Jochen René Thyrian1, Paula Winter2, Tilly Eichler2, Melanie Reimann2, Diana Wucherer2, Adina Dreier2, Bernhard Michalowsky2, Katja Zarm3, Wolfgang Hoffmann2,4. 1. German Center for Neurodegenerative Diseases, Ellernholzstr. 1-2, 17489, Greifswald, Germany. rene.thyrian@dzne.de. 2. German Center for Neurodegenerative Diseases, Ellernholzstr. 1-2, 17489, Greifswald, Germany. 3. German Center for Neurodegenerative Diseases, Gehlsheimer Str. 20, 18147, Rostock, Germany. 4. Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, Universitymedicine Greifswald, Ellernholzstr. 1-2, 17489, Greifswald, Germany.
Abstract
BACKGROUND: There is a lack of data describing caregiver burden in primary care where most (informal) caregiving is provided. OBJECTIVE: The aims of the paper are to describe the burden of people caring for persons with dementia (PWD) in primary care in multiple dimensions and to analyze factors associated with specific dimensions of caregiver burden. MATERIAL AND METHODS: Analyses are based on cross-sectional data of the general physician-based, cluster-randomized, controlled intervention trial DelpHi-MV (Dementia: life and person-centered help). A sample of n = 310 community dwelling PWD screened positive for dementia (DemTect < 9) and their caregivers provided sociodemographic and disease-related data, caregiver burden was assessed in 20 dimensions using the Berlin inventory on relatives' burden in dementia (Berliner Inventar zur Angehörigenbelastung - Demenz, BIZA-D). RESULTS: Depending on the dimension of objective burden due to caring, between 71.3 % and 92.3 % of the caregivers reported an objective burden. The average burden ranged from 3.68 to 9.81 (scale range 0-16). The subjective burden due to caring ranged from 0.1 to 1.1 (scale range 0-4). Between 22.6 and 51.6 % of our sample indicated burdens due to perceived conflicts. Logistic regression models associating caregiver burden with specifics of PWD and caregivers reached statistical significance for nearly all dimensions of the BIZA-D. Functional and cognitive impairment were statistically significant factors in 12 out of 20 and 5 out of 20 dimensions, respectively. CONCLUSION: This is first quantitative in-depth analysis of burden for caregiver of people screened positive for dementia in primary care in Germany. In general, caregiver burden was perceived as being low to moderate by caregivers and lower than reported from other settings.
RCT Entities:
BACKGROUND: There is a lack of data describing caregiver burden in primary care where most (informal) caregiving is provided. OBJECTIVE: The aims of the paper are to describe the burden of people caring for persons with dementia (PWD) in primary care in multiple dimensions and to analyze factors associated with specific dimensions of caregiver burden. MATERIAL AND METHODS: Analyses are based on cross-sectional data of the general physician-based, cluster-randomized, controlled intervention trial DelpHi-MV (Dementia: life and person-centered help). A sample of n = 310 community dwelling PWD screened positive for dementia (DemTect < 9) and their caregivers provided sociodemographic and disease-related data, caregiver burden was assessed in 20 dimensions using the Berlin inventory on relatives' burden in dementia (Berliner Inventar zur Angehörigenbelastung - Demenz, BIZA-D). RESULTS: Depending on the dimension of objective burden due to caring, between 71.3 % and 92.3 % of the caregivers reported an objective burden. The average burden ranged from 3.68 to 9.81 (scale range 0-16). The subjective burden due to caring ranged from 0.1 to 1.1 (scale range 0-4). Between 22.6 and 51.6 % of our sample indicated burdens due to perceived conflicts. Logistic regression models associating caregiver burden with specifics of PWD and caregivers reached statistical significance for nearly all dimensions of the BIZA-D. Functional and cognitive impairment were statistically significant factors in 12 out of 20 and 5 out of 20 dimensions, respectively. CONCLUSION: This is first quantitative in-depth analysis of burden for caregiver of people screened positive for dementia in primary care in Germany. In general, caregiver burden was perceived as being low to moderate by caregivers and lower than reported from other settings.
Authors: Jochen René Thyrian; Thomas Fiß; Adina Dreier; Georgia Böwing; Aniela Angelow; Sven Lueke; Stefan Teipel; Steffen Fleßa; Hans Jörgen Grabe; Harald Jürgen Freyberger; Wolfgang Hoffmann Journal: Trials Date: 2012-05-10 Impact factor: 2.279
Authors: Adina Dreier-Wolfgramm; Bernhard Michalowsky; Mary Guerriero Austrom; Marjolein A van der Marck; Steve Iliffe; Catherine Alder; Horst Christian Vollmar; Jochen René Thyrian; Diana Wucherer; Ina Zwingmann; Wolfgang Hoffmann Journal: Z Gerontol Geriatr Date: 2017-03-31 Impact factor: 1.281
Authors: Ina Zwingmann; Adina Dreier-Wolfgramm; Alexander Esser; Diana Wucherer; Jochen René Thyrian; Tilly Eichler; Anika Kaczynski; Jessica Monsees; Armin Keller; Johannes Hertel; Ingo Kilimann; Stefan Teipel; Bernhard Michalowsky; Wolfgang Hoffmann Journal: BMC Health Serv Res Date: 2020-02-14 Impact factor: 2.655
Authors: Jochen René Thyrian; Friederike Kracht; Angela Nikelski; Melanie Boekholt; Fanny Schumacher-Schönert; Anika Rädke; Bernhard Michalowsky; Horst Christian Vollmar; Wolfgang Hoffmann; Francisca S Rodriguez; Stefan H Kreisel Journal: BMC Geriatr Date: 2020-12-29 Impact factor: 3.921
Authors: Olga A Klein; Melanie Boekholt; Dilshad Afrin; Christina Dornquast; Adina Dreier-Wolfgramm; Armin Keller; Bernhard Michalowsky; Ina Zwingmann; Stefan Teipel; Jochen René Thyrian; Ingo Kilimann; Wolfgang Hoffmann Journal: Trials Date: 2021-06-16 Impact factor: 2.279