Literature DB >> 26331182

Biobanking Research and Human Subjects Protections: Perspectives of IRB Leaders.

Erin Rothwell, Karen J Maschke, Jeffrey R Botkin, Aaron Goldenberg, Thomas H Murray, Suzanne M Rivera.   

Abstract

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Year:  2015        PMID： 26331182      PMCID： PMC5854323     

Source DB:  PubMed          Journal:  IRB        ISSN： 0193-7758


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  10 in total

1.  Translational research: moving discovery to practice.

Authors:  E A Zerhouni
Journal:  Clin Pharmacol Ther       Date:  2007-01       Impact factor: 6.875

Review 2.  Should donors be allowed to give broad consent to future biobank research?

Authors:  Mats G Hansson; Joakim Dillner; Claus R Bartram; Joyce A Carlson; Gert Helgesson
Journal:  Lancet Oncol       Date:  2006-03       Impact factor: 41.316

3.  The qualitative content analysis process.

Authors:  Satu Elo; Helvi Kyngäs
Journal:  J Adv Nurs       Date:  2008-04       Impact factor: 3.187

4.  Broadening consent--and diluting ethics?

Authors:  B Hofmann
Journal:  J Med Ethics       Date:  2009-02       Impact factor: 2.903

5.  The Clinical and Translational Science Award (CTSA) Consortium and the translational research model.

Authors:  Alexander A Kon
Journal:  Am J Bioeth       Date:  2008-03       Impact factor: 11.229

Review 6.  Retention and research use of residual newborn screening bloodspots.

Authors:  Jeffrey R Botkin; Aaron J Goldenberg; Erin Rothwell; Rebecca A Anderson; Michelle Huckaby Lewis
Journal:  Pediatrics       Date:  2012-12-03       Impact factor: 7.124

7.  Clarity and appeal of a multimedia informed consent tool for biobanking.

Authors:  Sarah A McGraw; Carol A Wood-Nutter; Mildred Z Solomon; Karen J Maschke; Jeannette T Bensen; Jeannette T Benson; Debra E Irwin
Journal:  IRB       Date:  2012 Jan-Feb

8.  Assessing public attitudes on the retention and use of residual newborn screening blood samples: a focus group study.

Authors:  Erin Rothwell; Rebecca Anderson; Aaron Goldenberg; Michelle H Lewis; Louisa Stark; Matthew Burbank; Bob Wong; Jeffrey R Botkin
Journal:  Soc Sci Med       Date:  2012-02-18       Impact factor: 4.634

9.  Public attitudes regarding a pilot study of newborn screening for spinal muscular atrophy.

Authors:  Erin Rothwell; Rebecca A Anderson; Kathryn J Swoboda; Louisa Stark; Jeffrey R Botkin
Journal:  Am J Med Genet A       Date:  2013-02-26       Impact factor: 2.802

10.  Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?

Authors:  Kristin Solum Steinsbekk; Bjørn Kåre Myskja; Berge Solberg
Journal:  Eur J Hum Genet       Date:  2013-01-09       Impact factor: 4.246
  10 in total
  4 in total

1.  Researchers' Perspectives on Informed Consent and Ethical Review of Biobank Research in South Africa: A Cross-Sectional Study.

Authors:  Erisa Mwaka; Lyn Horn
Journal:  J Empir Res Hum Res Ethics       Date:  2019-08-05       Impact factor: 1.742

2.  Investigator Experiences and Attitudes About Research With Biospecimens.

Authors:  Suzanne M Rivera; Aaron Goldenberg; Beth Rosenthal; Heide Aungst; Karen J Maschke; Erin Rothwell; Rebecca A Anderson; Jeffrey Botkin; Steven Joffe
Journal:  J Empir Res Hum Res Ethics       Date:  2015-12       Impact factor: 1.742

Review 3.  Brain tumor biobanking in the precision medicine era: building a high-quality resource for translational research in neuro-oncology.

Authors:  Quinn T Ostrom; Karen Devine; Jordonna Fulop; Yingli Wolinsky; Peter Liao; Lindsay Stetson; Marta Couce; Andrew E Sloan; Jill S Barnholtz-Sloan
Journal:  Neurooncol Pract       Date:  2016-12-30

4.  Ethics Reporting in Biospecimen and Genetic Research: Current Practice and Suggestions for Changes.

Authors:  William Wei Lim Chin; Susanne Wieschowski; Jana Prokein; Thomas Illig; Daniel Strech
Journal:  PLoS Biol       Date:  2016-08-02       Impact factor: 8.029
  4 in total

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