Literature DB >> 26572660

Trajectories, Long-Term Outcomes and Family Experiences of 76 Adults with Autism Spectrum Disorder.

Brigitte Chamak1, Béatrice Bonniau2.   

Abstract

The aim of this retrospective study was to retrace the trajectories and long-term outcomes of individuals with autism in France, and to explore the family experiences. Data obtained from parents enables us to follow the trajectories of 76 adults. Two-thirds of adults with severe autism had a very poor outcome. Those with moderate autism had a better outcome. In adulthood, the majority were in residential accommodation. None were living independently. The trajectories of people with Asperger syndrome or high-functioning autism were more positive since all of them attended school for a long time and some went to university. All of them had a good outcome but they remained dependent on aging parents who had few available supports.

Entities:  

Keywords:  Adults; Asperger syndrome; Autism; Outcome; Trajectory

Mesh:

Year:  2016        PMID: 26572660     DOI: 10.1007/s10803-015-2656-6

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  39 in total

Review 1.  Trajectory of development in adolescents and adults with autism.

Authors:  Marsha Mailick Seltzer; Paul Shattuck; Leonard Abbeduto; Jan S Greenberg
Journal:  Ment Retard Dev Disabil Res Rev       Date:  2004

2.  The autism diagnostic experiences of French parents.

Authors:  Brigitte Chamak; Béatrice Bonniau; Lila Oudaya; Alain Ehrenberg
Journal:  Autism       Date:  2010-09-27

3.  Asperger syndrome and autism: a comparative longitudinal follow-up study more than 5 years after original diagnosis.

Authors:  Mats Cederlund; Bibbi Hagberg; Eva Billstedt; I Carina Gillberg; Christopher Gillberg
Journal:  J Autism Dev Disord       Date:  2007-03-06

4.  Brief report: the medical care of adults with autism spectrum disorders: identifying the needs.

Authors:  Mary Beth Bruder; Gerard Kerins; Cynthia Mazzarella; Jessica Sims; Neil Stein
Journal:  J Autism Dev Disord       Date:  2012-11

5.  Six developmental trajectories characterize children with autism.

Authors:  Christine Fountain; Alix S Winter; Peter S Bearman
Journal:  Pediatrics       Date:  2012-04-02       Impact factor: 7.124

Review 6.  Early identification and early intervention in autism spectrum disorders: accurate and effective?

Authors:  Stephen Camarata
Journal:  Int J Speech Lang Pathol       Date:  2014-02       Impact factor: 2.484

7.  Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism.

Authors:  Richard P Hastings; Hanna Kovshoff; Nicholas J Ward; Francesca degli Espinosa; Tony Brown; Bob Remington
Journal:  J Autism Dev Disord       Date:  2005-10

8.  Outcome of young children with autism: does the amount of intervention influence developmental trajectories?

Authors:  Céline Darrou; René Pry; Eric Pernon; Cécile Michelon; Charles Aussilloux; Amaria Baghdadli
Journal:  Autism       Date:  2010-11

9.  The health and social care needs of family carers supporting adults with autistic spectrum disorders.

Authors:  Dougal Julian Hare; Catherine Pratt; Mark Burton; Jo Bromley; Eric Emerson
Journal:  Autism       Date:  2004-12

10.  Psychosocial functioning in a group of Swedish adults with Asperger syndrome or high-functioning autism.

Authors:  I Engström; L Ekström; B Emilsson
Journal:  Autism       Date:  2003-03
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  12 in total

1.  A Snapshot of Social Support Networks Among Parental Caregivers of Adults with Autism.

Authors:  Christina N Marsack-Topolewski
Journal:  J Autism Dev Disord       Date:  2020-04

2.  Mediating Effects of Social Support on Quality of Life for Parents of Adults with Autism.

Authors:  Christina N Marsack; Preethy S Samuel
Journal:  J Autism Dev Disord       Date:  2017-08

3.  Work, living, and the pursuit of happiness: Vocational and psychosocial outcomes for young adults with autism.

Authors:  Catherine Lord; James B McCauley; Lauren A Pepa; Marisela Huerta; Andrew Pickles
Journal:  Autism       Date:  2020-05-20

4.  Mid-life social outcomes for a population-based sample of adults with ASD.

Authors:  Megan Farley; Kristina J Cottle; Deborah Bilder; Joseph Viskochil; Hilary Coon; William McMahon
Journal:  Autism Res       Date:  2017-12-20       Impact factor: 5.216

5.  Social network typology and health among parents of children with developmental disabilities: Results from a national study of midlife adults.

Authors:  Robert S Dembo; Nick Huntington; Monika Mitra; Abby E Rudolph; Margie E Lachman; Marsha R Mailick
Journal:  Soc Sci Med       Date:  2021-11-30       Impact factor: 4.634

6.  A developmental and sequenced one-to-one educational intervention (DS1-EI) for autism spectrum disorder and intellectual disability: A three-year randomized, single-blind controlled trial.

Authors:  Catherine Saint-Georges; Maryse Pagnier; Zeineb Ghattassi; Annick Hubert-Barthelemy; Antoine Tanet; Marie-Noëlle Clément; François Soumille; Graciela C Crespin; Hugues Pellerin; David Cohen
Journal:  EClinicalMedicine       Date:  2020-09-09

7.  Sensory Responsiveness Is Linked With Communication in Infant Siblings of Children With and Without Autism.

Authors:  Jacob I Feldman; Sweeya Raj; Sarah M Bowman; Pooja Santapuram; Alexandra J Golden; Claire Daly; Kacie Dunham; Evan Suzman; Ashley E Augustine; Varsha Garla; Aine Muhumuza; Carissa J Cascio; Kathryn L Williams; Anne V Kirby; Bahar Keceli-Kaysili; Tiffany G Woynaroski
Journal:  J Speech Lang Hear Res       Date:  2021-05-18       Impact factor: 2.297

8.  The importance of home: Satisfaction with accommodation, neighborhood, and life in adults with autism.

Authors:  Anke M Scheeren; Patricia Howlin; Meike Bartels; Lydia Krabbendam; Sander Begeer
Journal:  Autism Res       Date:  2021-12-15       Impact factor: 4.633

9.  Developmental and sequenced one-to-one educational intervention (DS1-EI) for autism spectrum disorder and intellectual disability: a two-year interim report of a randomized single-blind multicenter controlled trial.

Authors:  Antoine Tanet; Annick Hubert-Barthelemy; Marie-Noëlle Clément; François Soumille; Graciela C Crespin; Hugues Pellerin; François-André Allaert; David Cohen; Catherine Saint-Georges
Journal:  BMC Pediatr       Date:  2020-05-29       Impact factor: 2.125

10.  The long-term outcomes of a cohort of adolescents and adults from Greece with autism spectrum disorder.

Authors:  Isaia Sevaslidou; Christina Chatzidimitriou; Grigoris Abatzoglou
Journal:  Ann Gen Psychiatry       Date:  2019-11-16       Impact factor: 3.455

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