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Literature DB >> 25677868

When Should Genome Researchers Disclose Misattributed Parentage?

Amulya Mandava, Joseph Millum, Benjamin E Berkman.

Abstract

Researchers need a decision-making framework about disclosing a finding of misattributed parentage that accounts for nonclinical factors like the effects of personal identity and familial relationships.

Entities: Disease Gene Species

Mesh：

Year: 2015 PMID： 25677868 PMCID： PMC4497848 DOI： 10.1002/hast.452

Source DB: PubMed Journal: Hastings Cent Rep ISSN： 0093-0334 Impact factor: 2.683

16 in total

1. Revealing false paternity: some ethical considerations.

Authors: A Lucassen; M Parker
Journal: Lancet Date: 2001-03-31 Impact factor: 79.321

2. Disclosing misattributed paternity.

Authors: Lainie Friedman Ross
Journal: Bioethics Date: 1996-04 Impact factor: 1.898

3. The ancillary-care responsibilities of medical researchers. An ethical framework for thinking about the clinical care that researchers owe their subjects.

Authors: Henry S Richardson; Leah Belsky
Journal: Hastings Cent Rep Date: 2004 Jan-Feb Impact factor: 2.683

4. Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).

Authors: Christine Weiner
Journal: Am J Epidemiol Date: 2014-08-22 Impact factor: 4.897

Review 5. The dilemma of unintentional discovery of misattributed paternity in living kidney donors and recipients.

Authors: Nina M Schroder
Journal: Curr Opin Organ Transplant Date: 2009-04 Impact factor: 2.640

6. Informed consent and the misattributed paternity problem in genetic counseling.

Authors: Erica K Lucast
Journal: Bioethics Date: 2007-01 Impact factor: 1.898

7. A framework for analyzing the ethics of disclosing genetic research findings.

Authors: Lisa Eckstein; Jeremy R Garrett; Benjamin E Berkman
Journal: J Law Med Ethics Date: 2014 Impact factor: 1.718

8. Privacy and disclosure in medical genetics examined in an ethics of care.

Authors: Dorothy C Wertz; John C Fletcher
Journal: Bioethics Date: 1991-07 Impact factor: 1.898

9. Disclosure of misattributed paternity: issues involved in the discovery of unsought information.

Authors: Linda Wright; Susan MacRae; Debra Gordon; Esther Elliot; David Dixon; Susan Abbey; Robert Richardson
Journal: Semin Dial Date: 2002 May-Jun Impact factor: 3.455

Review 10. Managing incidental findings in human subjects research: analysis and recommendations.

Authors: Susan M Wolf; Frances P Lawrenz; Charles A Nelson; Jeffrey P Kahn; Mildred K Cho; Ellen Wright Clayton; Joel G Fletcher; Michael K Georgieff; Dale Hammerschmidt; Kathy Hudson; Judy Illes; Vivek Kapur; Moira A Keane; Barbara A Koenig; Bonnie S Leroy; Elizabeth G McFarland; Jordan Paradise; Lisa S Parker; Sharon F Terry; Brian Van Ness; Benjamin S Wilfond
Journal: J Law Med Ethics Date: 2008 Impact factor: 1.718

4 in total