Literature DB >> 31848797

A Snapshot of Social Support Networks Among Parental Caregivers of Adults with Autism.

Christina N Marsack-Topolewski1.   

Abstract

This study provided a description of types and dimensions of informal and formal social support among aging parental caregivers of adult children diagnosed with autism spectrum disorder (ASD). Parents participated in a web-based survey regarding use of and satisfaction with social support services for parents or their adult children. Results indicated that many parents participated in autism support groups (27.5%), with psychiatric services (48.8%), counseling (40.6%), and financial assistance (39.7%) the most commonly used formal social supports. Emotional support (88.8%) and informational support (67.5%) were the most common informal social supports used. Professionals who are working with parental caregivers and their adult children diagnosed with ASD should be aware of available social support services to help them find needed services.

Entities:  

Keywords:  Adults with autism; Aging parental caregivers; Caregiver burden; Formal social support; Informal social support

Mesh:

Year:  2020        PMID: 31848797     DOI: 10.1007/s10803-019-04285-6

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  34 in total

1.  Social support and well-being at mid-life among mothers of adolescents and adults with autism spectrum disorders.

Authors:  Leann E Smith; Jan S Greenberg; Marsha Mailick Seltzer
Journal:  J Autism Dev Disord       Date:  2012-09

2.  A short social support measure for patients recovering from myocardial infarction: the ENRICHD Social Support Inventory.

Authors:  Pamela H Mitchell; Lynda Powell; James Blumenthal; Jennifer Norten; Gail Ironson; Carol Rogers Pitula; Erika Sivarajan Froelicher; Susan Czajkowski; Marston Youngblood; Marc Huber; Lisa F Berkman
Journal:  J Cardiopulm Rehabil       Date:  2003 Nov-Dec       Impact factor: 2.081

3.  The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments.

Authors:  C W Given; B Given; M Stommel; C Collins; S King; S Franklin
Journal:  Res Nurs Health       Date:  1992-08       Impact factor: 2.228

4.  Changes in prevalence of parent-reported autism spectrum disorder in school-aged U.S. children: 2007 to 2011-2012.

Authors:  Stephen J Blumberg; Matthew D Bramlett; Michael D Kogan; Laura A Schieve; Jessica R Jones; Michael C Lu
Journal:  Natl Health Stat Report       Date:  2013-03-20

5.  'I just don't fit anywhere': support experiences and future support needs of individuals with Asperger syndrome in middle adulthood.

Authors:  Gemma M Griffith; Vasiliki Totsika; Susie Nash; Richard P Hastings
Journal:  Autism       Date:  2011-05-24

6.  Lifelong Parenting of Adults With Developmental Disabilities: Growth Trends Over 20 Years in Midlife and Later Life.

Authors:  Eun Ha Namkung; Jan S Greenberg; Marsha R Mailick; Frank J Floyd
Journal:  Am J Intellect Dev Disabil       Date:  2018-05

7.  Young Adults on the Autism Spectrum: The Struggle for Appropriate Services.

Authors:  Connie Anderson; Catherine Butt
Journal:  J Autism Dev Disord       Date:  2018-11

8.  The impact of autism services on mothers' psychological wellbeing.

Authors:  S Hodgetts; D McConnell; L Zwaigenbaum; D Nicholas
Journal:  Child Care Health Dev       Date:  2016-09-12       Impact factor: 2.508

9.  Barriers to Receipt of Services for Young Adults With Autism.

Authors:  Connie Anderson; Alexis Lupfer; Paul T Shattuck
Journal:  Pediatrics       Date:  2018-04       Impact factor: 7.124

10.  Trends in the prevalence of autism spectrum disorder, cerebral palsy, hearing loss, intellectual disability, and vision impairment, metropolitan atlanta, 1991-2010.

Authors:  Kim Van Naarden Braun; Deborah Christensen; Nancy Doernberg; Laura Schieve; Catherine Rice; Lisa Wiggins; Diana Schendel; Marshalyn Yeargin-Allsopp
Journal:  PLoS One       Date:  2015-04-29       Impact factor: 3.240

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  2 in total

1.  Caregiver Eligibility for Support Services: Correlates and Consequences for Resource Utilization.

Authors:  Kristin Litzelman; Autumn Harnish
Journal:  J Appl Gerontol       Date:  2020-11-06

2.  Empirical evaluation of the association between daily living skills of adults with autism and parental caregiver burden.

Authors:  Christina N Marsack-Topolewski; Preethy Sarah Samuel; Wassim Tarraf
Journal:  PLoS One       Date:  2021-01-05       Impact factor: 3.240

  2 in total

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