Literature DB >> 26283681

Key Stakeholders' Perceptions of Motivators for Research Participation Among Individuals Who Are Incarcerated.

Bridget L Hanson1, Sherilyn A Faulkner2, Christiane Brems3, Staci L Corey2, Gloria D Eldridge2, Mark E Johnson3.   

Abstract

Understanding motivations of research participants is crucial for developing ethical research protocols, especially for research with vulnerable populations. Through interviews with 92 institutional review board members, prison administrators, research ethicists, and researchers, we explored key stakeholders' perceptions of what motivates incarcerated individuals to participate in research. Primary motivators identified were a desire to contribute to society, gaining knowledge and health care, acquiring incentives, and obtaining social support. The potential for undue influence or coercion were also identified as motivators. These results highlight the need for careful analysis of what motivates incarcerated individuals to participate in research as part of developing or reviewing ethically permissible and responsible research protocols. Future research should expand this line of inquiry to directly include perspectives of incarcerated individuals.
© The Author(s) 2015.

Entities:  

Keywords:  correctional research; incarceration; motivations; qualitative research

Mesh:

Year:  2015        PMID: 26283681      PMCID: PMC4575263          DOI: 10.1177/1556264615597500

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  12 in total

Review 1.  Managing HIV/AIDS in correctional settings.

Authors:  Sandra A Springer; Frederick L Altice
Journal:  Curr HIV/AIDS Rep       Date:  2005-11       Impact factor: 5.071

2.  Motivations, understanding, and voluntariness in international randomized trials.

Authors:  Nancy E Kass; Suzanne Maman; Joan Atkinson
Journal:  IRB       Date:  2005 Nov-Dec

3.  Research involving prisoners: consensus and controversies in international and European regulations.

Authors:  Bernice S Elger
Journal:  Bioethics       Date:  2008-05       Impact factor: 1.898

4.  Sample size in qualitative research.

Authors:  M Sandelowski
Journal:  Res Nurs Health       Date:  1995-04       Impact factor: 2.228

5.  An investigation of patients' motivations for their participation in genetics-related research.

Authors:  N Hallowell; S Cooke; G Crawford; A Lucassen; M Parker; C Snowdon
Journal:  J Med Ethics       Date:  2010-01       Impact factor: 2.903

Review 6.  'As long as it helps somebody': why vulnerable people participate in research.

Authors:  Susan Jane Alexander
Journal:  Int J Palliat Nurs       Date:  2010-04

7.  For love or money? An exploratory study of why injecting drug users participate in research.

Authors:  C Fry; R Dwyer
Journal:  Addiction       Date:  2001-09       Impact factor: 6.526

8.  Trials and tribulations: understanding motivations for clinical research participation amongst adults with cystic fibrosis.

Authors:  Karen Lowton
Journal:  Soc Sci Med       Date:  2005-10       Impact factor: 4.634

9.  Do psychiatrists understand research-related experiences, attitudes, and motivations of schizophrenia study participants?

Authors:  Teddy D Warner; Laura Weiss Roberts; Khanh Nguyen
Journal:  Compr Psychiatry       Date:  2003 May-Jun       Impact factor: 3.735

10.  A pilot survey of attitudes and knowledge about opioid substitution therapy for HIV-infected prisoners.

Authors:  Sandra A Springer; Robert D Bruce
Journal:  J Opioid Manag       Date:  2008 Mar-Apr
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  3 in total

1.  US Military Service Members' Reasons for Deciding to Participate in Health Research.

Authors:  Wendy A Cook; Kristal C Melvin; Ardith Z Doorenbos
Journal:  Res Nurs Health       Date:  2017-02-10       Impact factor: 2.228

2.  Enrolling in Clinical Research While Incarcerated: What Influences Participants' Decisions?

Authors:  Paul P Christopher; Lorena G Garcia-Sampson; Michael Stein; Jennifer Johnson; Josiah Rich; Charles Lidz
Journal:  Hastings Cent Rep       Date:  2017-03       Impact factor: 2.683

3.  Research altruism as motivation for participation in community-centered environmental health research.

Authors:  Jennifer S Carrera; Phil Brown; Julia Green Brody; Rachel Morello-Frosch
Journal:  Soc Sci Med       Date:  2017-11-21       Impact factor: 4.634

  3 in total

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