Literature DB >> 25773136

A Web-Based Platform for Educating Researchers About Bioethics and Biobanking.

Ivana Sehovic1, Clement K Gwede1,2, Cathy D Meade1,2, Stephen Sodeke3, Rebecca Pentz4, Gwendolyn P Quinn5,6.   

Abstract

Participation in biobanking among individuals with familial risk for hereditary cancer (IFRs) and underserved/minority populations is vital for biobanking research. To address gaps in researcher knowledge regarding ethical concerns of these populations, we developed a web-based curriculum. Based on formative research and expert panel assessments, a curriculum and website was developed in an integrative, systematic manner. Researchers were recruited to evaluate the curriculum. Public health graduate students were recruited to pilot test the curriculum. All 14 researchers agreed the curriculum was easy to understand, adequately addressed the domains, and contained appropriate post-test questions. The majority evaluated the dialgoue animations as interesting and valuable. Twenty-two graduate students completed the curriculum, and 77 % improved their overall test score. A web-based curriculum is an acceptable and effective way to provide information to researchers about vulnerable populations' biobanking concerns. Future goals are to incorporate the curriculum with larger organizations.

Entities:  

Keywords:  Biobanking; Bioethics; Education; Genetics; Medically underserved; eLearning

Mesh:

Year:  2016        PMID: 25773136      PMCID: PMC4573774          DOI: 10.1007/s13187-015-0812-5

Source DB:  PubMed          Journal:  J Cancer Educ        ISSN: 0885-8195            Impact factor:   2.037


  20 in total

Review 1.  Ethical issues in tissue banking for research: a brief review of existing organizational policies.

Authors:  Keith Bauer; Sara Taub; Kayhan Parsi
Journal:  Theor Med Bioeth       Date:  2004

2.  Comparison of text and video cases in a postgraduate problem-based learning format.

Authors:  T Balslev; W S de Grave; A M M Muijtjens; A J J A Scherpbier
Journal:  Med Educ       Date:  2005-11       Impact factor: 6.251

3.  Recommendations for teaching about racial and ethnic disparities in health and health care.

Authors:  Wally R Smith; Joseph R Betancourt; Matthew K Wynia; Jada Bussey-Jones; Valerie E Stone; Christopher O Phillips; Alicia Fernandez; Elizabeth Jacobs; Jacqueline Bowles
Journal:  Ann Intern Med       Date:  2007-11-06       Impact factor: 25.391

4.  Effectiveness of teaching methods in a medical institute: perceptions of medical students to teaching aids.

Authors:  Suhaib Haider Naqvi; Fizza Mobasher; Muhammad Abdul Rehman Afzal; Muhammad Umair; Arooj Naeem Kohli; Mulazim Hussain Bukhari
Journal:  J Pak Med Assoc       Date:  2013-07       Impact factor: 0.781

5.  Next generation disparities in human genomics: concerns and remedies.

Authors:  Anna C Need; David B Goldstein
Journal:  Trends Genet       Date:  2009-11       Impact factor: 11.639

6.  Enhancing health students' understanding of generic research concepts using a web-based video resource.

Authors:  Lynne Callaghan; Susan J Lea; Lauren Mutton; Emma Whittlesea
Journal:  Nurse Educ Pract       Date:  2011-04-20       Impact factor: 2.281

7.  Genetic research participation in a young adult community sample.

Authors:  Carla L Storr; Flora Or; William W Eaton; Nicholas Ialongo
Journal:  J Community Genet       Date:  2014-06-20

8.  Formative research on perceptions of biobanking: what community members think.

Authors:  John S Luque; Gwendolyn P Quinn; Francisco A Montel-Ishino; Mariana Arevalo; Shalanda A Bynum; Shalewa Noel-Thomas; Kristen J Wells; Clement K Gwede; Cathy D Meade
Journal:  J Cancer Educ       Date:  2012-03       Impact factor: 2.037

Review 9.  Ethical issues in mental health research: the case for community engagement.

Authors:  James M Dubois; Brendolyn Bailey-Burch; Dan Bustillos; Jean Campbell; Linda Cottler; Celia B Fisher; Whitney B Hadley; Jinger G Hoop; Laura Roberts; Erica K Salter; Joan E Sieber; Richard D Stevenson
Journal:  Curr Opin Psychiatry       Date:  2011-05       Impact factor: 4.741

10.  The CITI program: an international online resource for education in human subjects protection and the responsible conduct of research.

Authors:  Paul Braunschweiger; Kenneth W Goodman
Journal:  Acad Med       Date:  2007-09       Impact factor: 6.893

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  2 in total

Review 1.  Clinical Research Informatics: Supporting the Research Study Lifecycle.

Authors:  S B Johnson
Journal:  Yearb Med Inform       Date:  2017-09-11

2.  Online Training as a Means to Improve the Understanding of Ethical, Legal, and Social Aspects of Biobanking Research: Stakeholder Perspectives from South Africa.

Authors:  Shenuka Singh; Keymanthri Moodley; Rosemary Jean Cadigan
Journal:  Biopreserv Biobank       Date:  2021-12-20       Impact factor: 2.256

  2 in total

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