Literature DB >> 28527098

Mediating Effects of Social Support on Quality of Life for Parents of Adults with Autism.

Christina N Marsack1, Preethy S Samuel2.   

Abstract

The aim of this study was to examine the mediating effect of formal and informal social support on the relationship of caregiver burden and quality of life (QOL), using a sample of 320 parents (aged 50 or older) of adult children with autism spectrum disorder (ASD). Multiple linear regression and mediation analyses indicated that caregiver burden had a negative impact on QOL and that informal social support partially mediated the relationship between caregiver burden and parents' QOL. Formal social support did not mediate the relationship between caregiver burden and QOL. The findings underscored the need to support aging parents of adult children with ASD through enhancing their informal social support networks.

Entities:  

Keywords:  Adults with autism spectrum disorders; Caregiver burden; Formal social support; Informal social support; Parents; Quality of life

Mesh:

Year:  2017        PMID: 28527098     DOI: 10.1007/s10803-017-3157-6

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  39 in total

1.  Social support and well-being at mid-life among mothers of adolescents and adults with autism spectrum disorders.

Authors:  Leann E Smith; Jan S Greenberg; Marsha Mailick Seltzer
Journal:  J Autism Dev Disord       Date:  2012-09

2.  A short social support measure for patients recovering from myocardial infarction: the ENRICHD Social Support Inventory.

Authors:  Pamela H Mitchell; Lynda Powell; James Blumenthal; Jennifer Norten; Gail Ironson; Carol Rogers Pitula; Erika Sivarajan Froelicher; Susan Czajkowski; Marston Youngblood; Marc Huber; Lisa F Berkman
Journal:  J Cardiopulm Rehabil       Date:  2003 Nov-Dec       Impact factor: 2.081

3.  Religiosity, spirituality, and socioemotional functioning in mothers of children with autism spectrum disorder.

Authors:  Naomi V Ekas; Thomas L Whitman; Carolyn Shivers
Journal:  J Autism Dev Disord       Date:  2008-12-12

4.  Application of a multidimensional caregiver burden inventory.

Authors:  M Novak; C Guest
Journal:  Gerontologist       Date:  1989-12

5.  Individual, parent and social-environmental correlates of caregiving experiences among parents of adults with autism spectrum disorder.

Authors:  M Burke; T Heller
Journal:  J Intellect Disabil Res       Date:  2016-05

6.  Access to care for autism-related services.

Authors:  Kathleen C Thomas; Alan R Ellis; Carolyn McLaurin; Julie Daniels; Joseph P Morrissey
Journal:  J Autism Dev Disord       Date:  2007-03-19

Review 7.  Adults with autism spectrum disorders.

Authors:  Patricia Howlin; Philippa Moss
Journal:  Can J Psychiatry       Date:  2012-05       Impact factor: 4.356

8.  Supporting parents of youths with intellectual disabilities and psychopathology.

Authors:  J C H Douma; M C Dekker; H M Koot
Journal:  J Intellect Disabil Res       Date:  2006-08

9.  Understanding the Experience of Stigma for Parents of Children with Autism Spectrum Disorder and the Role Stigma Plays in Families' Lives.

Authors:  Sydney H Kinnear; Bruce G Link; Michelle S Ballan; Ruth L Fischbach
Journal:  J Autism Dev Disord       Date:  2016-03

Review 10.  Rural Trends in Diagnosis and Services for Autism Spectrum Disorder.

Authors:  Ligia Antezana; Angela Scarpa; Andrew Valdespino; Jordan Albright; John A Richey
Journal:  Front Psychol       Date:  2017-04-20
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  10 in total

1.  A Snapshot of Social Support Networks Among Parental Caregivers of Adults with Autism.

Authors:  Christina N Marsack-Topolewski
Journal:  J Autism Dev Disord       Date:  2020-04

2.  Childhood Caregiving Roles, Perceptions of Benefits, and Future Caregiving Intentions Among Typically Developing Adult Siblings of Individuals with Autism Spectrum Disorder.

Authors:  Amy K Nuttall; Ben Coberly; Sara J Diesel
Journal:  J Autism Dev Disord       Date:  2018-04

3.  Social support and family quality of life in Chinese families of children with autism spectrum disorder: the mediating role of family cohesion and adaptability.

Authors:  Xianmei Lei; Jiří Kantor
Journal:  Int J Dev Disabil       Date:  2020-08-12

4.  Feelings of Loneliness and Social Dissatisfaction in Siblings of Children with Autism Spectrum Disorders: The Role of Birth Order and Perceived Social Support.

Authors:  Evangelia Koukouriki; Evangelini Athanasopoulou; Elias Andreoulakis
Journal:  J Autism Dev Disord       Date:  2021-11-05

5.  Inclusion, Exclusion and Isolation of Autistic People: Community Attitudes and Autistic People's Experiences.

Authors:  Sandra C Jones; Chloe S Gordon; Muhammad Akram; Nicole Murphy; Fiona Sharkie
Journal:  J Autism Dev Disord       Date:  2021-04-21

6.  Empirical evaluation of the association between daily living skills of adults with autism and parental caregiver burden.

Authors:  Christina N Marsack-Topolewski; Preethy Sarah Samuel; Wassim Tarraf
Journal:  PLoS One       Date:  2021-01-05       Impact factor: 3.240

7.  Parenting Children with Autism Spectrum Disorder during Crises: Differential Responses between the Financial and the COVID-19 Pandemic Crisis.

Authors:  Katerina Papanikolaou; Vassiliki Ntre; Ioanna-Maria Gertsou; Evdokia Tagkouli; Chara Tzavara; Artemios Pehlivanidis; Gerasimos Kolaitis
Journal:  J Clin Med       Date:  2022-02-25       Impact factor: 4.241

8.  Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum.

Authors:  Marisse T Sonido; Ye In Hwang; Preeyaporn Srasuebkul; Julian N Trollor; Samuel R C Arnold
Journal:  J Autism Dev Disord       Date:  2021-07-12

9.  Mental Health and Resilient Coping in Caregivers of Autistic Individuals during the COVID-19 Pandemic: Findings from the Families Facing COVID Study.

Authors:  Kelsey A Friesen; Jonathan A Weiss; Stephanie J Howe; Connor M Kerns; Carly A McMorris
Journal:  J Autism Dev Disord       Date:  2021-07-08

10.  Cross-Cultural Revision and Psychometric Properties of the Chinese Version of the Autism Spectrum Rating Scale (2-5 Years).

Authors:  Hao Zhou; Chunpei Li; Xuerong Luo; Lijie Wu; Yi Huang; Lan Zhang; Xiaobing Zou; Xiu Xu; Yong-Hui Jiang; Weili Yan; Yi Wang
Journal:  Front Neurol       Date:  2018-06-27       Impact factor: 4.003

  10 in total

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