Literature DB >> 29266823

Mid-life social outcomes for a population-based sample of adults with ASD.

Megan Farley1, Kristina J Cottle2, Deborah Bilder2, Joseph Viskochil2, Hilary Coon2, William McMahon2.   

Abstract

Adults with autism spectrum disorders (ASD) fall short of social outcomes of non-ASD peers in mid-life, as documented by currently published research. The aim of the current study was to extend what is known about social functioning, employment, independent living, and use of social services by examining details of the current life status for a population-based sample of adults with ASD (mean age = 35.5 years, range = 22.2-51.4). We collected outcome data via direct assessment and informant report for 169 individuals. Three-fourths of the sample had cognitive abilities in the intellectually disabled range. Social functioning outcomes, as a single measure, mirror those reported previously for other samples, including samples with a high proportion of individuals with normal range intellectual abilities, with 20% achieving the most independent outcomes and 46% requiring high levels of support across most life areas. Participant subgroups who achieved maximal outcomes represented a range of social and intellectual abilities for several outcome metrics. Participants used high levels of public and private supports, yet specific areas of clear, unmet need were also identified. Autism Res 2018, 11: 142-152.
© 2017 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: This paper describes the social functioning outcomes for 169 adults with autism spectrum disorders in mid-life. Adult participants spanned the full range of functional and cognitive ability levels, with over 75% functioning in the cognitively impaired range. While summary descriptions of outcomes for this sample were similar to those reported for other groups of adults, this report provides detailed information regarding employment outcomes, social relationships, leisure activities, participation in the community, residential situations, public service use, and involvement with law enforcement. © 2017 International Society for Autism Research, Wiley Periodicals, Inc.

Entities:  

Keywords:  adult; autism spectrum disorder; employment; housing; legal; leisure; longitudinal; outcome; relationships; transportation

Mesh:

Year:  2017        PMID: 29266823      PMCID: PMC5924705          DOI: 10.1002/aur.1897

Source DB:  PubMed          Journal:  Autism Res        ISSN: 1939-3806            Impact factor:   5.216


  39 in total

1.  Quality of life in high-functioning adults with autism spectrum disorder: The predictive value of disability and support characteristics.

Authors:  J O Renty; Herbert Roeyers
Journal:  Autism       Date:  2006-09

2.  Asperger syndrome and autism: a comparative longitudinal follow-up study more than 5 years after original diagnosis.

Authors:  Mats Cederlund; Bibbi Hagberg; Eva Billstedt; I Carina Gillberg; Christopher Gillberg
Journal:  J Autism Dev Disord       Date:  2007-03-06

3.  Beyond childhood: psychiatric comorbidities and social background of adults with Asperger syndrome.

Authors:  Mandy Roy; Vanessa Prox-Vagedes; Martin D Ohlmeier; Wolfgang Dillo
Journal:  Psychiatr Danub       Date:  2015-03       Impact factor: 1.063

Review 4.  Adults with autism spectrum disorders.

Authors:  Patricia Howlin; Philippa Moss
Journal:  Can J Psychiatry       Date:  2012-05       Impact factor: 4.356

5.  Course of behavioral change in autism: a retrospective study of high-IQ adolescents and adults.

Authors:  J Piven; J Harper; P Palmer; S Arndt
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  1996-04       Impact factor: 8.829

6.  Autism spectrum disorder reclassified: a second look at the 1980s Utah/UCLA Autism Epidemiologic Study.

Authors:  Judith S Miller; Deborah Bilder; Megan Farley; Hilary Coon; Judith Pinborough-Zimmerman; William Jenson; Catherine E Rice; Eric Fombonne; Carmen B Pingree; Edward Ritvo; Riva-Ariella Ritvo; William M McMahon
Journal:  J Autism Dev Disord       Date:  2013-01

7.  Outcomes in adults with autism spectrum disorders: a historical perspective.

Authors:  Natalie A Henninger; Julie Lounds Taylor
Journal:  Autism       Date:  2012-08-21

8.  A follow-up study of high-functioning autistic children.

Authors:  P Szatmari; G Bartolucci; R Bremner; S Bond; S Rich
Journal:  J Autism Dev Disord       Date:  1989-06

9.  Psychosocial functioning in a group of Swedish adults with Asperger syndrome or high-functioning autism.

Authors:  I Engström; L Ekström; B Emilsson
Journal:  Autism       Date:  2003-03

10.  Antipsychotic Use and Metabolic Monitoring in Individuals with Developmental Disabilities Served in a Medicaid Medical Home.

Authors:  Lisa M Ruiz; Mackenzie Damron; Kyle B Jones; Dean Weedon; Paul S Carbone; Amanda V Bakian; Deborah A Bilder
Journal:  J Autism Dev Disord       Date:  2016-06
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  16 in total

Review 1.  Autism Spectrum Disorder and Transition-Aged Youth.

Authors:  Amanda E Bennett; Judith S Miller; Natalie Stollon; Raghuram Prasad; Nathan J Blum
Journal:  Curr Psychiatry Rep       Date:  2018-09-21       Impact factor: 5.285

Review 2.  Women and Autism Spectrum Disorder: Diagnosis and Implications for Treatment of Adolescents and Adults.

Authors:  Renée M Green; Alyssa M Travers; Yamini Howe; Christopher J McDougle
Journal:  Curr Psychiatry Rep       Date:  2019-03-09       Impact factor: 5.285

3.  Meeting FACES: Preliminary Findings from a Community Workshop for Minority Parents of Children with Autism in Central North Carolina.

Authors:  Jamie N Pearson; Amanda L Traficante; Lauren M Denny; Kayla Malone; Evadine Codd
Journal:  J Autism Dev Disord       Date:  2020-01

4.  Association between autistic traits and binge drinking: Findings from Japan.

Authors:  Andrew Stickley; Aya Shirama; Yoko Kamio; Hidetoshi Takahashi; Takuma Inagawa; Aya Saito; Tomiki Sumiyoshi
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2022-05-24       Impact factor: 4.328

5.  Evidence of partner similarity for autistic traits, systemizing, and theory of mind via facial expressions.

Authors:  Gareth Richards; Simon Baron-Cohen; Varun Warrier; Ben Mellor; Jessica Davies; Laura Gee; John Galvin
Journal:  Sci Rep       Date:  2022-05-19       Impact factor: 4.996

6.  Incorporating Preference Assessment into Transition Planning for People with Autism Spectrum Disorder.

Authors:  Christopher A Tullis; Rachel L Seaman-Tullis
Journal:  Behav Anal Pract       Date:  2019-05-01

7.  "I wouldn't know where to start": Perspectives from clinicians, agency leaders, and autistic adults on improving community mental health services for autistic adults.

Authors:  Brenna B Maddox; Samantha Crabbe; Rinad S Beidas; Lauren Brookman-Frazee; Carolyn C Cannuscio; Judith S Miller; Christina Nicolaidis; David S Mandell
Journal:  Autism       Date:  2019-11-01

8.  "They don't have a good life if we keep thinking that they're doing it on purpose!": Teachers' Perspectives on the Well-Being of Students with Autism.

Authors:  Joanne Danker; Iva Strnadová; Therese Marie Cumming
Journal:  J Autism Dev Disord       Date:  2019-07

9.  Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population.

Authors:  Wei Song; Lindsay Shea; Stacy L Nonnemacher; Eugene Brusilovskiy; Greg Townley; Mark S Salzer
Journal:  J Autism Dev Disord       Date:  2021-05-09

Review 10.  Services for Adults With Autism Spectrum Disorder: a Systems Perspective.

Authors:  Paul T Shattuck; Tamara Garfield; Anne M Roux; Jessica E Rast; Kristy Anderson; Elizabeth McGhee Hassrick; Alice Kuo
Journal:  Curr Psychiatry Rep       Date:  2020-02-05       Impact factor: 5.285

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