Literature DB >> 26783591

Is Participating in Psychological Research a Benefit, Burden, or Both for Medically Ill Youth and Their Caregivers?.

Lori Wiener, Haven Battles, Sima Zadeh, Maryland Pao.   

Abstract

Entities:  

Mesh：

Year:  2015        PMID： 26783591      PMCID： PMC4721262     

Source DB:  PubMed          Journal:  IRB        ISSN： 0193-7758


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  21 in total

1.  Institutional review boards and social science research.

Authors:  Dennis M Maloney
Journal:  Hum Res Rep       Date:  2003-07

2.  Psychological and social risks of behavioral research.

Authors:  Susan M Labott; Timothy P Johnson
Journal:  IRB       Date:  2004 May-Jun

3.  Current psychotherapy research methodology applied to psychoanalysis : a feasibility study.

Authors:  S C Vaughan; R D Marshall; R A Mackinnon; S P Roose
Journal:  J Psychother Pract Res       Date:  1994

4.  Research in palliative care populations: ethical issues.

Authors:  L J Kristjanson; E J Hanson; L Balneaves
Journal:  J Palliat Care       Date:  1994       Impact factor: 2.250

5.  Assent in research: the voices of adolescents.

Authors:  Christine Grady; Lori Wiener; Emily Abdoler; Emily Trauernicht; Sima Zadeh; Douglas S Diekema; Benjamin S Wilfond; David Wendler
Journal:  J Adolesc Health       Date:  2014-03-14       Impact factor: 5.012

Review 6.  The risks and benefits of participating in trauma-focused research studies.

Authors:  Elana Newman; Danny G Kaloupek
Journal:  J Trauma Stress       Date:  2004-10

7.  Burden and benefit of psychosocial research at the end of life.

Authors:  Hayley Pessin; Michele Galietta; Christian J Nelson; Robert Brescia; Barry Rosenfeld; William Breitbart
Journal:  J Palliat Med       Date:  2008-05       Impact factor: 2.947

8.  Views of adolescents and parents on pediatric research without the potential for clinical benefit.

Authors:  David Wendler; Emily Abdoler; Lori Wiener; Christine Grady
Journal:  Pediatrics       Date:  2012-09-10       Impact factor: 7.124

9.  Brief report: Children's response to serious illness: perceptions of benefit and burden in a pediatric cancer population.

Authors:  Joseph M Currier; Susan Hermes; Sean Phipps
Journal:  J Pediatr Psychol       Date:  2009-04-02

10.  The effects of psychiatric and psychosocial interviews on children.

Authors:  W Reich; L Kaplan
Journal:  Compr Psychiatry       Date:  1994 Jan-Feb       Impact factor: 3.735
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  9 in total

1.  Conducting reproductive research during a new childhood cancer diagnosis: ethical considerations and impact on participants.

Authors:  Leena Nahata; Taylor L Morgan; Keagan G Lipak; Olivia E Clark; Nicholas D Yeager; Sarah H O'Brien; Stacy Whiteside; Anthony N Audino; Cynthia A Gerhardt; Gwendolyn P Quinn
Journal:  J Assist Reprod Genet       Date:  2019-08-01       Impact factor: 3.412

2.  The Benefits and Burdens of Pediatric Palliative Care and End-of-Life Research: A Systematic Review.

Authors:  Meaghann S Weaver; Kim Mooney-Doyle; Katherine Patterson Kelly; Kathleen Montgomery; Amy R Newman; Christine A Fortney; Cynthia J Bell; Jessica L Spruit; Melissa Kurtz Uveges; Lori Wiener; Cynthia M Schmidt; Vanessa N Madrigal; Pamela S Hinds
Journal:  J Palliat Med       Date:  2019-03-05       Impact factor: 2.947

3.  Evaluation of the burdens and benefits of participation in research by parents of children with life-limiting illnesses.

Authors:  Audrey Hopper; Stacey Crane
Journal:  Nurse Res       Date:  2019-07-18

4.  Participation in Online Research Examining End-of-Life Experiences: Is It Beneficial, Burdensome, or Both for Parents Bereaved by Childhood Cancer?

Authors:  Julia Tager; Haven Battles; Sima Zadeh Bedoya; Cynthia A Gerhardt; Tammi Young-Saleme; Lori Wiener
Journal:  J Pediatr Oncol Nurs       Date:  2019 May/Jun       Impact factor: 1.636

5.  Acceptability of Family-Centered Advanced Care Planning for Adolescents With HIV.

Authors:  Ronald H Dallas; Allison Kimmel; Megan L Wilkins; Sohail Rana; Ana Garcia; Yao I Cheng; Jichuan Wang; Maureen E Lyon
Journal:  Pediatrics       Date:  2016-11-01       Impact factor: 7.124

6.  Perceptions of participating in family-centered fertility research among adolescent and young adult males newly diagnosed with cancer: A qualitative study.

Authors:  Leena Nahata; Taylor L Morgan; Keagan G Lipak; Olivia E Clark; Nicholas D Yeager; Sarah H O'Brien; Stacy Whiteside; Anthony Audino; Gwendolyn P Quinn; Cynthia A Gerhardt
Journal:  Pediatr Blood Cancer       Date:  2019-08-12       Impact factor: 3.167

7.  Healthcare Professionals' Preferences and Perceived Barriers for Routine Assessment of Patient-Reported Outcomes in Pediatric Oncology Practice: Moving Toward International Processes of Change.

Authors:  Sasja A Schepers; Lotte Haverman; Sima Zadeh; Martha A Grootenhuis; Lori Wiener
Journal:  Pediatr Blood Cancer       Date:  2016-08-11       Impact factor: 3.167

8.  "It Can Be Hard But It's Not Bad": Three Questions to Solicit Caregiver Perceptions of Benefits and Burdens to Participating in Pediatric Palliative Care Research.

Authors:  Cheryl Reggio; Catriona Mowbray; Mia K Waldron; Adelaide L Rood; Gabriella Sibilia; Kim Mooney-Doyle; Pamela S Hinds
Journal:  J Palliat Med       Date:  2021-04-23       Impact factor: 2.947

9.  Online, Group-Based Psychological Support for Adolescent and Young Adult Cancer Survivors: Results from the Recapture Life Randomized Trial.

Authors:  Ursula M Sansom-Daly; Claire E Wakefield; Sarah J Ellis; Brittany C McGill; Mark W Donoghoe; Phyllis Butow; Richard A Bryant; Susan M Sawyer; Pandora Patterson; Antoinette Anazodo; Megan Plaster; Kate Thompson; Lucy Holland; Michael Osborn; Fiona Maguire; Catherine O'Dwyer; Richard De Abreu Lourenco; Richard J Cohn
Journal:  Cancers (Basel)       Date:  2021-05-18       Impact factor: 6.639
  9 in total

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