Literature DB >> 21460643

Ethical issues in mental health research: the case for community engagement.

James M Dubois1, Brendolyn Bailey-Burch, Dan Bustillos, Jean Campbell, Linda Cottler, Celia B Fisher, Whitney B Hadley, Jinger G Hoop, Laura Roberts, Erica K Salter, Joan E Sieber, Richard D Stevenson.   

Abstract

PURPOSE OF REVIEW: To describe community-engaged research (CEnR) and how it may improve the quality of a research study while addressing ethical concerns that communities may have with mental health and substance abuse research. This article includes a review of the literature as well as recommendations from an expert panel convened with funding from the US National Institute of Mental Health. RECENT
FINDINGS: CEnR represents a broad spectrum of practices, including representation on institutional ethics committees, attitude research with individuals from the study population, engaging community advisory boards, forming research partnerships with community organizations, and including community members as co-investigators.
SUMMARY: CEnR poses some challenges; for example, it requires funding and training for researchers and community members. However, it offers many benefits to researchers and communities, and some form of CEnR is appropriate and feasible in nearly every study involving human participants.

Entities:  

Mesh:

Year:  2011        PMID: 21460643      PMCID: PMC3528105          DOI: 10.1097/YCO.0b013e3283459422

Source DB:  PubMed          Journal:  Curr Opin Psychiatry        ISSN: 0951-7367            Impact factor:   4.741


  55 in total

1.  What makes clinical research ethical?

Authors:  E J Emanuel; D Wendler; C Grady
Journal:  JAMA       Date:  2000 May 24-31       Impact factor: 56.272

2.  The experience of mental health consumers as researchers.

Authors:  T L Morrell-Bellai; K M Boydell
Journal:  Can J Commun Ment Health       Date:  1994

3.  Enrolling, Retaining, and Benefiting Out-of-Treatment Drug Users in Intervention Research.

Authors:  Catherine L W Striley; Catina Callahan; Linda B Cottler
Journal:  J Empir Res Hum Res Ethics       Date:  2008-09       Impact factor: 1.742

4.  Marginalized populations and drug addiction research: realism, mistrust, and misconception.

Authors:  Celia B Fisher; Matthew Oransky; Meena Mahadevan; Merrill Singer; Greg Mirhej; Derrick Hodge
Journal:  IRB       Date:  2008 May-Jun

5.  Perspectives of patients with schizophrenia and psychiatrists regarding ethically important aspects of research participation.

Authors:  L W Roberts; T D Warner; J L Brody
Journal:  Am J Psychiatry       Date:  2000-01       Impact factor: 18.112

6.  The challenges of collaboration for academic and community partners in a research partnership: points to consider.

Authors:  Lainie Friedman Ross; Allan Loup; Robert M Nelson; Jeffrey R Botkin; Rhonda Kost; George R Smith; Sarah Gehlert
Journal:  J Empir Res Hum Res Ethics       Date:  2010-03       Impact factor: 1.742

7.  A retrospective study of children's perceptions of participation as clinical research subjects in a minimal risk study.

Authors:  B S Fogas; J R Oesterheld; R I Shader
Journal:  J Dev Behav Pediatr       Date:  2001-08       Impact factor: 2.225

8.  The attitudes of females in drug court toward additional safeguards in HIV prevention research.

Authors:  James M DuBois; Catina Callahan O'Leary; Linda B Cottler
Journal:  Prev Sci       Date:  2009-12

9.  The epidemiology of major depressive disorder: results from the National Comorbidity Survey Replication (NCS-R).

Authors:  Ronald C Kessler; Patricia Berglund; Olga Demler; Robert Jin; Doreen Koretz; Kathleen R Merikangas; A John Rush; Ellen E Walters; Philip S Wang
Journal:  JAMA       Date:  2003-06-18       Impact factor: 56.272

10.  Subjective evaluations of research participation by persons with mental illness.

Authors:  Cherise Rosen; Linda S Grossman; Rajiv P Sharma; Carl C Bell; Russ Mullner; Henry W Dove
Journal:  J Nerv Ment Dis       Date:  2007-05       Impact factor: 2.254

View more
  20 in total

1.  The development of the Bronx Community Research Review Board: a pilot feasibility project for a model of community consultation.

Authors:  Francisco Martin del Campo; Joann Casado; Paulette Spencer; Hal Strelnick
Journal:  Prog Community Health Partnersh       Date:  2013

2.  Beyond the medical model: interdisciplinary programs of community-engaged health research.

Authors:  Lois S Sadler; Kelley H Newlin; Ida Johnson-Spruill; Carolyn Jenkins
Journal:  Clin Transl Sci       Date:  2011-08       Impact factor: 4.689

3.  The triple challenge of recruiting older adults with dementia and high medical acuity in skilled nursing facilities.

Authors:  Ann Kolanowski; Paula Mulhall; Andrea Yevchak; Nikki Hill; Donna Fick
Journal:  J Nurs Scholarsh       Date:  2013-07-16       Impact factor: 3.176

4.  A Web-Based Platform for Educating Researchers About Bioethics and Biobanking.

Authors:  Ivana Sehovic; Clement K Gwede; Cathy D Meade; Stephen Sodeke; Rebecca Pentz; Gwendolyn P Quinn
Journal:  J Cancer Educ       Date:  2016-06       Impact factor: 2.037

5.  Capacity building from the inside out: development and evaluation of a CITI ethics certification training module for American Indian and Alaska Native community researchers.

Authors:  Cynthia R Pearson; Myra Parker; Celia B Fisher; Claudia Moreno
Journal:  J Empir Res Hum Res Ethics       Date:  2014-02       Impact factor: 1.742

6.  HIV prevention research ethics: an introduction to the special issue.

Authors:  Celia B Fisher
Journal:  J Empir Res Hum Res Ethics       Date:  2014-02       Impact factor: 1.742

7.  Restoring balance: a consensus statement on the protection of vulnerable research participants.

Authors:  James M DuBois; Laura Beskow; Jean Campbell; Karen Dugosh; David Festinger; Sarah Hartz; Rosalina James; Charles Lidz
Journal:  Am J Public Health       Date:  2012-10-18       Impact factor: 9.308

8.  Leveraging After-School Programs to Minimize Risks for Internalizing Symptoms Among Urban Youth: Weaving Together Music Education and Social Development.

Authors:  Erin R Hedemann; Stacy L Frazier
Journal:  Adm Policy Ment Health       Date:  2017-09

Review 9.  Research ethics education for community-engaged research: a review and research agenda.

Authors:  Emily E Anderson; Stephanie Solomon; Elizabeth Heitman; James M DuBois; Celia B Fisher; Rhonda G Kost; Mary Ellen Lawless; Cornelia Ramsey; Bonnie Jones; Alice Ammerman; Lainie Friedman Ross
Journal:  J Empir Res Hum Res Ethics       Date:  2012-04       Impact factor: 1.742

10.  Enhancing the Responsible Conduct of Sexual Health Prevention Research Across Global and Local Contexts: Training for Evidence-Based Research Ethics.

Authors:  Celia B Fisher
Journal:  Ethics Behav       Date:  2014-12-01
View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.