Literature DB >> 29190538

Research altruism as motivation for participation in community-centered environmental health research.

Jennifer S Carrera1, Phil Brown2, Julia Green Brody3, Rachel Morello-Frosch4.   

Abstract

Protection of human subjects in research typically focuses on extrinsic rather than intrinsic motivations for participation in research. Recent sociological literature on altruism suggests that multiple kinds of altruism exist and are grounded in a sense of connection to common humanity. We interviewed participants in eight community-centered research studies that sampled for endocrine disrupting compounds and that shared research findings with participants. The results of our analysis of participation in these studies indicate that altruistic motivations were commonly held. We found that these sentiments were tied to feeling a sense of connection to society broadly, a sense of connection to science, or a sense of connection with the community partner organization. We develop a new concept of banal altruism to address mundane practices that work towards promoting social benefits. Further, we offer that research altruism is a specific type of banal altruism that is a multi-faceted and important reason for which individuals choose to participate in community-centered research.
Copyright © 2017 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Altruism; Community partners; Community-centered research; Environmental health; Intrinsic motivation; Participation in research; Trust; United States

Mesh:

Year:  2017        PMID: 29190538      PMCID: PMC5768448          DOI: 10.1016/j.socscimed.2017.11.028

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  16 in total

1.  What's the price of a research subject? Approaches to payment for research participation.

Authors:  N Dickert; C Grady
Journal:  N Engl J Med       Date:  1999-07-15       Impact factor: 91.245

2.  Research participants' perspectives on genotype-driven research recruitment.

Authors:  Laura M Beskow; Emily E Namey; R Jean Cadigan; Tracy Brazg; Julia Crouch; Gail E Henderson; Marsha Michie; Daniel K Nelson; Holly K Tabor; Benjamin S Wilfond
Journal:  J Empir Res Hum Res Ethics       Date:  2011-12       Impact factor: 1.742

3.  HIV vaccine trial participation among ethnic minority communities: barriers, motivators, and implications for recruitment.

Authors:  Peter A Newman; Naihua Duan; Kathleen J Roberts; Danielle Seiden; Ellen T Rudy; Dallas Swendeman; Svetlana Popova
Journal:  J Acquir Immune Defic Syndr       Date:  2006-02-01       Impact factor: 3.731

4.  Promoting research participation: why not advertise altruism?

Authors:  Brian Williams; Vikki Entwistle; Gill Haddow; Mary Wells
Journal:  Soc Sci Med       Date:  2008-01-28       Impact factor: 4.634

5.  Ethics in human subjects research: do incentives matter?

Authors:  Ruth W Grant; Jeremy Sugarman
Journal:  J Med Philos       Date:  2004-12

6.  The concept of voluntary consent.

Authors:  Robert M Nelson; Tom Beauchamp; Victoria A Miller; William Reynolds; Richard F Ittenbach; Mary Frances Luce
Journal:  Am J Bioeth       Date:  2011-08       Impact factor: 11.229

7.  Typologies of Altruistic and Financial Motivations for Research Participation.

Authors:  Lisa J Chin; Jacqueline A Berenson; Robert L Klitzman
Journal:  J Empir Res Hum Res Ethics       Date:  2016-10       Impact factor: 1.742

8.  Variation in standards of research compensation and child assent practices: a comparison of 69 institutional review board-approved informed permission and assent forms for 3 multicenter pediatric clinical trials.

Authors:  Michael B Kimberly; K Sarah Hoehn; Chris Feudtner; Robert M Nelson; Mark Schreiner
Journal:  Pediatrics       Date:  2006-05       Impact factor: 7.124

9.  Key Stakeholders' Perceptions of Motivators for Research Participation Among Individuals Who Are Incarcerated.

Authors:  Bridget L Hanson; Sherilyn A Faulkner; Christiane Brems; Staci L Corey; Gloria D Eldridge; Mark E Johnson
Journal:  J Empir Res Hum Res Ethics       Date:  2015-08-17       Impact factor: 1.742

10.  Do incentives exert undue influence on survey participation? Experimental evidence.

Authors:  Eleanor Singer; Mick P Couper
Journal:  J Empir Res Hum Res Ethics       Date:  2008-09       Impact factor: 1.742

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  13 in total

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Authors:  Michael Welton; Carmen M Vélez Vega; Colleen B Murphy; Zaira Rosario; Hector Torres; Elle Russell; Phil Brown; Gredia Huerta-Montanez; Deborah Watkins; John D Meeker; Akram Alshawabkeh; José F Cordero
Journal:  Matern Child Health J       Date:  2020-01

2.  Gamete and embryo donation for research: what might shape the willingness to donate among gamete donors and recipients?

Authors:  Sandra Pinto da Silva; Cláudia de Freitas; Milton Severo; Susana Silva
Journal:  J Assist Reprod Genet       Date:  2022-08-20       Impact factor: 3.357

3.  FarGen - participants in the genetic research infrastructure of the Faroe Islands.

Authors:  Katrin D Apol; Leivur N Lydersen; Ólavur Mortensen; Pál Weihe; Bjarni Á Steig; Guðrið Andorsdóttir; Noomi O Gregersen
Journal:  Scand J Public Health       Date:  2021-10-05       Impact factor: 3.199

4.  Ethical and Methodological Considerations for Evaluating Participant Views on Alzheimer's and Dementia Research.

Authors:  Clark Benson; Amanda Friz; Shannon Mullen; Laura Block; Andrea Gilmore-Bykovskyi
Journal:  J Empir Res Hum Res Ethics       Date:  2020-11-26       Impact factor: 1.742

5.  Improving uptake and completion of pulmonary rehabilitation in COPD with lay health workers: feasibility of a clinical trial.

Authors:  Patrick White; Gill Gilworth; Simon Lewin; Lauren Hogg; Rachel Tuffnell; Stephanie J C Taylor; Nicholas S Hopkinson; Nicholas Hart; Sally J Singh; Alison J Wright
Journal:  Int J Chron Obstruct Pulmon Dis       Date:  2019-03-12

6.  Was it worth it? Older adults' experiences of participating in a population-based cohort study - a focus group study.

Authors:  Synneve Dahlin-Ivanoff; Therese Rydberg Sterner; Kaj Blennow; Ingmar Skoog; Hanna Falk Erhag
Journal:  BMC Geriatr       Date:  2019-08-19       Impact factor: 3.921

7.  Differences in HIV cure clinical trial preferences of French people living with HIV and physicians in the ANRS-APSEC study: a discrete choice experiment.

Authors:  Christel Protiere; Michael Arnold; Marion Fiorentino; Lisa Fressard; Jean D Lelièvre; Mohamed Mimi; François Raffi; Marion Mora; Laurence Meyer; Luis Sagaon-Teyssier; David Zucman; Marie Préau; Olivier Lambotte; Bruno Spire; Marie Suzan-Monti
Journal:  J Int AIDS Soc       Date:  2020-02       Impact factor: 5.396

Review 8.  Altruism: Scoping review of the literature and future directions for HIV cure-related research.

Authors:  Karine Dubé; Kelly E Perry; Kushagra Mathur; Megan Lo; Sogol S Javadi; Hursch Patel; Susanna Concha-Garcia; Jeff Taylor; Andy Kaytes; Lynda Dee; Danielle Campbell; John Kanazawa; David Smith; Sara Gianella; Judith D Auerbach; Parya Saberi; John A Sauceda
Journal:  J Virus Erad       Date:  2020-08-25

9.  What do parents think of using informational videos to support recruitment for parenting trials? A qualitative study.

Authors:  Maiken Pontoppidan; Sarah Blower; Julie Nygaard Solvang; Tracey Bywater
Journal:  Trials       Date:  2021-12-04       Impact factor: 2.279

10.  Recruitment and retention of underrepresented and vulnerable populations to research.

Authors:  Shelby L Langer; Felipe González Castro; Angela Chia-Chen Chen; Kelly Cue Davis; Rodney P Joseph; Wonsun Sunny Kim; Linda Larkey; Rebecca E Lee; Megan E Petrov; Elizabeth Reifsnider; Shawn D Youngstedt; Gabriel Q Shaibi
Journal:  Public Health Nurs       Date:  2021-07-08       Impact factor: 1.462

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