Down's syndrome: what knowledge is relevant?

Authors:  H M H J D Schoonen; H M E van Agt; M L Essink-Bot; H I Wildschut; E A P Steegers; H J de Koning
Journal:  Patient Educ Couns       Date:  2010-08-25

3.  "This lifetime commitment": Public conceptions of disability and noninvasive prenatal genetic screening.

Authors:  Rosemary J Steinbach; Megan Allyse; Marsha Michie; Emily Y Liu; Mildred K Cho
Journal:  Am J Med Genet A       Date:  2015-11-14       Impact factor: 2.802

Review 4.  Care of Adults With Intellectual and Developmental Disabilities: Down Syndrome.

Authors:  Benjamin Wilson; Kyle Bradford Jones; Dean Weedon; Deborah Bilder
Journal:  FP Essent       Date:  2015-12

5.  Non-invasive prenatal testing: ethical issues explored.

Authors:  Antina de Jong; Wybo J Dondorp; Christine E M de Die-Smulders; Suzanne G M Frints; Guido M W R de Wert
Journal:  Eur J Hum Genet       Date:  2009-12-02       Impact factor: 4.246

6.  How do prospective parents prefer to receive information about prenatal screening and diagnostic testing?

Authors:  A M Willis; S K Smith; B Meiser; C Muller; S Lewis; J Halliday
Journal:  Prenat Diagn       Date:  2014-09-25       Impact factor: 3.050

7.  Do pregnant women in Greece make informed choices about antenatal screening for Down's syndrome? A questionnaire survey.

Authors:  Kleanthi Gourounti; Jane Sandall
Journal:  Midwifery       Date:  2007-02-20       Impact factor: 2.372

8.  Decision aids that support decisions about prenatal testing for Down syndrome: an environmental scan.

Authors:  Maria Esther Leiva Portocarrero; Mirjam M Garvelink; Maria Margarita Becerra Perez; Anik Giguère; Hubert Robitaille; Brenda J Wilson; François Rousseau; France Légaré
Journal:  BMC Med Inform Decis Mak       Date:  2015-09-24       Impact factor: 2.796

9.  The first 3,000 Non-Invasive Prenatal Tests (NIPT) with the Harmony test in Belgium and the Netherlands.

Authors:  P J Willems; H Dierickx; Es Vandenakker; D Bekedam; N Segers; K Deboulle; A Vereecken
Journal:  Facts Views Vis Obgyn       Date:  2014

10.  Development and validation of a measure of informed choice for women undergoing non-invasive prenatal testing for aneuploidy.

Authors:  Celine Lewis; Melissa Hill; Heather Skirton; Lyn S Chitty
Journal:  Eur J Hum Genet       Date:  2015-10-28       Impact factor: 4.246

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  3 in total

1.  Improving Patient Knowledge of Aneuploidy Testing Using an Educational Video: A Randomized Controlled Trial.

Authors:  Bethany M Mulla; Olivia H Chang; Anna M Modest; Michele R Hacker; Karen F Marchand; Karen E O'Brien
Journal:  Obstet Gynecol       Date:  2018-08       Impact factor: 7.661

Review 2.  Health Literacy in Pregnant Women: A Systematic Review.

Authors:  Farah Nawabi; Franziska Krebs; Vera Vennedey; Arim Shukri; Laura Lorenz; Stephanie Stock
Journal:  Int J Environ Res Public Health       Date:  2021-04-06       Impact factor: 3.390

3.  Decision-making for prenatal genetic screening: how will pregnant women navigate a growing number of aneuploidy and carrier screening options?

Authors:  Ruth M Farrell; Madelyn Pierce; Christina Collart; Meng Yao; Marissa Coleridge; Edward K Chien; Susannah S Rose; Mary Lintel; Uma Perni; Brownsyne Tucker Edmonds
Journal:  BMC Pregnancy Childbirth       Date:  2021-12-04       Impact factor: 3.007

  3 in total

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