Literature DB >> 17845501

Informed consent and the misattributed paternity problem in genetic counseling.

Erica K Lucast1.   

Abstract

When misattributed paternity is discovered in the course of genetic testing, a genetic counselor is presented with a dilemma concerning whether to reveal this information to the clients. She is committed to treating the clients equally and enabling informed decision making, but disclosing the information may carry consequences for the woman that the counselor cannot judge in advance. A frequent suggestion aimed at avoiding this problem is to include the risk of discovering nonpaternity in the informed consent process for counseling. In this paper I argue that such a move does not resolve the problem, because the conflict hinges on the interpretation of equality on which the counselor operates. Given the principles of genetic counseling, neither construal of equality yields a satisfactory solution to the conflict. In fact, I conclude that including nonpaternity in informed consent is not endorsed by either view, and we are still left with the question of what to do should nonpaternity be discovered. I suggest a compromise position concerning disclosure, involving revealing relevant genetic information but withholding nonpaternity when possible.

Entities:  

Mesh:

Year:  2007        PMID: 17845501     DOI: 10.1111/j.1467-8519.2007.00522.x

Source DB:  PubMed          Journal:  Bioethics        ISSN: 0269-9702            Impact factor:   1.898


  8 in total

Review 1.  Medical ethics for the genome world: a paper from the 2007 William Beaumont hospital symposium on molecular pathology.

Authors:  Kelly E Ormond
Journal:  J Mol Diagn       Date:  2008-08-07       Impact factor: 5.568

2.  Beyond informed consent: the ethics of informing, anticipating, and warning.

Authors:  Edmund Howe
Journal:  Psychiatry (Edgmont)       Date:  2008-10

3.  Ethical dilemmas in genetic testing: examples from the Cuban program for predictive diagnosis of hereditary ataxias.

Authors:  Tania Cruz Mariño; Rubén Reynaldo Armiñán; Humberto Jorge Cedeño; José Miguel Laffita Mesa; Yanetza González Zaldivar; Raúl Aguilera Rodríguez; Miguel Velázquez Santos; Luis Enrique Almaguer Mederos; Milena Paneque Herrera; Luis Velázquez Pérez
Journal:  J Genet Couns       Date:  2011-01-25       Impact factor: 2.537

4.  The dilemma of revealing sensitive information on paternity status in Arabian social and cultural contexts: telling the truth about paternity in Saudi Arabia.

Authors:  Abdallah A Adlan; Henk A M J ten Have
Journal:  J Bioeth Inq       Date:  2012-10-12       Impact factor: 1.352

Review 5.  Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents.

Authors:  Jeffrey R Botkin; John W Belmont; Jonathan S Berg; Benjamin E Berkman; Yvonne Bombard; Ingrid A Holm; Howard P Levy; Kelly E Ormond; Howard M Saal; Nancy B Spinner; Benjamin S Wilfond; Joseph D McInerney
Journal:  Am J Hum Genet       Date:  2015-07-02       Impact factor: 11.025

6.  Should physicians tell the truth without taking social complications into account? A striking case.

Authors:  Ercan Avci
Journal:  Med Health Care Philos       Date:  2018-03

7.  When Should Genome Researchers Disclose Misattributed Parentage?

Authors:  Amulya Mandava; Joseph Millum; Benjamin E Berkman
Journal:  Hastings Cent Rep       Date:  2015-02-11       Impact factor: 2.683

8.  How should we deal with misattributed paternity? A survey of lay public attitudes.

Authors:  Georgia Lowe; Jonathan Pugh; Guy Kahane; Louise Corben; Sharon Lewis; Martin Delatycki; Julian Savulescu
Journal:  AJOB Empir Bioeth       Date:  2017-09-29
  8 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.