Literature DB >> 12100459

Disclosure of misattributed paternity: issues involved in the discovery of unsought information.

Linda Wright1, Susan MacRae, Debra Gordon, Esther Elliot, David Dixon, Susan Abbey, Robert Richardson.   

Abstract

Kidney transplantation from living donors is generally a safe, effective form of renal replacement therapy. When evaluating potential living donors and their intended recipients, a careful assessment process is followed in order to ensure that ethical standards are upheld. During this assessment, important medical information with serious consequences, which was not being sought as part of the donor/recipient evaluation, may be discovered. The information may or may not be relevant to the decision to donate. However, such a discovery raises the difficult questions of whether or not there is an obligation to disclose the information, to whom does the information belong, and what process should be used to resolve the issue? We present a case that forced us to confront these questions and raised issues of truth telling, autonomy, paternalism, confidentiality, and the nature of the relationship between patients and health care professionals.

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Mesh:

Year:  2002        PMID: 12100459     DOI: 10.1046/j.1525-139x.2002.00541.x

Source DB:  PubMed          Journal:  Semin Dial        ISSN: 0894-0959            Impact factor:   3.455


  10 in total

1.  Beyond informed consent: the ethics of informing, anticipating, and warning.

Authors:  Edmund Howe
Journal:  Psychiatry (Edgmont)       Date:  2008-10

2.  The dilemma of revealing sensitive information on paternity status in Arabian social and cultural contexts: telling the truth about paternity in Saudi Arabia.

Authors:  Abdallah A Adlan; Henk A M J ten Have
Journal:  J Bioeth Inq       Date:  2012-10-12       Impact factor: 1.352

3.  Should physicians tell the truth without taking social complications into account? A striking case.

Authors:  Ercan Avci
Journal:  Med Health Care Philos       Date:  2018-03

Review 4.  APOL1 Genetic Testing in Living Kidney Transplant Donors.

Authors:  Sumit Mohan; Ana S Iltis; Deirdre Sawinski; James M DuBois
Journal:  Am J Kidney Dis       Date:  2019-04-11       Impact factor: 8.860

5.  KDIGO Clinical Practice Guideline on the Evaluation and Care of Living Kidney Donors.

Authors:  Krista L Lentine; Bertram L Kasiske; Andrew S Levey; Patricia L Adams; Josefina Alberú; Mohamed A Bakr; Lorenzo Gallon; Catherine A Garvey; Sandeep Guleria; Philip Kam-Tao Li; Dorry L Segev; Sandra J Taler; Kazunari Tanabe; Linda Wright; Martin G Zeier; Michael Cheung; Amit X Garg
Journal:  Transplantation       Date:  2017-08       Impact factor: 4.939

6.  When Should Genome Researchers Disclose Misattributed Parentage?

Authors:  Amulya Mandava; Joseph Millum; Benjamin E Berkman
Journal:  Hastings Cent Rep       Date:  2015-02-11       Impact factor: 2.683

7.  Regulating Gamete Donation in the U.S.: Ethical, Legal and Social Implications.

Authors:  Maya Sabatello
Journal:  Laws       Date:  2015-09

Review 8.  Massively Parallel Sequencing for Rare Genetic Disorders: Potential and Pitfalls.

Authors:  Aideen M McInerney-Leo; Emma L Duncan
Journal:  Front Endocrinol (Lausanne)       Date:  2021-02-19       Impact factor: 5.555

9.  An old problem in a new age: Revisiting the clinical dilemma of misattributed paternity.

Authors:  Laura Hercher; Leila Jamal
Journal:  Appl Transl Genom       Date:  2016-02-01

10.  How should we deal with misattributed paternity? A survey of lay public attitudes.

Authors:  Georgia Lowe; Jonathan Pugh; Guy Kahane; Louise Corben; Sharon Lewis; Martin Delatycki; Julian Savulescu
Journal:  AJOB Empir Bioeth       Date:  2017-09-29
  10 in total

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