Literature DB >> 27429956

Promoting Culturally Respectful Cancer Education Through Digital Storytelling.

Melany Cueva1, Regina Kuhnley2, Anne Lanier3, Mark Dignan4, Laura Revels5, Nancy E Schoenberg6, Katie Cueva7.   

Abstract

Cancer is the leading cause of mortality among Alaska Native people. Over half of Alaska Native people live in rural communities where specially trained community members called Community Health Aides/Practitioners (CHA/Ps) provide health care. In response to CHA/Ps' expressed desire to learn more about cancer, four 5-day cancer education and digital storytelling courses were provided in 2014. Throughout each course, participants explored cancer information, reflected on their personal experiences, and envisioned how they might apply their knowledge within their communities. Each course participant also created a personal and authentic digital story, a methodology increasingly embraced by Indigenous communities as a way to combine storytelling traditions with modern technology to promote both individual and community health. Opportunities to learn of CHA/Ps' experiences with cancer and digital storytelling included a 3-page end-of-course written evaluation, a weekly story-showing log kept for 4 weeks post-course, a group teleconference held 1-2 weeks post-course, and a survey administered 6 months post-course. Participants described digital storytelling as a culturally respectful way to support cancer awareness and education. Participants described the process of creating digital stories as supporting knowledge acquisition, encouraging personal reflection, and sparking a desire to engage in cancer risk reduction activities for themselves and with their families and patients. As a result of creating a personalized digital story, CHA/Ps reported feeling differently about cancer, noting an increase in cancer knowledge and comfort to talk about cancer with clients and family. Indigenous digital stories have potential for broad use as a culturally appropriate health messaging tool.

Entities:  

Keywords:  Alaska Native; Indigenous methods; cancer education; community health workers; digital storytelling; health communication; health education; public health; storytelling

Year:  2016        PMID: 27429956      PMCID: PMC4943464          DOI: 10.18357/ijih111201616013

Source DB:  PubMed          Journal:  Int J Indig Health


  10 in total

1.  Alaska Native cancer survival.

Authors:  A P Lanier; P Holck; J Kelly; B Smith; T McEvoy
Journal:  Alaska Med       Date:  2001 Jul-Sep

2.  Integration of creative expression into community-based participatory research and health promotion with Native Americans.

Authors:  Norma Gray; Christina Oré de Boehm; Angela Farnsworth; Denise Wolf
Journal:  Fam Community Health       Date:  2010 Jul-Sep

3.  Digital storytelling: an emergent method for health promotion research and practice.

Authors:  Aline Gubrium
Journal:  Health Promot Pract       Date:  2009-04

Review 4.  Empowerment theory, research, and application.

Authors:  D D Perkins; M A Zimmerman
Journal:  Am J Community Psychol       Date:  1995-10

5.  Voices from the heart: the use of digital story telling in education.

Authors:  Jackie Matthews
Journal:  Community Pract       Date:  2014-01

Review 6.  Understanding personal narratives: an approach to practice.

Authors:  H Lea Gaydos
Journal:  J Adv Nurs       Date:  2005-02       Impact factor: 3.187

7.  Engaging Elements of Cancer-Related Digital Stories in Alaska.

Authors:  Melany Cueva; Regina Kuhnley; Laura Revels; Nancy E Schoenberg; Anne Lanier; Mark Dignan
Journal:  J Cancer Educ       Date:  2016-09       Impact factor: 2.037

8.  Learning about cancer has brightened my light: cancer education for Alaska Community Health Aides and Community Health Practitioners (CHA/Ps).

Authors:  Regina Kuhnley; Melany Cueva
Journal:  J Cancer Educ       Date:  2011-09       Impact factor: 2.037

9.  Promoting positive youth development and highlighting reasons for living in Northwest Alaska through digital storytelling.

Authors:  Lisa Wexler; Aline Gubrium; Megan Griffin; Gloria DiFulvio
Journal:  Health Promot Pract       Date:  2012-10-24

10.  Innovative primary care delivery in rural Alaska: a review of patient encounters seen by community health aides.

Authors:  Christine Golnick; Elvin Asay; Ellen Provost; Dabney Van Liere; Cora Bosshart; Jean Rounds-Riley; Katie Cueva; Thomas W Hennessy
Journal:  Int J Circumpolar Health       Date:  2012-06-29       Impact factor: 1.228

  10 in total
  3 in total

1.  Reflections of Hospice Staff Members About Educating Hospice Family Caregivers Through Telenovela.

Authors:  Dulce M Cruz-Oliver; Martha Abshire; Chakra Budhathoki; Debra Parker Oliver; Angelo Volandes; Thomas J Smith
Journal:  Am J Hosp Palliat Care       Date:  2020-07-08       Impact factor: 2.500

2.  Can digital stories go where palliative care research has never gone before? A descriptive qualitative study exploring the application of an emerging public health research method in an indigenous palliative care context.

Authors:  Lisa Williams; Merryn Gott; Tess Moeke-Maxwell; Stella Black; Shuchi Kothari; Sarina Pearson; Tessa Morgan; Matua Rawiri Wharemate; Whaea Whio Hansen
Journal:  BMC Palliat Care       Date:  2017-09-04       Impact factor: 3.234

3.  Digital storytelling in health professions education: a systematic review.

Authors:  Katherine A Moreau; Kaylee Eady; Lindsey Sikora; Tanya Horsley
Journal:  BMC Med Educ       Date:  2018-09-10       Impact factor: 2.463

  3 in total

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