Literature DB >> 15556960

The health and social care needs of family carers supporting adults with autistic spectrum disorders.

Dougal Julian Hare1, Catherine Pratt, Mark Burton, Jo Bromley, Eric Emerson.   

Abstract

The families of 26 adults with autistic spectrum disorders (ASDs) who either lived at home or maintained close contact with their families were interviewed about their social and psychological needs related to caring for the person with ASD. In contrast to previous studies of familial carers of children with ASDs, a strong association between parental emotional distress and unmet need was found. Parents also reported a need for more autism-specific intervention and support for adults with ASDs. The study illustrates the continuing and underreported role of families in supporting adults with ASDs.

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Year:  2004        PMID: 15556960     DOI: 10.1177/1362361304047225

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  14 in total

1.  Trajectories, Long-Term Outcomes and Family Experiences of 76 Adults with Autism Spectrum Disorder.

Authors:  Brigitte Chamak; Béatrice Bonniau
Journal:  J Autism Dev Disord       Date:  2016-03

2.  Comparative study on self-perceived health of parents of children with autism spectrum disorders and parents of non-disabled children in Croatia.

Authors:  Tomislav Benjak; Gorka Vuletić Mavrinac; Ivana Pavić Simetin
Journal:  Croat Med J       Date:  2009-08       Impact factor: 1.351

3.  Service and treatment use among children diagnosed with autism spectrum disorders.

Authors:  Benjamin Zablotsky; Beverly A Pringle; Lisa J Colpe; Michael D Kogan; Catherine Rice; Stephen J Blumberg
Journal:  J Dev Behav Pediatr       Date:  2015 Feb-Mar       Impact factor: 2.225

4.  The association between spirituality and depression in parents caring for children with developmental disabilities: social support and/or last resort.

Authors:  Stephen Gallagher; Anna C Phillips; Helen Lee; Douglas Carroll
Journal:  J Relig Health       Date:  2015-02

5.  Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults.

Authors:  Renske Herrema; Deborah Garland; Malcolm Osborne; Mark Freeston; Emma Honey; Jacqui Rodgers
Journal:  J Autism Dev Disord       Date:  2017-11

6.  Access to care for autism-related services.

Authors:  Kathleen C Thomas; Alan R Ellis; Carolyn McLaurin; Julie Daniels; Joseph P Morrissey
Journal:  J Autism Dev Disord       Date:  2007-03-19

7.  Childhood Caregiving Roles, Perceptions of Benefits, and Future Caregiving Intentions Among Typically Developing Adult Siblings of Individuals with Autism Spectrum Disorder.

Authors:  Amy K Nuttall; Ben Coberly; Sara J Diesel
Journal:  J Autism Dev Disord       Date:  2018-04

8.  Frequency and correlates of service access among youth with autism transitioning to adulthood.

Authors:  Julie Lounds Taylor; Natalie A Henninger
Journal:  J Autism Dev Disord       Date:  2015-01

Review 9.  Diagnosis and treatment of aggression in individuals with developmental disabilities.

Authors:  Diana J Antonacci; Crystal Manuel; Ervin Davis
Journal:  Psychiatr Q       Date:  2008-08-23

10.  Of mice and monkeys: using non-human primate models to bridge mouse- and human-based investigations of autism spectrum disorders.

Authors:  Karli K Watson; Michael L Platt
Journal:  J Neurodev Disord       Date:  2012-07-30       Impact factor: 4.025

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